Literature DB >> 9579018

The experience and preparation of pediatric sibling bone marrow donors.

W I Shama1.   

Abstract

To assist sibling bone marrow donors with the psychological and emotional distress that they may experience as donors, a sibling bone marrow donor program was developed at The Hospital for Sick Children. These donors feel overwhelming responsibility for their siblings' survival, which can lead to psychological distress. The donors are engaged in age-appropriate medical play and are encouraged to discuss their feelings and concerns about their role. After the marrow harvest, donors receive a certificate, and either they or their parents evaluate the program. Thus far, 97.5% have rated the program very helpful. These evaluations suggest that the program has a very positive effect on the sibling donor's psychosocial health. Further studies of the program's long-term success are warranted.

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Year:  1998        PMID: 9579018     DOI: 10.1300/J010v27n01_06

Source DB:  PubMed          Journal:  Soc Work Health Care        ISSN: 0098-1389


  10 in total

1.  The need to promote all pediatric stem cell donors' understanding and interests.

Authors:  Lainie Friedman Ross; Armand H Matheny Antommaria
Journal:  Pediatrics       Date:  2014-05       Impact factor: 7.124

2.  Transplant center practices for psychosocial assessment and management of pediatric hematopoietic stem cell donors.

Authors:  Lori Wiener; Jennifer A Hoag; Wendy Pelletier; Nirali N Shah; Bronwen E Shaw; Michael A Pulsipher; Jessica Bruce; Peter Bader; Andre M Willasch; Arnaud Dalissier; Gregory Guilcher; Chloe Anthias; Dennis L Confer; Jennifer A Sees; Brent Logan; Galen E Switzer
Journal:  Bone Marrow Transplant       Date:  2019-04-10       Impact factor: 5.483

3.  Shared decision-making in pediatric allogeneic blood and marrow transplantation: what if there is no decision to make?

Authors:  Rebecca D Pentz; Wendy Pelletier; Melissa A Alderfer; Kristin Stegenga; Diane L Fairclough; Pamela S Hinds
Journal:  Oncologist       Date:  2012-05-21

Review 4.  Preimplantation HLA typing: having children to save our loved ones.

Authors:  K Devolder
Journal:  J Med Ethics       Date:  2005-10       Impact factor: 2.903

5.  Family Strategies to Support Siblings of Pediatric Hematopoietic Stem Cell Transplant Patients.

Authors:  Taylor E White; Kristopher A Hendershot; Margie D Dixon; Wendy Pelletier; Ann Haight; Kristin Stegenga; Melissa A Alderfer; Lydia Cox; Jeffrey M Switchenko; Pamela Hinds; Rebecca D Pentz
Journal:  Pediatrics       Date:  2017-02       Impact factor: 7.124

6.  Unmet needs of siblings of pediatric stem cell transplant recipients.

Authors:  Rebecca D Pentz; Melissa A Alderfer; Wendy Pelletier; Kristin Stegenga; Ann E Haight; Kristopher A Hendershot; Margie Dixon; Diane Fairclough; Pamela Hinds
Journal:  Pediatrics       Date:  2014-05       Impact factor: 7.124

Review 7.  Hematopoietic stem cell donation in children: a review of the sibling donor experience.

Authors:  Lori S Wiener; Emilie Steffen-Smith; Terry Fry; Alan S Wayne
Journal:  J Psychosoc Oncol       Date:  2007

8.  Children as hematopoietic stem cell donors.

Authors: 
Journal:  Pediatrics       Date:  2010-01-25       Impact factor: 7.124

9.  Pilot Study of Educational Interventions for Pediatric Hematopoietic Stem Cell Sibling Donors to Increase Knowledge of Donation and Transplantation Procedures.

Authors:  Lori Wiener; Richard W Childs; Nirali N Shah
Journal:  J Psychosoc Oncol Res Pract       Date:  2019-07-09

Review 10.  Donor Selection for Allogenic Hemopoietic Stem Cell Transplantation: Clinical and Ethical Considerations.

Authors:  Irene Riezzo; Natascha Pascale; Raffaele La Russa; Arcangelo Liso; Monica Salerno; Emanuela Turillazzi
Journal:  Stem Cells Int       Date:  2017-06-07       Impact factor: 5.443

  10 in total

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