| Literature DB >> 35595371 |
Christopher E Cox1, Deepshikha Charan Ashana2, Nita Khandelwal3, Arif H Kamal4, Ruth A Engelberg5.
Abstract
Palliative care research is deeply challenging for many reasons, not the least of which is the conceptual and operational difficulty of measuring outcomes within a seriously ill population such as critically ill patients and their family members. This manuscript describes how Randy Curtis and his network of collaborators successfully confronted some of the most vexing outcomes measurement problems in the field, and by so doing, have enhanced clinical care and research alike. Beginning with a discussion of the clinical challenges of measurement in palliative care, we then discuss a selection of the novel measures developed by Randy and his collaborators and conclude with a look toward the future evolution of these concepts. Randy and his foundational work, including both successes as well as the occasional near miss, have enriched and advanced the field as well as (immeasurably) impacted the work of so many others-including this manuscript's authors.Entities:
Keywords: Quality of death and dying; critical illness; palliative care; quality of communication
Mesh:
Year: 2022 PMID: 35595371 PMCID: PMC9173670 DOI: 10.1016/j.jpainsymman.2022.03.012
Source DB: PubMed Journal: J Pain Symptom Manage ISSN: 0885-3924 Impact factor: 5.576