Literature DB >> 27699557

Oral health-related quality of life in youth receiving cleft-related surgery: self-report and proxy ratings.

Hillary L Broder1, Maureen Wilson-Genderson2, Lacey Sischo3.   

Abstract

PURPOSE: This paper evaluated the impact of cleft-related surgery on the oral health-related quality of life (OHRQoL) of youth with cleft over time.
METHODS: Data were derived from a 5-year, multi-center, prospective, longitudinal study of 1196 youth with cleft lip and/or palate and their caregivers. Eligible youth were between 7.5 and 18.5 years old, spoke English or Spanish, and were non-syndromic. During each observational period, which included baseline, and 1- and 2-year post-baseline follow-up visits, youths and their caregivers completed the Child Oral Health Impact Profile, a validated measure of OHRQoL. Multilevel mixed-effects models were used to analyze the effects of receipt of craniofacial surgery on OHRQoL over time.
RESULTS: During the course of this study a total of 516 patients (43 %) received at least one surgery. Youth in the surgery recommendation group had lower self- (β = -2.18, p < 0.05) and proxy-rated (β = -2.92, p < 0.02) OHRQoL when compared to non-surgical self- and proxy-rated OHRQoL at baseline. Both surgical and non-surgical youth (β = 3.73, p < 0.001) and caregiver (β = 1.91, p < 0.05) ratings of OHRQoL improved over time. There was significant incremental improvement (time × surgery interaction) in self-reported OHRQoL for youth postsurgery (β = 1.04, p < 0.05), but this postsurgery increment was not seen in the caregiver proxy ratings.
CONCLUSIONS: Surgical intervention impacts OHRQoL among youth with cleft. Youth who were surgical candidates had lower baseline self- and caregiver-rated OHRQoL when compared to non-surgical youth. Youth who underwent cleft-related surgery had significant incremental improvements in self-rated but not caregiver (proxy)-rated OHRQoL after surgery.

Entities:  

Keywords:  Caregiver (proxy) ratings; Cleft lip/palate; Longitudinal; Oral health-related quality of life; Patient-reported outcomes

Mesh:

Year:  2016        PMID: 27699557      PMCID: PMC5336514          DOI: 10.1007/s11136-016-1420-5

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  47 in total

1.  Surgeon's and Caregivers' Appraisals of Primary Cleft Lip Treatment with and without Nasoalveolar Molding: A Prospective Multicenter Pilot Study.

Authors:  Hillary L Broder; Roberto L Flores; Sean Clouston; Richard E Kirschner; Judah S Garfinkle; Lacey Sischo; Ceib Phillips
Journal:  Plast Reconstr Surg       Date:  2016-03       Impact factor: 4.730

2.  Body-image and eating disturbances prospectively predict increases in depressive symptoms in adolescent girls: a growth curve analysis.

Authors:  E Stice; S K Bearman
Journal:  Dev Psychol       Date:  2001-09

3.  Parameters for evaluation and treatment of patients with cleft lip/palate or other craniofacial anomalies. American Cleft Palate-Craniofacial Association. March, 1993.

Authors: 
Journal:  Cleft Palate Craniofac J       Date:  1993-03

4.  Need of minimal important difference for oral health-related quality of life measures.

Authors:  Mohd Masood; Yaghma Masood; Roslan Saub; Jonathan Timothy Newton
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5.  Improvement in quality of life following surgery for adolescent idiopathic scoliosis.

Authors:  Andrew Howard; Sandra Donaldson; Douglas Hedden; Derek Stephens; Benjamin Alman; James Wright
Journal:  Spine (Phila Pa 1976)       Date:  2007-11-15       Impact factor: 3.468

6.  What do measures of 'oral health-related quality of life' measure?

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Journal:  Community Dent Oral Epidemiol       Date:  2007-12       Impact factor: 3.383

7.  Coping strategies and social support in the family impact of cleft lip and palate and parents' adjustment and psychological distress.

Authors:  Sarah R Baker; Jan Owens; Melanie Stern; Derrick Willmot
Journal:  Cleft Palate Craniofac J       Date:  2008-08-20

Review 8.  An overview of children's oral health-related quality of life assessment: from scale development to measuring outcomes.

Authors:  M W Genderson; L Sischo; K Markowitz; D Fine; H L Broder
Journal:  Caries Res       Date:  2013-10-07       Impact factor: 4.056

9.  Access to dental care in Alabama for children with special needs: parents' perspectives.

Authors:  Dania E Al Agili; Jeffrey Roseman; Mary Ann Pass; John B Thornton; L Scott Chavers
Journal:  J Am Dent Assoc       Date:  2004-04       Impact factor: 3.634

10.  Examination of a theoretical model for oral health-related quality of life among youths with cleft.

Authors:  Hillary L Broder; Maureen Wilson-Genderson; Lacey Sischo
Journal:  Am J Public Health       Date:  2014-03-13       Impact factor: 9.308

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  6 in total

Review 1.  Quality-of-Life in Children with Orofacial Clefts and Caregiver Well-being.

Authors:  L Sischo; M Wilson-Genderson; H L Broder
Journal:  J Dent Res       Date:  2017-08-16       Impact factor: 6.116

2.  Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries.

Authors:  Anne F Klassen; Karen Wy Wong Riff; Natasha M Longmire; Asteria Albert; Gregory C Allen; Mustafa Asim Aydin; Stephen B Baker; Stefan J Cano; Andrew J Chan; Douglas J Courtemanche; Marieke M Dreise; Jesse A Goldstein; Timothy E E Goodacre; Karen E Harman; Montserrat Munill; Aisling O Mahony; Mirta Palomares Aguilera; Petra Peterson; Andrea L Pusic; Rona Slator; Mia Stiernman; Elena Tsangaris; Sunil S Tholpady; Federico Vargas; Christopher R Forrest
Journal:  CMAJ       Date:  2018-04-16       Impact factor: 8.262

3.  Challenges in conducting multicentre, multidisciplinary, longitudinal studies in children with chronic conditions.

Authors:  Hillary L Broder; Canice E Crerand; Ryan R Ruff; Alexandre Peshansky; David B Sarwer; Lacey Sischo
Journal:  Community Dent Oral Epidemiol       Date:  2017-02-21       Impact factor: 3.383

4.  Quality of life, work ability, and facial deformities.

Authors:  Bruno Borges Reis; Liliane Lins; Laís Gomes Spínola; Fernando Martins Carvalho
Journal:  Rev Bras Med Trab       Date:  2018-09-01

5.  Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study.

Authors:  Lisa Friedlander; Rémy Choquet; Eva Galliani; Myriam de Chalendar; Claude Messiaen; Amélie Ruel; Marie-Paule Vazquez; Ariane Berdal; Corinne Alberti; Muriel De La Dure Molla
Journal:  Orphanet J Rare Dis       Date:  2017-05-19       Impact factor: 4.123

6.  Perception of quality of life by children and adolescents with cleft lip/palate after orthodontic and surgical treatment: gender and age analysis.

Authors:  Ana Ruiz-Guillén; Carlos Suso-Ribera; Martín Romero-Maroto; Carmen Gallardo; Cecilia Peñacoba
Journal:  Prog Orthod       Date:  2021-04-01       Impact factor: 2.750

  6 in total

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