Literature DB >> 9583251

Participatory research with native community of Kahnawake creates innovative Code of Research Ethics.

A C Macaulay1, T Delormier, A M McComber, E J Cross, L P Potvin, G Paradis, R L Kirby, C Saad-Haddad, S Desrosiers.   

Abstract

Participatory research requires ethical guidelines to incorporate the needs of the partners, i.e., the researchers and the community. This paper describes the background, development and implementation of an innovative Code of Research Ethics developed for a participatory research project with a Native community in Canada. The document ensures that responsibility and control will be shared by both researchers and community throughout the project including joint publication of the results. It defines community control of data, means of resolving dissension at time of publication, incorporation of new researchers and the differences between community-based and academic researchers.

Keywords:  Biomedical and Behavioral Research

Mesh:

Year:  1998        PMID: 9583251      PMCID: PMC6990238     

Source DB:  PubMed          Journal:  Can J Public Health        ISSN: 0008-4263


  12 in total

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