Literature DB >> 29368234

Childhood Caregiving Roles, Perceptions of Benefits, and Future Caregiving Intentions Among Typically Developing Adult Siblings of Individuals with Autism Spectrum Disorder.

Amy K Nuttall1, Ben Coberly2, Sara J Diesel2.   

Abstract

Typically developing siblings (TDS) of individuals with Autism Spectrum Disorder (ASD) frequently serve as caregivers during childhood, known as parentification, and primary caregivers for siblings in adulthood. In order to evaluate mechanisms linking these roles, we surveyed emerging-adult TDS (N = 108) about childhood parentification roles caring for parents and siblings, current perceptions of benefits associated with ASD and with engaging in parentification, and intention to provide future caregiving. We hypothesized that parent-focused parentification would negatively impact caregiving intention via perception of decreased benefits whereas sibling-focused parentification would positively impact intention via perception of increased benefits. Results indicate that parent-focused parentification is common and associated with fewer perceived benefits of caregiving and less intention to provide future caregiving. Prevention implications are discussed.

Entities:  

Keywords:  Benefit-finding; Caregiving; Family obligation; Parentification; Parent–child relationships; Sibling relationships

Mesh:

Year:  2018        PMID: 29368234     DOI: 10.1007/s10803-018-3464-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  27 in total

1.  Emerging adulthood. A theory of development from the late teens through the twenties.

Authors:  J J Arnett
Journal:  Am Psychol       Date:  2000-05

2.  Bias in cross-sectional analyses of longitudinal mediation.

Authors:  Scott E Maxwell; David A Cole
Journal:  Psychol Methods       Date:  2007-03

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Authors:  K Scorgie; D Sobsey
Journal:  Ment Retard       Date:  2000-06

4.  Stress, coping and development: some issues and some questions.

Authors:  M Rutter
Journal:  J Child Psychol Psychiatry       Date:  1981-10       Impact factor: 8.982

5.  The health and social care needs of family carers supporting adults with autistic spectrum disorders.

Authors:  Dougal Julian Hare; Catherine Pratt; Mark Burton; Jo Bromley; Eric Emerson
Journal:  Autism       Date:  2004-12

6.  Adult siblings of individuals with Down syndrome versus with autism: findings from a large-scale US survey.

Authors:  R M Hodapp; R C Urbano
Journal:  J Intellect Disabil Res       Date:  2007-12

7.  Maternal history of parentification, maternal warm responsiveness, and children's externalizing behavior.

Authors:  Amy K Nuttall; Kristin Valentino; John G Borkowski
Journal:  J Fam Psychol       Date:  2012-08-13

8.  Maternal history of parentification and warm responsiveness: The mediating role of knowledge of infant development.

Authors:  Amy K Nuttall; Kristin Valentino; Lijuan Wang; Jennifer Burke Lefever; John G Borkowski
Journal:  J Fam Psychol       Date:  2015-08-03

Review 9.  Relieving parentified children's burdens in families with insecure attachment patterns.

Authors:  John Byng-Hall
Journal:  Fam Process       Date:  2002

10.  Siblings of individuals with autism or Down syndrome: effects on adult lives.

Authors:  G I Orsmond; M M Seltzer
Journal:  J Intellect Disabil Res       Date:  2007-09
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  2 in total

1.  The Scientific Study of Parents and Caregivers of Children with ASD: A Flourishing Field but Still Work to be Done.

Authors:  Anders Nordahl-Hansen; Logan Hart; Roald A Øien
Journal:  J Autism Dev Disord       Date:  2018-04

2.  Cultural Influences on Sibling Relationships, Roles, and Self-Concept in the Context of Autism: Perspectives of Latino/a/x and non-Latino/a/x Siblings.

Authors:  Kristin A Long; Lydia Chevalier; Andrea Chu; Kate M Guthrie; Barbara Kao; Wendy Plante; Debra Lobato
Journal:  J Autism Dev Disord       Date:  2021-09-24
  2 in total

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