Literature DB >> 8479830

Multiculturalism, chronic illness, and disability.

N E Groce1, I K Zola.   

Abstract

To gain at least an initial understanding of the underlying beliefs and attitudes in a cross-cultural situation, we believe that the three key points discussed in this paper should prove a significant point of departure: 1. Traditional beliefs about the cause of chronic illness or disability will play a significant role in determining family and community attitudes toward individuals with a disability and will influence when, how, and why medical input is sought. 2. The expectation of survival on the part of parents and community will have an effect on the amount of time, energy, and cooperation shown by family and community for the individual who has an impairment. 3. The expectations by family and community for the social role(s) and individual with a chronic illness or disability will hold will affect a broad range of issues, including education, social integration, and independence. Furthermore, although chronic illness and disability are often considered as issues distinct from the full range of problems encountered in society for immigrant and minority groups, in fact, these issues could not be more closely tied. The frequently discussed concerns within the ethnic and minority community about the role of the family, integration and acculturation, social articulation with the greater American society, stress, cross-cultural misunderstanding, and outright prejudice can all compound the problems encountered for the chronically ill or disabled individual in a multicultural society.

Entities:  

Mesh:

Year:  1993        PMID: 8479830

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  8 in total

Review 1.  The problem of (non-)compliance: is it patients or patience?

Authors:  G R Scofield
Journal:  HEC Forum       Date:  1995 Mar-May

Review 2.  Meeting the needs of minority ethnic communities.

Authors:  E Webb
Journal:  Arch Dis Child       Date:  1996-03       Impact factor: 3.791

Review 3.  Disease avoidance as a functional basis for stigmatization.

Authors:  Megan Oaten; Richard J Stevenson; Trevor I Case
Journal:  Philos Trans R Soc Lond B Biol Sci       Date:  2011-12-12       Impact factor: 6.237

4.  Experiences of parents with a child with Down syndrome in Pakistan and their views on termination of pregnancy.

Authors:  Shenaz Ahmed; Louise D Bryant; Mushtaq Ahmed; Hussain Jafri; Yasmin Raashid
Journal:  J Community Genet       Date:  2012-10-23

5.  Behavioral problems of adolescents with chronic physical illness: a comparison of parent-report and self-report measures.

Authors:  M Stawski; J G Auerbach; M Barasch; Y Lerner; R Zimin; M S Miller
Journal:  Eur Child Adolesc Psychiatry       Date:  1995-01       Impact factor: 4.785

6.  Parental Knoweldge, Attitude, and Perception about Epilepsy and Sociocultural Barriers to Treatment.

Authors:  Akanksha Rani; Priya Treesa Thomas
Journal:  J Epilepsy Res       Date:  2019-06-30

7.  Viewpoints from families for improving transition from NICU-to-home for infants with medical complexity at a safety net hospital: a qualitative study.

Authors:  Ashwini Lakshmanan; Katrina Kubicek; Roberta Williams; Marisela Robles; Douglas L Vanderbilt; Christine B Mirzaian; Philippe S Friedlich; Michele Kipke
Journal:  BMC Pediatr       Date:  2019-07-05       Impact factor: 2.125

8.  A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers.

Authors:  Paul B Perrin; Ivan Panyavin; Alejandra Morlett Paredes; Adriana Aguayo; Miguel Angel Macias; Brenda Rabago; Sandra J Fulton Picot; Juan Carlos Arango-Lasprilla
Journal:  Behav Neurol       Date:  2015-10-11       Impact factor: 3.342

  8 in total

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