| Literature DB >> 36060614 |
Erica Barbazza1, Damir Ivanković1, Karapet Davtyan2, Mircha Poldrugovac1, Zhamin Yelgezekova1, Claire Willmington3, Bernardo Meza-Torres4,5, Véronique L L C Bos1, Óscar Brito Fernandes1,6, Alexandru Rotar1, Sabina Nuti3, Milena Vainieri3, Fabrizio Carinci7,8, Natasha Azzopardi-Muscat2, Oliver Groene9, David Novillo-Ortiz2, Niek Klazinga1, Dionne Kringos1.
Abstract
Background: Governments across the World Health Organization (WHO) European Region have prioritised dashboards for reporting COVID-19 data. The ubiquitous use of dashboards for public reporting is a novel phenomenon. Objective: This study explores the development of COVID-19 dashboards during the first year of the pandemic and identifies common barriers, enablers and lessons from the experiences of teams responsible for their development.Entities:
Keywords: COVID-19; WHO European Region; dashboard; health information management; public health surveillance; public reporting of healthcare data
Year: 2022 PMID: 36060614 PMCID: PMC9434660 DOI: 10.1177/20552076221121154
Source DB: PubMed Journal: Digit Health ISSN: 2055-2076
Overview of characteristics and features explored.
| Focus by research question | Characteristics and features explored |
|---|---|
| Development process | Responsible organisations, teams and launch |
| Aims, users and content | |
| Data sources and breakdowns (geographic, population) | |
| Data display, interpretation and visualisation | |
| Future plans | |
| Reflections on process | Barriers |
| Enablers | |
| Lessons learned |
Figure 1.Geographic representation of participating COVID-19 dashboard teams.
Summary of themes and illustrative quotes describing barriers.
| Theme | Subtheme | Barrier | Illustrative quote |
|---|---|---|---|
| Pre-pandemic context | Data infrastructure | Lack of data infrastructure. Outdated, slow processes of data collection and processing. Data ownership and custodianship challenges. Highly decentralised data platforms. | ‘The epidemiological surveillance systems were not effectively prepared for a pandemic of this scale, either in the volume of information analysed or in the usability of the information systems themselves’. (D9) |
| Privacy regulations | Undefined rules and/or lack of practical experience in publishing health data and in conditions for ensuring anonymity. | ||
| Pandemic context | Urgency | Lack of time to analyse user behaviour, manage feedback, improve visualisations and engage across stakeholders. | ‘There was quite a lot of shuffling about who was responsible – which institution should be responsible for announcing and disseminating aggregated data’. (D4) |
| Leadership | Political instability and influence on dashboard's content. | ||
| Mandate | Lack of common understanding of the purpose of a dashboard, with different interpretations of its use and target users. Unclear responsibilities. | ||
| People and processes | Human resources | Huge workload. Lack of human resources and competencies in working with dashboards. Regular work tasks in parallel. | ‘At the resource level, we are quite limited. It's complicated to find the right people with the required expertise. It's difficult to recruit, and the team has changed quite a lot over time’. (D17) |
| Partnerships | Lack of time and possibilities to engage users and other key stakeholders through ‘traditional’ processes of engagement. | ||
| Processes | Slow and convoluted public procurement processes. Underprepared or nonexistent plans for pandemic situations. Issues with prioritising resources. | ||
| Software | Availability | Prohibitive pricing on licensing fees in the immediate and longer term. Slow speed of data processing and publishing. | ‘We needed a Venn diagram. Like really needed it.… But we just couldn’t use it because ArcGIS doesn’t have one. They only have bar charts, maps and pie charts’. (D4) |
| Functionality | Software dictating the look and feel of the dashboard. Limitations in visualisation options. | ||
| Data | Availability and quality | Data unavailable and/or not sufficient in timeliness, completeness, structure, consistency or granularity across geographies. Issues to link data from various sources. Labour-intensive, error-prone data processing. Outdated population registration data. | ‘One primary point that was a large problem was the exact place where someone lives, which is taken from the national census. And they didn’t want to share it with us because we were not legally able to obtain them.… We have information about [approximately half the population]. The rest of them, we’re not sure where they live now’. (D27) |
| Data culture | Data siloed by different data custodians. Different data standards among sources. Lack of open data culture. | ||
| Automation | Challenges in setting update times and cut-offs across data sources and custodians. Demand for real-time data compromises quality. | ||
| Users | Target groups | Lack of defined target audience. Broad definition of the user group (e.g. general public, regional public health authorities, national policymakers, media). | ‘The biggest thing was the reactions in the media. Kind of, a lot of negativity online about everything you do, and not enough positivity’. (D2) |
| Information needs, user experience and expectations | Limited or no knowledge of users” information needs. No systematic way of dealing with user feedback. Oversimplifying content, thereby posing the risk of misinterpretation. Users with high expectations and low data literacy. Negative reactions to modifications to content and visualisations. |
Summary of themes and illustrative quotes describing enablers.
