Literature DB >> 7689067

Determinants of parental satisfaction with disclosure of disability.

P Sloper1, S Turner.   

Abstract

Parental satisfaction with the process of disclosure of disability was investigated in interviews with 103 parents of children with severe physical disability. Only 37 per cent of parents were satisfied with disclosure. Parents were more likely to be satisfied if they felt that the professional carrying out the disclosure had a sympathetic, understanding and approachable manner, and was direct and communicated well; if they had been given sufficient information and opportunities to ask questions; and if they were from a manual social-class background. Factors in the procedure of the disclosure, such as the timing, were not significantly related to satisfaction. These results demonstrate the importance of the parent-professional interaction and point towards an increased emphasis on communication skills in medical training.

Entities:  

Mesh:

Year:  1993        PMID: 7689067     DOI: 10.1111/j.1469-8749.1993.tb11733.x

Source DB:  PubMed          Journal:  Dev Med Child Neurol        ISSN: 0012-1622            Impact factor:   5.449


  10 in total

1.  Parents' perceptions of disclosure of the diagnosis of cerebral palsy.

Authors:  G Baird; H McConachie; D Scrutton
Journal:  Arch Dis Child       Date:  2000-12       Impact factor: 3.791

2.  Disclosure of Duchenne muscular dystrophy after newborn screening.

Authors:  E Parsons; D Bradley; A Clarke
Journal:  Arch Dis Child       Date:  1996-06       Impact factor: 3.791

Review 3.  Telling parents their child has severe congenital anomalies.

Authors:  S Ryan
Journal:  Postgrad Med J       Date:  1995-09       Impact factor: 2.401

4.  Parental needs among children with birth defects: defining a parent-to-parent support network.

Authors:  A M Mathiesen; C J Frost; K M Dent; M L Feldkamp
Journal:  J Genet Couns       Date:  2012-07-24       Impact factor: 2.537

5.  Needs of disabled children and their families.

Authors:  J Milner; C Bungay; D Jellinek; D M Hall
Journal:  Arch Dis Child       Date:  1996-11       Impact factor: 3.791

6.  A rational approach to the child with mental retardation for the paediatrician.

Authors:  Jean-François Lemay; Anthony R Herbert; Deborah M Dewey; A Micheil Innes
Journal:  Paediatr Child Health       Date:  2003-07       Impact factor: 2.253

7.  Sugar-coaters and straight talkers: communicating about developmental delays in primary care.

Authors:  Laura Sices; Lucia Egbert; Mary Beth Mercer
Journal:  Pediatrics       Date:  2009-09-14       Impact factor: 7.124

8.  22q11.2 deletion syndrome: attitudes towards disclosing the risk of psychiatric illness.

Authors:  Nicole Martin; Marina Mikhaelian; Cheryl Cytrynbaum; Cheryl Shuman; David A Chitayat; Rosanna Weksberg; Anne S Bassett
Journal:  J Genet Couns       Date:  2012-07-26       Impact factor: 2.537

9.  Day One Talk: parent preferences when learning that their child has cancer.

Authors:  Rachel M Kessel; Michael Roth; Karen Moody; Adam Levy
Journal:  Support Care Cancer       Date:  2013-06-13       Impact factor: 3.603

10.  "It Should Have Been Given Sooner, and We Should Not Have to Fight for It": A Mixed-Methods Study of the Experience of Diagnosis and Early Management of Cerebral Palsy.

Authors:  Sîan A Williams; Woroud Alzaher; Anna Mackey; Amy Hogan; Malcolm Battin; Alexandra Sorhage; N Susan Stott
Journal:  J Clin Med       Date:  2021-03-31       Impact factor: 4.241

  10 in total

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