Literature DB >> 11386429

"Only skin deep": health, resilience, and craniofacial care.

R P Strauss1.   

Abstract

The literature on psychological and social responses to cleft palate and craniofacial conditions focuses on the challenges and limitations posed by biological factors, cognitive status, and social stigma. In spite of the various challenges experienced by persons with these conditions, many individuals have rich and satisfying lives. This paper develops a theoretical perspective to elucidate factors that account for health, life success, and resiliency in persons with craniofacial conditions. Three steps are proposed to change how craniofacial conditions are envisioned by clinicians and researchers: (1) creating optimism and positivity around the time of birth and diagnosis, (2) asking children and parents new and different questions, and (3) launching a new craniofacial social science model for research built around understanding resilience and health.

Entities:  

Mesh:

Year:  2001        PMID: 11386429     DOI: 10.1597/1545-1569_2001_038_0226_osdhra_2.0.co_2

Source DB:  PubMed          Journal:  Cleft Palate Craniofac J        ISSN: 1055-6656


  11 in total

Review 1.  Oral health-related quality of life: what, why, how, and future implications.

Authors:  L Sischo; H L Broder
Journal:  J Dent Res       Date:  2011-03-21       Impact factor: 6.116

2.  Resiliency and socioemotional functioning in youth receiving surgery for orofacial anomalies.

Authors:  Ryan Richard Ruff; Lacey Sischo; Hillary Broder
Journal:  Community Dent Oral Epidemiol       Date:  2016-02-28       Impact factor: 3.383

3.  Oral health-related quality of life in youth receiving cleft-related surgery: self-report and proxy ratings.

Authors:  Hillary L Broder; Maureen Wilson-Genderson; Lacey Sischo
Journal:  Qual Life Res       Date:  2016-10-03       Impact factor: 4.147

4.  The art of coping with a craniofacial difference: helping others through "Positive Exposure".

Authors:  Johanna Loewenstein; Erica Sutton; Rick Guidotti; Kristin Shapiro; Karen Ball; Diane McLean; Barbara Biesecker
Journal:  Am J Med Genet A       Date:  2008-06-15       Impact factor: 2.802

5.  Examination of a theoretical model for oral health-related quality of life among youths with cleft.

Authors:  Hillary L Broder; Maureen Wilson-Genderson; Lacey Sischo
Journal:  Am J Public Health       Date:  2014-03-13       Impact factor: 9.308

6.  Coping With Cleft: A Conceptual Framework of Caregiver Responses to Nasoalveolar Molding.

Authors:  Lacey Sischo; Hillary L Broder; Ceib Phillips
Journal:  Cleft Palate Craniofac J       Date:  2014-09-16

7.  Regulatory variant in FZD6 gene contributes to nonsyndromic cleft lip and palate in an African-American family.

Authors:  Nevena Cvjetkovic; Lorena Maili; Katelyn S Weymouth; S Shahrukh Hashmi; John B Mulliken; Jacek Topczewski; Ariadne Letra; Qiuping Yuan; Susan H Blanton; Eric C Swindell; Jacqueline T Hecht
Journal:  Mol Genet Genomic Med       Date:  2015-05-07       Impact factor: 2.183

8.  Oral health-related quality of life in Swedish young adults.

Authors:  Gunvi Johansson; Anna-Lena Östberg
Journal:  Int J Qual Stud Health Well-being       Date:  2015-06-09

9.  Evaluation of psychometric properties and differential item functioning of 8-item Child Perceptions Questionnaires using item response theory.

Authors:  David T W Yau; May C M Wong; K F Lam; Colman McGrath
Journal:  BMC Public Health       Date:  2015-08-19       Impact factor: 3.295

10.  Assessment of the Effect of Oral Health on Quality of Life and Oral-Health Indicators among ESRD Patients in Southwest Florida: A Pilot Study.

Authors:  Payal Kahar; Carol Chapman; Jayanta Gupta
Journal:  Int J Dent       Date:  2019-09-23
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