Literature DB >> 9330503

Reconstructing reality: family strategies for managing childhood cancer.

L Clarke-Steffen1.   

Abstract

The purpose was to describe strategies used by the family in response to childhood cancer and to relate those strategies to two different conceptual frameworks. A longitudinal, prospective, grounded theory study was conducted with a sample of 32 members of seven families who had a child recently diagnosed with cancer. All family members 5 years and older participated in three semistructured home interviews. Constant comparative analysis was used. The core process in which families engaged was reconstructing reality, using strategies of managing the flow of information, reorganizing roles, evaluating and shifting priorities, changing the future orientation, assigning meaning to the illness, and managing the therapeutic regimen. These strategies support a Family Management Style framework for viewing family management of pediatric cancer.

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Year:  1997        PMID: 9330503     DOI: 10.1016/S0882-5963(97)80045-0

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  13 in total

Review 1.  Family adjustment to childhood cancer: a systematic review.

Authors:  Kristin A Long; Anna L Marsland
Journal:  Clin Child Fam Psychol Rev       Date:  2011-03

2.  Test of a conceptual model of uncertainty in children and adolescents with cancer.

Authors:  Janet L Stewart; Merle H Mishel; Mary R Lynn; Lauren Terhorst
Journal:  Res Nurs Health       Date:  2010-06       Impact factor: 2.228

3.  Exploring family management of childhood brain tumor survivors.

Authors:  Janet A Deatrick; Erin K Mullaney; Kim Mooney-Doyle
Journal:  J Pediatr Oncol Nurs       Date:  2009 Sep-Oct       Impact factor: 1.636

4.  Assessment of the psychometric properties of the Family Management Measure.

Authors:  Kathleen Knafl; Janet A Deatrick; Agatha Gallo; Jane Dixon; Margaret Grey; George Knafl; Jean O'Malley
Journal:  J Pediatr Psychol       Date:  2009-05-18

5.  Patterns of family management of childhood chronic conditions and their relationship to child and family functioning.

Authors:  Kathleen A Knafl; Janet A Deatrick; George J Knafl; Agatha M Gallo; Margaret Grey; Jane Dixon
Journal:  J Pediatr Nurs       Date:  2013-04-19       Impact factor: 2.145

6.  Psychosocial issues in families affected by maple syrup urine disease.

Authors:  Wendy Packman; Shelly L Henderson; Indira Mehta; Rama Ronen; Dean Danner; Beth Chesterman; Seymour Packman
Journal:  J Genet Couns       Date:  2007-08-17       Impact factor: 2.537

7.  Development of the "Day 100 Talk": Addressing existing communication gaps during the early cancer treatment period in childhood cancer.

Authors:  Angela M Feraco; Sarah R Brand; Joshua Gagne; Amy Sullivan; Susan D Block; Joanne Wolfe
Journal:  Pediatr Blood Cancer       Date:  2018-01-31       Impact factor: 3.167

Review 8.  Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling.

Authors:  Angela M Feraco; Sarah R Brand; Jennifer W Mack; Jennifer C Kesselheim; Susan D Block; Joanne Wolfe
Journal:  Pediatr Blood Cancer       Date:  2016-01-29       Impact factor: 3.167

Review 9.  Are there young carers in oncology? A systematic review.

Authors:  Pauline Justin; Kristopher Lamore; Géraldine Dorard; Aurélie Untas
Journal:  Psychooncology       Date:  2021-05-16       Impact factor: 3.955

10.  Young patients', parents', and survivors' communication preferences in paediatric oncology: results of online focus groups.

Authors:  Marieke Zwaanswijk; Kiek Tates; Sandra van Dulmen; Peter M Hoogerbrugge; Willem A Kamps; Jozien M Bensing
Journal:  BMC Pediatr       Date:  2007-11-09       Impact factor: 2.125

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