|
|
|
|
|
|---|---|---|---|
| Pre-pandemic context | Data infrastructure | Electronic, centralised data flows with automated data management. Ability to link data sources. | ‘The existing infrastructure, the central health information system and so on, those were definitely enabling factors. If we hadn’t had them, or integration with the labs, with the hospitals, we would have been in the Stone Age’. (D24) |
| Privacy regulations | Supportive privacy and security legislation and practice. Enabling state-of-emergency conditions. | ||
| Pandemic context | Urgency | End-goal orientation fostering committed and focussed efforts. Not being a perfectionist ‘Once-in-a-lifetime experience’ as a motivator. | ‘chain of command was clear. That was an enabler, for sure. We all knew [the dashboard] was the official communication channel. It was, practically considered, an extended arm of the government’. (D15) |
| Leadership | Political and upper-management support and endorsement in providing access to sufficient resources. High-level directives. | ||
| Mandate | Clear purpose and mandate. High degree of autonomy. Easy access to data. Skills needed in-house and/or potential to outsource for added capacity. | ||
| People and processes | Human resources | Committed, competent, multidisciplinary and proactive team. Prior experience with public reporting, dashboards and visualisations. | ‘This then also led, with an agile development, to changing relationships between people, who became much less structured and hierarchical and became much more intellectual and free’. (D12) |
| Partnerships | Improvements to intra- and inter-organisational communication and collaboration. Need-based stakeholder collaboration and engagement, including communication specialists and decision makers. | ||
| Processes | Flattened hierarchy. Streamlined and agile internal organisation. Change of mentality towards a more operational one. | ||
| Software | Availability | Supportive technological solutions. Commercial software offered free of charge, for a period. Reusing existing solutions. | ‘There is no doubt that ten years ago the management of this pandemic would have been much more difficult, and now we have technology that has enabled us to fight the pandemic much more effectively’. (D9) |
| Functionality | Easy to build and automate. Flexible and easy to maintain once set up. Extensive vendor support. | ||
| Data | Availability and quality | Available, accurate, and timely data of sufficient granularity. Ability to link data across sources and organisations. | ‘Because we are a data department … it's very easy for us, since we are data managers, all of us, and we have access to all the data. So when we’re asked to do something, we don’t have to ask anybody “Can you get me this data?” This access is very important for quick results’. (D16) |
| Data culture | Aligned data standards and methodologies. Culture of data interoperability, open data and secondary data use. | ||
| Automation | Streamlined data processes including automation of collection, processing and reporting. | ||
| Users | Target groups | Clearer definition of the target audience. Separate dashboards or modules for different user groups with different information needs. Curious, rather than malicious, users. Partnership with media. Support and readiness for data-driven decision-making at all levels. Dissemination aids, including social media platforms, high-level officials, transitional media, and data champions. | ‘We’ve had a good relationship with the media and there's a short communication line from the public to us. So, if there's something the public is insecure about or wants to know more about or wants, [they can easily reach us], and that's good’. (D26) |
| Information needs, user experience and expectations | Systematic approaches to researching user experience, implementing improvements and managing user feedback. Tradition of public using data for decision-making. |
Summary of lessons learned, recurrent themes and representative quotes.
| Theme | Lesson | Representative quote |
|---|---|---|
| Simplicity | Report essential information only | ‘From the beginning, one of the main aims was to make it as simple as possible to understand. I avoided providing additional information, so that it was as simple as possible’. (D7) |
| Ensure interpretation is straightforward | ‘I mean, that's not to say there aren’t a lot of other types of users, but our primary focus is always that this is for the public and therefore anything that is there for the public should be understandable’. (D10) | |
| Include explanations | ‘We learned it is super-extra important to describe all the measures as soon as possible … the first-time people see a number, [that is] the way they understand it and they will continue misinterpreting it forever’. (D4) | |
| Trust | Report errors | ‘Be brave enough to try it out, to put stuff out and also be transparent while doing it. And, if you have mistakes, also be transparent about it’. (D24) |
| Use open data | ‘Publishing open data took a lot of work off our hands and made it a lot easier, more transparent and, yeah, that's one of the lessons from the crisis, definitely’. (D24) | |
| Prioritise data security and privacy | ‘I also noticed issues in terms of data protection.… I think that's another lesson learned, integrating data protection right from the get-go to make it easier later on’. (D17) | |
| Partnership | Involve the right people | ‘It was a kind of multidisciplinary team that met to design the needs for the dashboard, the functionalities, the data that is necessary to communicate, the functions of the dashboard’. (D29) |
| Ensure high-level endorsement | ‘And then with the support and the initiative of the minister's office, the decision was made to come together in collaboration between my agency and the ministry. We resolved to add transparency and to be more efficient in ensuring a dedicated website for coronavirus data’. (D20) | |
| Listen to your audience | ‘We also take into account the needs of politicians: what do they need to make their decisions? So, there is the public health side and the political side that have to be taken into account’. (D17) | |
| Software and data | Choose software wisely | ‘The tooling influences a lot how the dashboard looks in the end and what is feasible’. (D2) |
| Automate when possible | ‘Unlike other diseases, we are talking about a very large volume of data … using more basic tools that, at this point, no longer works. So everything we want to represent must be represented in an automatic way, with a great capacity to go “drinking at the source”. we are talking about a lot of data, millions of millions of data’. (D9) | |
| Quality data is essential | ‘If the data is not collected in a way they can utilise [it], they will not be able to produce dashboards … Try to predict how they are going to grow their data warehouses, because that is one of the problems as the pandemic progresses: you need to respond quickly’. (D7) | |
| Change | Learn from others | ‘We looked at many of the versions [from countries] to see which one will be more appropriate for [us] and how we can design it better for the country. So, examples from other countries helped a lot, I think’. (D29) |
| Adapt with the situation | ‘I would say they
| |
| Embed in reporting ecosystem | ‘We never saw the website as a separate entity, but as a central place from which we disseminate information to other communication platforms’. (D15) |