Literature DB >> 10855348

Feasibility of quality-of-life research on the Internet: a follow-up study.

J R Treadwell1, R M Soetikno, L A Lenert.   

Abstract

OBJECTIVE: Assessment of the feasibility of conducting clinical research with patients using electronic mail and the World Wide Web.
DESIGN: We re-contacted 463 patients with ulcerative colitis (UC) and 154 benign prostatic hyperplasia (BPH) patients who had provided us with e-mail addresses as part of a Web-based study. In an electronic mail message, we informed patients of a web site with a new study and invited them to participate. We then examined the factors associated with patients' participation in the new study.
RESULTS: Completion rates were 28% for UC patients (single mailing) and 48% for BPH patients (up to four mailings in a two-month period). Some patients could not be contacted due to invalid e-mail addresses (23%). Those who completed the new study tended to be older, and less time had elapsed since their participation in the previous study. Furthermore, their health-related quality-of-life had significantly improved since the previous study.
CONCLUSION: It is possible to use direct electronic mail contact to conduct follow-up research with patients. Response rates appear to be related to the number of messages sent, age of the recipients, and time since the initial contact.

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Year:  1999        PMID: 10855348     DOI: 10.1023/a:1008963516334

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  5 in total

1.  The American Urological Association symptom index for benign prostatic hyperplasia. The Measurement Committee of the American Urological Association.

Authors:  M J Barry; F J Fowler; M P O'Leary; R C Bruskewitz; H L Holtgrewe; W K Mebust; A T Cockett
Journal:  J Urol       Date:  1992-11       Impact factor: 7.450

2.  Quality-of-life research on the Internet: feasibility and potential biases in patients with ulcerative colitis.

Authors:  R M Soetikno; R Mrad; V Pao; L A Lenert
Journal:  J Am Med Inform Assoc       Date:  1997 Nov-Dec       Impact factor: 4.497

3.  Studying ulcerative colitis over the World Wide Web.

Authors:  R M Soetikno; D Provenzale; L A Lenert
Journal:  Am J Gastroenterol       Date:  1997-03       Impact factor: 10.864

4.  Guidelines for the clinical use of electronic mail with patients. The AMIA Internet Working Group, Task Force on Guidelines for the Use of Clinic-Patient Electronic Mail.

Authors:  B Kane; D Z Sands
Journal:  J Am Med Inform Assoc       Date:  1998 Jan-Feb       Impact factor: 4.497

5.  The Short Inflammatory Bowel Disease Questionnaire: a quality of life instrument for community physicians managing inflammatory bowel disease. CCRPT Investigators. Canadian Crohn's Relapse Prevention Trial.

Authors:  E J Irvine; Q Zhou; A K Thompson
Journal:  Am J Gastroenterol       Date:  1996-08       Impact factor: 10.864

  5 in total
  7 in total

1.  Use of the internet to study the utility values of the public.

Authors:  Leslie A Lenert; Ann E Sturley
Journal:  Proc AMIA Symp       Date:  2002

2.  Feasibility of using a handheld electronic device for the collection of patient reported outcomes data from children.

Authors:  Lisa A Vinney; John D Grade; Nadine P Connor
Journal:  J Commun Disord       Date:  2011-10-20       Impact factor: 2.288

3.  E-mail decay rates among corresponding authors in MEDLINE. The ability to communicate with and request materials from authors is being eroded by the expiration of e-mail addresses.

Authors:  Jonathan D Wren; Joe E Grissom; Tyrrell Conway
Journal:  EMBO Rep       Date:  2006-02       Impact factor: 8.807

4.  Internet-based data inclusion in a population-based European collaborative follow-up study of inflammatory bowel disease patients: description of methods used and analysis of factors influencing response rates.

Authors:  Frank L Wolters; Gilbert van Zeijl; Jildou Sijbrandij; Frederik Wessels; Colm O'Morain; Charles Limonard; Maurice G Russel; Reinhold W Stockbrugger
Journal:  World J Gastroenterol       Date:  2005-12-07       Impact factor: 5.742

5.  Chronic idiopathic urticaria, psychological co-morbidity and posttraumatic stress: the impact of alexithymia and repression.

Authors:  Victoria Hunkin; Man Cheung Chung
Journal:  Psychiatr Q       Date:  2012-12

6.  Development, feasibility and compliance of a web-based system for very frequent QOL and symptom home self-assessment after hematopoietic stem cell transplantation.

Authors:  N Bush; G Donaldson; C Moinpour; M Haberman; D Milliken; V Markle; J Lauson
Journal:  Qual Life Res       Date:  2005-02       Impact factor: 4.147

7.  Alexithymia and posttraumatic stress disorder following asthma attack.

Authors:  Man Cheung Chung; Natalie Wall
Journal:  Psychiatr Q       Date:  2013-09
  7 in total

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