Literature DB >> 28755035

Brief Report: What Happens When I Can No Longer Support My Autistic Relative? Worries About the Future for Family Members of Autistic Adults.

Renske Herrema1, Deborah Garland2, Malcolm Osborne3, Mark Freeston4,5, Emma Honey4,5, Jacqui Rodgers6,7.   

Abstract

Very little is known about autism and adulthood. Family members are often the primary support for autistic adults and frequently express concerns about what the future will hold and what support will be available for their relative. 120 family members of autistic adults completed an online survey exploring concerns about the future for their relative. The most endorsed concerns were "their needs won't be met" (77% worried weekly), "whether they will be happy" (72% worried weekly) and "who will care for them" (58% worried weekly). The results highlight the importance of implementing structured and timely support through collaboration with governmental policy, local commissioning and communication with charities to help prepare family members and their autistic relative for the future.

Entities:  

Keywords:  Adults; Autism; Family members; Future; Support; Worry

Mesh:

Year:  2017        PMID: 28755035     DOI: 10.1007/s10803-017-3254-6

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  16 in total

1.  Life course impacts of parenting a child with a disability.

Authors:  M M Seltzer; J S Greenberg; F J Floyd; Y Pettee; J Hong
Journal:  Am J Ment Retard       Date:  2001-05

2.  The contribution of diagnostic substitution to the growing administrative prevalence of autism in US special education.

Authors:  Paul T Shattuck
Journal:  Pediatrics       Date:  2006-04       Impact factor: 7.124

3.  Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics.

Authors:  J O Renty; Herbert Roeyers
Journal:  Autism       Date:  2006-09

4.  Parents' perceptions of postschool years for young adults with developmental disabilities.

Authors:  Margarita Bianco; Dorothy F Garrison-Wade; Romie Tobin; Jean P Lehmann
Journal:  Intellect Dev Disabil       Date:  2009-06

Review 5.  Into the unknown: aging with autism spectrum disorders.

Authors:  Elizabeth A Perkins; Karen A Berkman
Journal:  Am J Intellect Dev Disabil       Date:  2012-11

Review 6.  Adults with autism spectrum disorders.

Authors:  Patricia Howlin; Philippa Moss
Journal:  Can J Psychiatry       Date:  2012-05       Impact factor: 4.356

7.  The health and social care needs of family carers supporting adults with autistic spectrum disorders.

Authors:  Dougal Julian Hare; Catherine Pratt; Mark Burton; Jo Bromley; Eric Emerson
Journal:  Autism       Date:  2004-12

8.  Adult siblings of individuals with Down syndrome versus with autism: findings from a large-scale US survey.

Authors:  R M Hodapp; R C Urbano
Journal:  J Intellect Disabil Res       Date:  2007-12

9.  Gender and coping: the parents of children with high functioning autism.

Authors:  David E Gray
Journal:  Soc Sci Med       Date:  2003-02       Impact factor: 4.634

10.  The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning.

Authors:  Patricia A Rao; Deborah C Beidel
Journal:  Behav Modif       Date:  2009-05-12
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