Devon M Kratchman1, Porcia Vaughn2, Ligia Batista Silverman3, Kristine A Campbell2, Daniel M Lindberg3, James D Anderst4, Angela N Bachim5, Rachel P Berger6, Kent P Hymel7, Megan Letson8, John D Melville9, Joanne N Wood10. 1. Safe Place: The Center for Child Protection and Health, PolicyLab, Center for Pediatric Effectiveness and Division of General Pediatrics, Children's Hospital of Philadelphia, 34th Street and Civic Center Boulevard, Philadelphia, PA 19104, United States. 2. Department of Pediatrics, Division of Child Protection and Family Health, University of Utah, Salt Lake City, UT 84115, United States; The Center for Safe and Healthy Families, Primary Children's Hospital, Salt Lake City, UT 84115, United States. 3. Department of Emergency Medicine, The Kempe Center for the Prevention & Treatment of Child Abuse & Neglect, The University of Colorado Anschutz Medical Campus, 12631 E. 17(th) Ave - C326, Aurora, CO, United States. 4. Children's Mercy Kansas City, University of Missouri Kansas City School of Medicine, 2401 Gillham Road, Kansas City, MO 64108, United States. 5. Division of Public Health Pediatrics, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, TX, United States. 6. Department of Pediatrics, UPMC Children's Hospital of Pittsburgh, Safar Center for Resuscitation Research, University of Pittsburgh, 4401 Penn Ave, Pittsburgh, PA, 15224, United States. 7. Penn State College of Medicine, Hershey, PA, United States. 8. Nationwide Children's Hospital, Department of Pediatrics, The Ohio State University College of Medicine, Columbus, OH, United States. 9. Division of Child Abuse Pediatrics, Medical University of South Carolina, Charleston, SC, United States. 10. Safe Place: The Center for Child Protection and Health, PolicyLab, Center for Pediatric Effectiveness and Division of General Pediatrics, Children's Hospital of Philadelphia, 34th Street and Civic Center Boulevard, Philadelphia, PA 19104, United States; Department of Pediatrics, Perelman School of Medicine at the University of Pennsylvania, 34th Street and Civic Center Boulevard, Philadelphia, PA 19104, United States. Electronic address: woodjo@chop.edu.
Abstract
BACKGROUND: The pediatric subspecialty of Child Abuse Pediatrics (CAP) was certified by the American Board of Medical Subspecialties in 2006. Relative to its impact on pediatric health, CAP-focused research has been relatively under-funded. Multi-center networks related to CAP-focused research have made important advances, but have been limited in scope and duration. CAPNET is multi-center network whose mission is to support CAP-focused research. OBJECTIVE: To describe the rationale, development, and scope of the CAPNET research network infrastructure, the CAPNET data registry and associated data resources. METHODS: Based on existing priorities for CAP-focused research, we used consensus building and iterative testing to establish inclusion criteria, common data elements, data quality assurance, and data sharing processes for children with concerns of physical abuse. RESULTS: We describe the rationale, methods and intended scope for the development of the CAPNET research network and data registry. CAPNET is currently abstracting data for children <10 years (120 months) old who undergo sub-specialty evaluation for physical abuse at 10 US pediatric centers (approximately 4000 evaluations/year total) using an online data capture form. Data domains include: demographics; visit timing and providers, medical/social history, presentation, examination findings, laboratory and radiographic testing, diagnoses, outcomes, and data for contact children. We describe the methods and criteria for collecting and validating data which are broadly available to CAP investigators. CONCLUSIONS: CAPNET represents a new data resource for the CAP research community and will increase the quantity and quality of CAP-focused research.
BACKGROUND: The pediatric subspecialty of Child Abuse Pediatrics (CAP) was certified by the American Board of Medical Subspecialties in 2006. Relative to its impact on pediatric health, CAP-focused research has been relatively under-funded. Multi-center networks related to CAP-focused research have made important advances, but have been limited in scope and duration. CAPNET is multi-center network whose mission is to support CAP-focused research. OBJECTIVE: To describe the rationale, development, and scope of the CAPNET research network infrastructure, the CAPNET data registry and associated data resources. METHODS: Based on existing priorities for CAP-focused research, we used consensus building and iterative testing to establish inclusion criteria, common data elements, data quality assurance, and data sharing processes for children with concerns of physical abuse. RESULTS: We describe the rationale, methods and intended scope for the development of the CAPNET research network and data registry. CAPNET is currently abstracting data for children <10 years (120 months) old who undergo sub-specialty evaluation for physical abuse at 10 US pediatric centers (approximately 4000 evaluations/year total) using an online data capture form. Data domains include: demographics; visit timing and providers, medical/social history, presentation, examination findings, laboratory and radiographic testing, diagnoses, outcomes, and data for contact children. We describe the methods and criteria for collecting and validating data which are broadly available to CAP investigators. CONCLUSIONS: CAPNET represents a new data resource for the CAP research community and will increase the quantity and quality of CAP-focused research.
Authors: Kent P Hymel; Veronica Armijo-Garcia; Robin Foster; Terra N Frazier; Michael Stoiko; LeeAnn M Christie; Nancy S Harper; Kerri Weeks; Christopher L Carroll; Phil Hyden; Andrew Sirotnak; Edward Truemper; Amy E Ornstein; Ming Wang Journal: Pediatrics Date: 2014-11-17 Impact factor: 7.124
Authors: S A Maguire; P O Watts; A D Shaw; S Holden; R H Taylor; W J Watkins; M K Mann; V Tempest; A M Kemp Journal: Eye (Lond) Date: 2012-10-19 Impact factor: 3.775
Authors: Mary Clyde Pierce; Kim Kaczor; Douglas J Lorenz; Gina Bertocci; Amanda K Fingarson; Kathi Makoroff; Rachel P Berger; Berkeley Bennett; Julia Magana; Shannon Staley; Veena Ramaiah; Kristine Fortin; Melissa Currie; Bruce E Herman; Sandra Herr; Kent P Hymel; Carole Jenny; Karen Sheehan; Noel Zuckerbraun; Sheila Hickey; Gabriel Meyers; John M Leventhal Journal: JAMA Netw Open Date: 2021-04-01