Literature DB >> 9877335

Revealed identity: a study of the process of genetic counselling.

D Armstrong1, S Michie, T Marteau.   

Abstract

This paper describes a qualitative study of the processes employed within a genetic counselling consultation. These processes, it is argued, can be seen to provide the patient with a genetic identity. But unlike the new identity conferred by the diagnosis of many chronic medical conditions a genetic identity is presented as an old one that is now revealed. This represents a reversal of the stigmatising process: instead of a spoiled identity replacing an actual one, the genetic consultation involves revealing an actual identity in the place of a previously presumed one. In this way, genetic counselling reconstructs identity in the past as well as in the future.

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Year:  1998        PMID: 9877335     DOI: 10.1016/s0277-9536(98)00241-x

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  17 in total

1.  Assessment of psychosocial outcomes in genetic counseling research: an overview of available measurement scales.

Authors:  Nadine A Kasparian; Claire E Wakefield; Bettina Meiser
Journal:  J Genet Couns       Date:  2007-08-13       Impact factor: 2.537

2.  Explaining Mendelian inheritance in genetic consultations: an IPR study of counselor and counselee experiences.

Authors:  Theodora Gale; Sara Pasalodos-Sanchez; Lauren Kerzin-Storrar; Georgina Hall; Rhona MacLeod
Journal:  J Genet Couns       Date:  2010-01-05       Impact factor: 2.537

Review 3.  Assessment of the content and process of genetic counseling: a critical review of empirical studies.

Authors:  Bettina Meiser; Jennifer Irle; Elizabeth Lobb; Kristine Barlow-Stewart
Journal:  J Genet Couns       Date:  2008-09-13       Impact factor: 2.537

4.  Extended family impact of genetic testing: the experiences of X-linked carrier grandmothers.

Authors:  Anna Lehmann; Beverley S Speight; Lauren Kerzin-Storrar
Journal:  J Genet Couns       Date:  2011-04-14       Impact factor: 2.537

5.  A Method for Analyzing Videotaped Genetic Counseling Sessions.

Authors:  A Liede; L Kerzin-Storrar; D Craufurd
Journal:  J Genet Couns       Date:  2000-04       Impact factor: 2.537

6.  The Client's Perspective of Genetic Counseling-A Grounded Theory Study.

Authors:  H Skirton
Journal:  J Genet Couns       Date:  2001-08       Impact factor: 2.537

7.  Differences in individual approaches: communication in the familial breast cancer consultation and the effect on patient outcomes.

Authors:  Elizabeth A Lobb; Phyllis Butow; Alexandra Barratt; Bettina Meiser; Katherine Tucker
Journal:  J Genet Couns       Date:  2005-02       Impact factor: 2.537

8.  Communication of genetic information by other health professionals: the role of the genetic counsellor in specialist clinics.

Authors:  Rosie O'Shea; Anne Marie Murphy; Eileen Treacy; Sally Ann Lynch; Kathryn Thirlaway; Debby Lambert
Journal:  J Genet Couns       Date:  2011-01-06       Impact factor: 2.537

9.  Religious and spiritual issues in medical genetics.

Authors:  Joseph B Fanning; Ellen Wright Clayton
Journal:  Am J Med Genet C Semin Med Genet       Date:  2009-02-15       Impact factor: 3.908

10.  The knowledge value-chain of genetic counseling for breast cancer: an empirical assessment of prediction and communication processes.

Authors:  Nabil Amara; Jolyane Blouin-Bougie; Jalila Jbilou; Norrin Halilem; Jacques Simard; Réjean Landry
Journal:  Fam Cancer       Date:  2016-01       Impact factor: 2.375

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