Literature DB >> 11954587

The family covenant and genetic testing.

D J Doukas1, J W Berg.   

Abstract

The physician-patient relationship has changed over the last several decades, requiring a systematic reevaluation of the competing demands of patients, physicians, and families. In the era of genetic testing, using a model of patient care known as the family covenant may prove effective in accounting for these demands. The family covenant articulates the roles of the physician, patient, and the family prior to genetic testing, as the participants consensually define them. The initial argument defines the boundaries of autonomy and benefit for all participating family members. The physician may then serve as a facilitator in the relationship, working with all parties in resolving potential conflicts regarding genetic information. The family covenant promotes a fuller discussion of the competing ethical claims that may come to bear after genetic test results are received.

Entities:  

Keywords:  Analytical Approach; Genetics and Reproduction; Professional Patient Relationship

Mesh:

Year:  2001        PMID: 11954587     DOI: 10.1162/152651601750417784

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN: 1526-5161            Impact factor:   11.229


  20 in total

1.  Conceptualising the self in the genetic era.

Authors:  Heather Widdows
Journal:  Health Care Anal       Date:  2007-03

2.  Should families own genetic information? Yes.

Authors:  Anneke Lucassen
Journal:  BMJ       Date:  2007-07-07

3.  Different concepts and models of information for family-relevant genetic findings: comparison and ethical analysis.

Authors:  Christian Lenk; Debora Frommeld
Journal:  Med Health Care Philos       Date:  2015-08

4.  Genetic Privacy, Disease Prevention, and the Principle of Rescue.

Authors:  Madison K Kilbride
Journal:  Hastings Cent Rep       Date:  2018-05       Impact factor: 2.683

5.  The devil is in the details: confidentiality challenges in the age of genetics.

Authors:  Barbara J Daly; Ashley Rosko; Shulin Zhang; Hillard M Lazarus
Journal:  HEC Forum       Date:  2015-03

6.  Should healthcare providers have a duty to warn family members of individuals with an HNPCC-causing mutation? A survey of patients from the Ontario Familial Colon Cancer Registry.

Authors:  Kelly Kohut; Michael Manno; Steven Gallinger; Mary Jane Esplen
Journal:  J Med Genet       Date:  2007-06       Impact factor: 6.318

7.  Are patient rights to information and self-determination in diagnostic genetic testing upheld? A comparison of patients' and providers' perceptions.

Authors:  Tarja Nyrhinen; Marja Hietala; Pauli Puukka; Helena Leino-Kilpi
Journal:  J Genet Couns       Date:  2008-11-01       Impact factor: 2.537

8.  Support Seeking or Familial Obligation: An Investigation of Motives for Disclosing Genetic Test Results.

Authors:  Marisa Greenberg; Rachel A Smith
Journal:  Health Commun       Date:  2015-10-27

9.  Predictive genetic testing in urology: ethical and social issues.

Authors:  Maxwell J Mehlman
Journal:  World J Urol       Date:  2003-12-23       Impact factor: 4.226

Review 10.  Communicating genetic information in the family: the familial relationship as the forgotten factor.

Authors:  Roy Gilbar
Journal:  J Med Ethics       Date:  2007-07       Impact factor: 2.903

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