Literature DB >> 15690941

Are genetic self-tests dangerous? Assessing the commercialization of genetic testing in terms of personal autonomy.

Ludvig Beckman.   

Abstract

Should a growing market for genetic self-tests be welcomed or feared? From the point of view of personal autonomy the increasing availability of predictive health information seems promising. Yet it is frequently pointed out that genetic information about future health may cause anxiety, distress and even loss of "life-hopes." In this article the argument that genetic self-tests undermine personal autonomy is assessed and criticized. I contend that opportunities for autonomous choice are not reduced by genetic information but by misperceptions and misunderstandings of the results of genetic tests. Since the interpretation of genetic information is sometimes distorted by the information provided about the genetic products, more attention should be given to deceitful marketing that overblows the utility of genetic products. Yet personal autonomy is reduced neither by genetic tests nor by genetic information and there is consequently no compelling case for the conclusion that genetic self-tests should be prohibited.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  2004        PMID: 15690941     DOI: 10.1007/s11017-004-2047-z

Source DB:  PubMed          Journal:  Theor Med Bioeth        ISSN: 1386-7415


  11 in total

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Authors:  N A Holtzman; M S Watson
Journal:  J Child Fam Nurs       Date:  1999 Sep-Oct

2.  Autonomy and freedom of choice in prenatal genetic diagnosis.

Authors:  Elisabeth Hildt
Journal:  Med Health Care Philos       Date:  2002

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Authors:  Sjef Gevers
Journal:  Eur J Health Law       Date:  1999-06

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Authors:  Sarah E Gollust; Sara Chandros Hull; Benjamin S Wilfond
Journal:  JAMA       Date:  2002-10-09       Impact factor: 56.272

5.  Direct-to-consumer sales of genetic services on the Internet.

Authors:  Sarah E Gollust; Benjamin S Wilfond; Sara Chandros Hull
Journal:  Genet Med       Date:  2003 Jul-Aug       Impact factor: 8.822

Review 6.  The place of autonomy in bioethics.

Authors:  J F Childress
Journal:  Hastings Cent Rep       Date:  1990 Jan-Feb       Impact factor: 2.683

7.  Cancer patients who experienced diagnostic genetic testing for cancer susceptibility: reactions and behavior after the disclosure of a positive test result.

Authors:  Valérie Bonadona; Pierre Saltel; Françoise Desseigne; Hervé Mignotte; Jean-Christophe Saurin; Qing Wang; Olga Sinilnikova; Sophie Giraud; Gilles Freyer; Henri Plauchu; Alain Puisieux; Christine Lasset
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2002-01       Impact factor: 4.254

8.  Will genetic testing for predisposition for disease result in fatalism? A qualitative study of parents responses to neonatal screening for familial hypercholesterolaemia.

Authors:  V Senior; T M Marteau; T J Peters
Journal:  Soc Sci Med       Date:  1999-06       Impact factor: 4.634

9.  Reading between the lines: direct-to-consumer advertising of genetic testing in the USA.

Authors:  S C Hull; K Prasad
Journal:  Reprod Health Matters       Date:  2001-11

10.  Commercialisation of genetic diagnostic services.

Authors:  R Hoedemaekers; H ten Have
Journal:  Med Health Care Philos       Date:  1998
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  5 in total

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Authors:  Douglas K Martin; Heather L Greenwood; Jeff Nisker
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Journal:  Int J Clin Pharm       Date:  2010-11-04

Review 3.  Clinical applications of pharmacogenomics guided warfarin dosing.

Authors:  Pramod Mahajan; Kristin S Meyer; Geoffrey C Wall; Heidi J Price
Journal:  Int J Clin Pharm       Date:  2011-02-04

4.  Direct-to-consumer genomics on the scales of autonomy.

Authors:  Effy Vayena
Journal:  J Med Ethics       Date:  2014-05-05       Impact factor: 2.903

5.  From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing.

Authors:  Jacqueline Savard; Chriselle Hickerton; Sylvia A Metcalfe; Clara Gaff; Anna Middleton; Ainsley J Newson
Journal:  AJOB Empir Bioeth       Date:  2019-12-30
  5 in total

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