Literature DB >> 11824911

Is nondirectiveness possible within the context of antenatal screening and testing?

Clare Williams1, Priscilla Alderson, Bobbie Farsides.   

Abstract

Partly in order to dissociate itself from eugenics, genetic counselling values the principle of nondirectiveness as a key feature. Recent reports have upheld the importance of this approach, treating it unproblematically. However, doubts have been expressed about whether nondirective counselling is possible or indeed, desirable. Changes in organisational aspects of antenatal screening delivery in the UK have meant that genetic counselling is now being carried out by a variety of practitioners other than counsellors and specialists. These are often practitioners such as obstetricians and midwives who, in many other aspects of their work do not practise in a nondirective way. This paper explores some of the difficulties health practitioners encountered when attempting to work nondirectively. Reasons given by practitioners for not following this approach fell into categories, which in turn formed a continuum. Categories along the continuum ranged from acting directively at the request of women, through to deciding for women, either covertly or overtly, in their "best interests". It appears that for practitioners, the boundary between choice and coercion is not a clearcut one, and visualising it instead as a continuum may make it easier to see how slippage between choice and coercion can occur. The paper highlights the dilemmas which a variety of practitioners are dealing with in their daily work, in the hope of encouraging debate about these complex clinical and ethical issues.

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Mesh:

Year:  2002        PMID: 11824911     DOI: 10.1016/s0277-9536(01)00032-6

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  17 in total

1.  Exploring adoption with clients: the need for adoption education within the genetic counseling profession.

Authors:  Cassandra L Perry; Martha J Henry
Journal:  J Genet Couns       Date:  2010-03-16       Impact factor: 2.537

2.  Bioethical concepts in theory and practice: an exploratory study of prenatal screening in Iceland.

Authors:  Helga Gottfreðsdóttir; Vilhjálmur Arnason
Journal:  Med Health Care Philos       Date:  2011-02

3.  Ethical, legal, and social issues in health technology assessment for prenatal/preconceptional and newborn screening: a workshop report.

Authors:  B K Potter; D Avard; V Entwistle; C Kennedy; P Chakraborty; M McGuire; B J Wilson
Journal:  Public Health Genomics       Date:  2008-09-03       Impact factor: 2.000

Review 4.  The relationship between the genetic counseling profession and the disability community: a commentary.

Authors:  Anne C Madeo; Barbara B Biesecker; Campbell Brasington; Lori H Erby; Kathryn F Peters
Journal:  Am J Med Genet A       Date:  2011-05-12       Impact factor: 2.802

5.  [France and Great-Britain at the age of genomic medicine: new ethical challenges in reproductive medicine].

Authors:  Ruth Horn
Journal:  Med Sci (Paris)       Date:  2019-02-18       Impact factor: 0.818

6.  'And then you can decide'--antenatal foetal diagnosis decision making in South Africa.

Authors:  Tina-Marié Wessels; Tom Koole; Claire Penn
Journal:  Health Expect       Date:  2014-12-19       Impact factor: 3.377

7.  Is advice incompatible with autonomous informed choice? Women's perceptions of advice in the context of antenatal screening: a qualitative study.

Authors:  Shenaz Ahmed; Louise D Bryant; Zahra Tizro; Darren Shickle
Journal:  Health Expect       Date:  2012-04-19       Impact factor: 3.377

8.  Expecting motherhood? Stratifying reproduction in twenty-first century Scottish abortion practice.

Authors:  Siân M Beynon-Jones
Journal:  Sociology       Date:  2013-06-01

9.  Aiming towards "moral equilibrium": health care professionals' views on working within the morally contested field of antenatal screening.

Authors:  B Farsides; C Williams; P Alderson
Journal:  J Med Ethics       Date:  2004-10       Impact factor: 2.903

10.  Who knows what: An exploration of the infant feeding message environment and intracultural differences in Port-au-Prince, Haiti.

Authors:  Elizabeth L Fox; Gretel H Pelto; Kathleen M Rasmussen; Marie Guerda Debrosse; Vanessa A Rouzier; Jean William Pape; David L Pelletier
Journal:  Matern Child Nutr       Date:  2017-10-04       Impact factor: 3.092

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