GOALS OF WORK: The goal of this study is the determination of key themes to aid the analysis of qualitative data collected at three cancer support centres in England, using the Measure Yourself Concerns and Wellbeing (MYCaW) questionnaire. PATIENTS AND METHODS: People with cancer who use complementary therapies experience and value a wide range of treatment effects, yet tools are urgently required to quantitatively measure these outcomes. MYCaW is an individualised questionnaire used in cancer support centres providing complementary therapies, scoring 'concerns or problems' and 'well-being' and collecting qualitative data about other major events in a patient's life and what has been most important to the patient. Content analysis on 782 MYCaW questionnaires from people at these cancer support centres was carried out. The 'concerns,' 'other things going on in their life' and 'important aspects of centre' were thematically categorised and externally validated by a focus group, and the inter-rater reliability was calculated. MAIN RESULTS: Clinical information from a cancer patient's perspective was collected that is not measured on standard quality-of-life questionnaires; furthermore, some themes acknowledge the multi-faceted aspects of complementary and alternative medicine provision, rather than information only relating to the therapeutic intervention. Categories for qualitative MYCaW analysis have been established providing a tool for future research and/or service delivery improvement within cancer support centres such as these. CONCLUSIONS: The established themes provide a framework to aid analysis of qualitative aspects of complementary therapy care for people with cancer, improving our understanding of how the patient's cancer experience can be aided by complementary therapies in specialised cancer centres.
GOALS OF WORK: The goal of this study is the determination of key themes to aid the analysis of qualitative data collected at three cancer support centres in England, using the Measure Yourself Concerns and Wellbeing (MYCaW) questionnaire. PATIENTS AND METHODS: People with cancer who use complementary therapies experience and value a wide range of treatment effects, yet tools are urgently required to quantitatively measure these outcomes. MYCaW is an individualised questionnaire used in cancer support centres providing complementary therapies, scoring 'concerns or problems' and 'well-being' and collecting qualitative data about other major events in a patient's life and what has been most important to the patient. Content analysis on 782 MYCaW questionnaires from people at these cancer support centres was carried out. The 'concerns,' 'other things going on in their life' and 'important aspects of centre' were thematically categorised and externally validated by a focus group, and the inter-rater reliability was calculated. MAIN RESULTS: Clinical information from a cancer patient's perspective was collected that is not measured on standard quality-of-life questionnaires; furthermore, some themes acknowledge the multi-faceted aspects of complementary and alternative medicine provision, rather than information only relating to the therapeutic intervention. Categories for qualitative MYCaW analysis have been established providing a tool for future research and/or service delivery improvement within cancer support centres such as these. CONCLUSIONS: The established themes provide a framework to aid analysis of qualitative aspects of complementary therapy care for people with cancer, improving our understanding of how the patient's cancer experience can be aided by complementary therapies in specialised cancer centres.
Authors: A Molassiotis; P Fernández-Ortega; D Pud; G Ozden; J A Scott; V Panteli; A Margulies; M Browall; M Magri; S Selvekerova; E Madsen; L Milovics; I Bruyns; G Gudmundsdottir; S Hummerston; A M-A Ahmad; N Platin; N Kearney; E Patiraki Journal: Ann Oncol Date: 2005-02-02 Impact factor: 32.976
Authors: Judith Lacey; Anna J Lomax; Catriona McNeil; Michael Marthick; David Levy; Steven Kao; Theresa Nielsen; Haryana M Dhillon Journal: Support Care Cancer Date: 2018-11-03 Impact factor: 3.603
Authors: Christopher T Richards; Michael A Gisondi; Chih-Hung Chang; D Mark Courtney; Kirsten G Engel; Linda Emanuel; Tammie Quest Journal: J Palliat Med Date: 2011-05-06 Impact factor: 2.947
Authors: Charlotte Paterson; Rod S Taylor; Peter Griffiths; Nicky Britten; Sue Rugg; Jackie Bridges; Bruce McCallum; Gerad Kite Journal: Br J Gen Pract Date: 2011-06 Impact factor: 5.386
Authors: Joshua Bauml; Corey J Langer; Tracey Evans; Sheila N Garland; Krupali Desai; Jun J Mao Journal: Support Care Cancer Date: 2014-04-09 Impact factor: 3.603
Authors: Helen E Seers; Nicola Gale; Charlotte Paterson; Helen J Cooke; Veronica Tuffrey; Marie J Polley Journal: Support Care Cancer Date: 2009-01-13 Impact factor: 3.603
Authors: Ellen Conte; Mark Legacy; Athanasios Psihogios; Anne Pitman; Andrea Redway; Jill Hamer-Wilson; Dugald Seely Journal: Integr Cancer Ther Date: 2020 Jan-Dec Impact factor: 3.279
Authors: Rachel Jolliffe; Nicole Collaco; Helen Seers; Chris Farrell; Michael J Sawkins; Marie J Polley Journal: Support Care Cancer Date: 2018-09-11 Impact factor: 3.603