Literature DB >> 15301191

FACE facts: why human genetics will always provoke bioethics.

Eric T Juengst1.   

Abstract

Some people dispute the relative importance of issues in genetics and biotechnology for the future of bioethics, either because they think the problems are time-limited or because they give priority to issue of human rights and social justice in health care. In fact, the special historical standing of genetic issue s in bioethics reflects four overlapping sources of moral sensitivity which ar inherent in the stories that genetic science tells and raise paradigmatic justice concerns: the implications of new genetic knowledge for people's understanding of their familial roles, ancestral origins, community memberships, and ethnic affiliations. Beneath worries over "genetic privacy," "the therapeutic gap," and the "post-human," this constellation of basic wellspring which both insures and justifies a central place for genetics on the agenda of bioethics.

Entities:  

Keywords:  Analytical Approach; Bioethics and Professional Ethics; Biomedical and Behavioral Research; Genetics and Reproduction

Mesh:

Year:  2004        PMID: 15301191     DOI: 10.1111/j.1748-720x.2004.tb00473.x

Source DB:  PubMed          Journal:  J Law Med Ethics        ISSN: 1073-1105            Impact factor:   1.718


  13 in total

Review 1.  Ethical goals of community consultation in research.

Authors:  Neal Dickert; Jeremy Sugarman
Journal:  Am J Public Health       Date:  2005-06-16       Impact factor: 9.308

Review 2.  The routinisation of genomics and genetics: implications for ethical practices.

Authors:  M W Foster; C D M Royal; R R Sharp
Journal:  J Med Ethics       Date:  2006-11       Impact factor: 2.903

3.  Unjustified discrimination: is the moratorium on the use of genetic test results by insurers a contradiction in terms?

Authors:  Ruth Wilkinson
Journal:  Health Care Anal       Date:  2010-09

4.  Genes, race and research ethics: who's minding the store?

Authors:  L M Hunt; M S Megyesi
Journal:  J Med Ethics       Date:  2008-06       Impact factor: 2.903

5.  Voluntary participation and informed consent to international genetic research.

Authors:  Patricia A Marshall; Clement A Adebamowo; Adebowale A Adeyemo; Temidayo O Ogundiran; Mirjana Vekich; Teri Strenski; Jie Zhou; T Elaine Prewitt; Richard S Cooper; Charles N Rotimi
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

6.  Participation in Cancer Pharmacogenomic Studies: A Study of 8456 Patients Registered to Clinical Trials in the Cancer and Leukemia Group B (Alliance).

Authors:  Lynn G Dressler; Allison M Deal; Kouros Owzar; Dorothy Watson; Katherine Donahue; Paula N Friedman; Mark J Ratain; Howard L McLeod
Journal:  J Natl Cancer Inst       Date:  2015-07-09       Impact factor: 13.506

7.  Genomic Essentialism: Its Provenance and Trajectory as an Anticipatory Ethical Concern.

Authors:  Maya Sabatello; Eric Juengst
Journal:  Hastings Cent Rep       Date:  2019-05       Impact factor: 2.683

Review 8.  Ethical and social implications of genetic testing for communication disorders.

Authors:  Kathleen S Arnos
Journal:  J Commun Disord       Date:  2008-03-25       Impact factor: 2.288

9.  After the revolution? Ethical and social challenges in 'personalized genomic medicine'

Authors:  Eric T Juengst; Richard A Settersten; Jennifer R Fishman; Michelle L McGowan
Journal:  Per Med       Date:  2012-06-01       Impact factor: 2.512

10.  "Am I my genes?": Questions of identity among individuals confronting genetic disease.

Authors:  Robert Klitzman
Journal:  Genet Med       Date:  2009-12       Impact factor: 8.822

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