Literature DB >> 15695474

Toward a patient-centered approach: incorporating principles of participatory action research into clinical studies.

Margaret A White1, Marja J Verhoef.   

Abstract

UNLABELLED: Despite the shift to patient-centered care in recent years, many clinical studies continue to reinforce the traditional researcher/subject relationship. In contrast, action research engages study participants in a collaborative relationship with researchers.
OBJECTIVES: To review the benefits of adding a participatory component to an existing study with respect to (1) engaging participants in the research process to clarify and validate qualitative findings, (2) engaging participants in the change process to develop potential solutions for improving integrative cancer services, and (3) giving voice to the concerns of patients using complementary and alternative medicine.
METHOD: Focus groups were used to clarify concepts arising from patient interviews and to provide a forum for participants to develop recommendations and facilitate dissemination.
CONCLUSION: Our approach empowered patients by involving them in the research and in developing solutions for how health care providers, policy makers, and researchers can enhance an integrative approach to cancer care.

Entities:  

Mesh:

Year:  2005        PMID: 15695474     DOI: 10.1177/1534735404273727

Source DB:  PubMed          Journal:  Integr Cancer Ther        ISSN: 1534-7354            Impact factor:   3.279


  16 in total

1.  Involving patients in HTA activities at local level: a study protocol based on the collaboration between researchers and knowledge users.

Authors:  Marie-Pierre Gagnon; Johanne Gagnon; Michèle St-Pierre; François-Pierre Gauvin; Florence Piron; Marc Rhainds; Martin Coulombe; Dolores Lepage-Savary; Marie Desmartis; Mylène Tantchou Dipankui; France Légaré
Journal:  BMC Health Serv Res       Date:  2012-01-16       Impact factor: 2.655

2.  Promoting exercise in Parkinson's disease through community-based participatory research.

Authors:  Mark A Hirsch; Sanjay S Iyer; Danielle Englert; Mohammed Sanjak
Journal:  Neurodegener Dis Manag       Date:  2011-10

3.  Collaboration and co-ownership in research: dynamics and dialogues between patient research partners and professional researchers in a research team.

Authors:  Christi J Nierse; Karen Schipper; Ezra van Zadelhoff; Joos van de Griendt; Tineke A Abma
Journal:  Health Expect       Date:  2011-02-17       Impact factor: 3.377

4.  From patient to participant: enhancing the validity and ethics of cancer research through participatory research.

Authors:  Connie G Chiu; Terry L Mitchell; Margaret I Fitch
Journal:  J Cancer Educ       Date:  2013-06       Impact factor: 2.037

Review 5.  Patient and service user engagement in research: a systematic review and synthesized framework.

Authors:  Nathan D Shippee; Juan Pablo Domecq Garces; Gabriela J Prutsky Lopez; Zhen Wang; Tarig A Elraiyah; Mohammed Nabhan; Juan P Brito; Kasey Boehmer; Rim Hasan; Belal Firwana; Patricia J Erwin; Victor M Montori; M Hassan Murad
Journal:  Health Expect       Date:  2013-06-03       Impact factor: 3.377

6.  Seeking Mind, Body and Spirit Healing-Why Some Men with Prostate Cancer Choose CAM (Complementary and Alternative Medicine) over Conventional Cancer Treatments.

Authors:  Margaret A White; Marja J Verhoef; B J Davison; Hal Gunn; Karen Cooke
Journal:  Integr Med Insights       Date:  2008-02-01

7.  The impact of cancer coalitions on the dissemination of colorectal cancer materials to community organizations in rural Appalachia.

Authors:  Ann J Ward; Brenda Coffey Kluhsman; Eugene J Lengerich; Andrea M Piccinin
Journal:  Prev Chronic Dis       Date:  2006-03-15       Impact factor: 2.830

8.  Involving patient in the early stages of health technology assessment (HTA): a study protocol.

Authors:  Marie-Pierre Gagnon; Bernard Candas; Marie Desmartis; Johanne Gagnon; Daniel La Roche; Marc Rhainds; Martin Coulombe; Mylène Tantchou Dipankui; France Légaré
Journal:  BMC Health Serv Res       Date:  2014-06-20       Impact factor: 2.655

9.  How to summarise and report written qualitative data from patients: a method for use in cancer support care.

Authors:  Marie J Polley; Helen E Seers; Helen J Cooke; Caroline Hoffman; Charlotte Paterson
Journal:  Support Care Cancer       Date:  2007-07-10       Impact factor: 3.603

10.  Louisiana Clinical Data Research Network: establishing an infrastructure for efficient conduct of clinical research.

Authors:  Anjum Khurshid; Elizabeth Nauman; Tom Carton; Ron Horswell
Journal:  J Am Med Inform Assoc       Date:  2014-05-12       Impact factor: 4.497

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