Literature DB >> 20063201

Unjustified discrimination: is the moratorium on the use of genetic test results by insurers a contradiction in terms?

Ruth Wilkinson1.   

Abstract

This paper considers the legal position of genetic test results in insurance law in England and Wales. The strict position is that this information is material to the decision of the insurer to offer insurance cover and should be disclosed by insurance applicants. However, the British Government and the Association of British Insurers have agreed to a moratorium on the use of genetic test results in insurance, which will run until 2014. The moratorium prohibits unfavourable treatment of insurance clients on their basis of their genetics, unless it can be justified. In this paper, I consider the notion of genetic discrimination and ask whether it is possible to justify the concept in such a way that its existence should be accepted. The paper suggests that the insurance industry and the general public have different viewpoints on the concept of discrimination, and that this causes much of the disagreement over the issue of using genetic test results in insurance.

Mesh:

Year:  2010        PMID: 20063201     DOI: 10.1007/s10728-009-0137-9

Source DB:  PubMed          Journal:  Health Care Anal        ISSN: 1065-3058


  10 in total

1.  Human genetics. A rational view of insurance and genetic discrimination.

Authors:  William Nowlan
Journal:  Science       Date:  2002-07-12       Impact factor: 47.728

Review 2.  What makes genetic discrimination exceptional?

Authors:  Deborah Hellman
Journal:  Am J Law Med       Date:  2003

Review 3.  Genetic information and life insurance: a 'real' risk?

Authors:  Yann Joly; Bartha M Knoppers; Béatrice Godard
Journal:  Eur J Hum Genet       Date:  2003-08       Impact factor: 4.246

4.  Dissecting "discrimination".

Authors:  Lena Halldenius
Journal:  Camb Q Healthc Ethics       Date:  2005       Impact factor: 1.284

5.  Why disclosure of genetic tests for health insurance should be voluntary.

Authors:  Richard Smith; Nick Raithatha
Journal:  J Health Serv Res Policy       Date:  2006-07

6.  Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom.

Authors:  L Low; S King; T Wilkie
Journal:  BMJ       Date:  1998-12-12

7.  The social and economic origins of genetic determinism: a case history of the American Eugenics Movement, 1900-1940 and its lessons for today.

Authors:  G E Allen
Journal:  Genetica       Date:  1997       Impact factor: 1.082

8.  What would you do? Specialists' perspectives on cancer genetic testing, prophylactic surgery, and insurance discrimination.

Authors:  E T Matloff; H Shappell; K Brierley; B A Bernhardt; W McKinnon; B N Peshkin
Journal:  J Clin Oncol       Date:  2000-06       Impact factor: 44.544

9.  FACE facts: why human genetics will always provoke bioethics.

Authors:  Eric T Juengst
Journal:  J Law Med Ethics       Date:  2004       Impact factor: 1.718

10.  What is genetic discrimination, and when and how can it be prevented?

Authors:  M A Rothstein; M R Anderlik
Journal:  Genet Med       Date:  2001 Sep-Oct       Impact factor: 8.822

  10 in total
  2 in total

Review 1.  Global trends on fears and concerns of genetic discrimination: a systematic literature review.

Authors:  Annet Wauters; Ine Van Hoyweghen
Journal:  J Hum Genet       Date:  2016-01-07       Impact factor: 3.172

2.  A protocol for the identification and validation of novel genetic causes of kidney disease.

Authors:  Andrew Mallett; Chirag Patel; Barbara Maier; Julie McGaughran; Michael Gabbett; Minoru Takasato; Anne Cameron; Peter Trnka; Stephen I Alexander; Gopala Rangan; Michel C Tchan; Georgina Caruana; George John; Cathy Quinlan; Hugh J McCarthy; Valentine Hyland; Wendy E Hoy; Ernst Wolvetang; Ryan Taft; Cas Simons; Helen Healy; Melissa Little
Journal:  BMC Nephrol       Date:  2015-09-15       Impact factor: 2.388

  2 in total

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