Literature DB >> 8882220

Quality of life assessment in children: a review of conceptual and methodological issues in multidimensional health status measures.

D K Pal1.   

Abstract

STUDY
OBJECTIVE: To clarify concepts and methodological problems in existing multidimensional health status measures for children.
DESIGN: Thematic review of instruments found by computerised and manual searches, 1979-95.
SUBJECTS: Nine health status instruments. MAIN
RESULTS: Many instruments did not satisfy criteria of being child centered or family focussed; few had sufficient psychometric properties for research or clinical use; underlying conceptual assumptions were rarely explicit.
CONCLUSIONS: Quality of life measures should be viewed cautiously. Interdisciplinary discussion is required, as well as discussion with children and parents, to establish constructs that are truly useful.

Entities:  

Mesh:

Year:  1996        PMID: 8882220      PMCID: PMC1060307          DOI: 10.1136/jech.50.4.391

Source DB:  PubMed          Journal:  J Epidemiol Community Health        ISSN: 0143-005X            Impact factor:   3.710


  24 in total

1.  Application of multi-attribute utility theory to measure social preferences for health states.

Authors:  G W Torrance; M H Boyle; S P Horwood
Journal:  Oper Res       Date:  1982 Nov-Dec       Impact factor: 3.310

2.  Extended follow-up in 212 long-term allogeneic bone marrow transplant survivors. Issues of quality of life.

Authors:  G M Schmidt; J C Niland; S J Forman; P P Fonbuena; A C Dagis; M M Grant; B R Ferrell; T A Barr; B A Stallbaum; N J Chao
Journal:  Transplantation       Date:  1993-03       Impact factor: 4.939

3.  Adolescent health status measurement: development of the Child Health and Illness Profile.

Authors:  B Starfield; M Bergner; M Ensminger; A Riley; S Ryan; B Green; P McGauhey; A Skinner; S Kim
Journal:  Pediatrics       Date:  1993-02       Impact factor: 7.124

4.  Tacit models of disability underlying health status instruments.

Authors:  S Ziebland; R Fitzpatrick; C Jenkinson
Journal:  Soc Sci Med       Date:  1993-07       Impact factor: 4.634

5.  Childhood epilepsy and asthma: comparison of quality of life.

Authors:  J K Austin; M S Smith; M W Risinger; A M McNelis
Journal:  Epilepsia       Date:  1994 May-Jun       Impact factor: 5.864

6.  Values, Preferences, and decisions in the care of children with developmental disabilities.

Authors:  D Cadman; C Goldsmith; P Bashim
Journal:  J Dev Behav Pediatr       Date:  1984-04       Impact factor: 2.225

7.  Normative data on revised Conners Parent and Teacher Rating Scales.

Authors:  C H Goyette; C K Conners; R F Ulrich
Journal:  J Abnorm Child Psychol       Date:  1978-06

8.  A noncategorical approach to chronic childhood illness.

Authors:  R E Stein; D J Jessop
Journal:  Public Health Rep       Date:  1982 Jul-Aug       Impact factor: 2.792

9.  Measuring components of children's health status.

Authors:  M Eisen; J E Ware; C A Donald; R H Brook
Journal:  Med Care       Date:  1979-09       Impact factor: 2.983

10.  Comparison of the health-related quality of life of extremely low birth weight children and a reference group of children at age eight years.

Authors:  S Saigal; D Feeny; W Furlong; P Rosenbaum; E Burrows; G Torrance
Journal:  J Pediatr       Date:  1994-09       Impact factor: 4.406

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  31 in total

1.  Responsiveness of the PedsQL to pain-related changes in health-related quality of life in pediatric sickle cell disease.

Authors:  Alyssa M Schlenz; Jeffrey Schatz; Catherine B McClellan; Carla W Roberts
Journal:  J Pediatr Psychol       Date:  2012-03-30

Review 2.  Evaluation of the methodological quality of systematic reviews of health status measurement instruments.

Authors:  Lidwine B Mokkink; Caroline B Terwee; Paul W Stratford; Jordi Alonso; Donald L Patrick; Ingrid Riphagen; Dirk L Knol; Lex M Bouter; Henrica C W de Vet
Journal:  Qual Life Res       Date:  2009-02-24       Impact factor: 4.147

3.  Reliability and validity of the short form of the child health questionnaire for parents (CHQ-PF28) in large random school based and general population samples.

Authors:  Hein Raat; Anita M Botterweck; Jeanne M Landgraf; W Christina Hoogeveen; Marie-Louise Essink-Bot
Journal:  J Epidemiol Community Health       Date:  2005-01       Impact factor: 3.710

4.  A qualitative analysis of a dyad approach to health-related quality of life measurement in children with asthma.

Authors:  Wendy J Ungar; Cara Mirabelli; Martha Cousins; Katherine M Boydell
Journal:  Soc Sci Med       Date:  2006-08-02       Impact factor: 4.634

5.  Assessing health status in Manitoba children: acute and chronic conditions.

Authors:  Anita L Kozyrskyj; G Elske Hildes-Ripstein
Journal:  Can J Public Health       Date:  2002 Nov-Dec

Review 6.  Measuring quality of life in paediatric patients.

Authors:  M A Connolly; J A Johnson
Journal:  Pharmacoeconomics       Date:  1999-12       Impact factor: 4.981

7.  Validation of the German version of the Pediatric Quality of Life Inventory (PedsQL) in childhood cancer patients off treatment and children with epilepsy.

Authors:  R Felder-Puig; E Frey; K Proksch; J W Varni; H Gadner; R Topf
Journal:  Qual Life Res       Date:  2004-02       Impact factor: 4.147

8.  Effects of a hospital based Wellness and Exercise program on quality of life of children with severe burns.

Authors:  Marta Rosenberg; Mario M Celis; Walter Meyer; Lisa Tropez-Arceneaux; Serina J McEntire; Helen Fuchs; Lisa Richardson; Charles Holzer; David N Herndon; Oscar E Suman
Journal:  Burns       Date:  2012-09-15       Impact factor: 2.744

9.  Parental report of health-related quality of life in children with sickle cell disease.

Authors:  Tonya Mizell Palermo; Lisa Schwartz; Dennis Drotar; Kathryn McGowan
Journal:  J Behav Med       Date:  2002-06

Review 10.  "Not just little adults": qualitative methods to support the development of pediatric patient-reported outcomes.

Authors:  Rob Arbuckle; Linda Abetz-Webb
Journal:  Patient       Date:  2013       Impact factor: 3.883

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