Literature DB >> 8839575

Participatory research in a Native Hawaiian community. The Wai'anae Cancer Research Project.

D S Matsunaga1, R Enos, C C Gotay, R O Banner, H DeCambra, O W Hammond, N Hedlund, E K Ilaban, B F Issell, J A Tsark.   

Abstract

BACKGROUND: Community participation was a key component of a cancer control research project in a Native Hawaiian community. This project tested the effectiveness of a culturally appropriate intervention as a means of increasing breast and cervical cancer screening practices among Native Hawaiian women on the Wai'anae Coast of the island of O'ahu.
METHODS: The Wai'anae Cancer Research project was community driven, with Native Hawaiian community representatives involved in all phases of the project, from grant proposal development to data interpretation. A community health center administered the grant award from the National Cancer Institute. The policymaking steering committee included community representatives, health professionals, and researchers to balance community and scientific quality standards. A factor in the project's success was continuous involvement over 7 years by a core of community representatives and professional staff.
RESULTS: More than 500 women participated in the intervention, and outcome measures indicated that there was a community wide impact on cancer-related knowledge, attitudes, and behaviors. Important contributions of the project also included direct economic benefits, improvements in health services and systems, increased research capabilities, and dissemination of findings to other communities and researchers.
CONCLUSION: Community participation in all phases of the research was essential in generating community acceptance and resulted in an innovative and effective intervention. This participatory research project has left the community richer in knowledge, skills, experience, confidence, and resources. These qualities provide a strong foundation for building future programs and research.

Entities:  

Mesh:

Year:  1996        PMID: 8839575

Source DB:  PubMed          Journal:  Cancer        ISSN: 0008-543X            Impact factor:   6.860


  25 in total

Review 1.  Participatory research maximises community and lay involvement. North American Primary Care Research Group.

Authors:  A C Macaulay; L E Commanda; W L Freeman; N Gibson; M L McCabe; C M Robbins; P L Twohig
Journal:  BMJ       Date:  1999-09-18

Review 2.  Practicing participatory research in American Indian communities.

Authors:  S M Davis; R Reid
Journal:  Am J Clin Nutr       Date:  1999-04       Impact factor: 7.045

3.  Pap screening clinics with native women in Skidegate, Haida Gwaii. Need for innovation.

Authors:  B Calam; L Norgrove; D Brown; M A Wilson
Journal:  Can Fam Physician       Date:  1999-02       Impact factor: 3.275

4.  An innovative path to improving cancer care in Indian country.

Authors:  L Burhansstipanov; A Gilbert; K LaMarca; L U Krebs
Journal:  Public Health Rep       Date:  2001 Sep-Oct       Impact factor: 2.792

5.  Using a participatory four-step protocol to develop culturally targeted cancer education brochures.

Authors:  Manny Kulukulualani; Kathryn L Braun; JoAnn U Tsark
Journal:  Health Promot Pract       Date:  2008-03-19

6.  Perceptions of health equity and subjective social status among baccalaureate nursing students engaged in service-learning activities in Hawai'i.

Authors:  Lisa M Thompson; Sarah Jarvis; Patricia Sparacino; Devina Kuo; Stephanie Genz
Journal:  Hawaii J Med Public Health       Date:  2013-10

7.  Promoting breast cancer screening among Chamorro women in Southern California.

Authors:  Sora Park Tanjasiri; Lola Sablan-Santos; Vincent Merrill; Lourdes Flores Quitugua; Darrah Goo Kuratani
Journal:  J Cancer Educ       Date:  2008 Jan-Mar       Impact factor: 2.037

8.  Participatory research with native community of Kahnawake creates innovative Code of Research Ethics.

Authors:  A C Macaulay; T Delormier; A M McComber; E J Cross; L P Potvin; G Paradis; R L Kirby; C Saad-Haddad; S Desrosiers
Journal:  Can J Public Health       Date:  1998 Mar-Apr

9.  Advancing Community-Based Participatory Research to Address Health Disparities in Hawai'i: Perspectives from Academic Researchers.

Authors:  Katherine I Yang; Jane J Chung-Do; Loren Fujitani; Alyssa Foster; Shannon Mark; Yuito Okada; Zeyana Saad-Jube; Fadi Youkhana; Kathryn L Braun; Kevin Cassel; Susana Helm; Lana Sue Ka'opua; Peter J Mataira; Christy Nishita; Scott K Okamoto; Claire Townsend Ing; Kristine Qureshi; Karen Umemoto
Journal:  Hawaii J Med Public Health       Date:  2019-03

10.  Online evaluation programs: benefits and limitations.

Authors:  Linda Burhansstipanov; Richard E Clark; Shinobu Watanabe-Galloway; Daniel G Petereit; Valerie Eschiti; Linda U Krebs; Noel L Pingatore
Journal:  J Cancer Educ       Date:  2012-04       Impact factor: 2.037

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