Literature DB >> 35595371

Improving Outcomes Measurement in Palliative Care: The Lasting Impact of Randy Curtis and his Collaborators.

Christopher E Cox1, Deepshikha Charan Ashana2, Nita Khandelwal3, Arif H Kamal4, Ruth A Engelberg5.   

Abstract

Palliative care research is deeply challenging for many reasons, not the least of which is the conceptual and operational difficulty of measuring outcomes within a seriously ill population such as critically ill patients and their family members. This manuscript describes how Randy Curtis and his network of collaborators successfully confronted some of the most vexing outcomes measurement problems in the field, and by so doing, have enhanced clinical care and research alike. Beginning with a discussion of the clinical challenges of measurement in palliative care, we then discuss a selection of the novel measures developed by Randy and his collaborators and conclude with a look toward the future evolution of these concepts. Randy and his foundational work, including both successes as well as the occasional near miss, have enriched and advanced the field as well as (immeasurably) impacted the work of so many others-including this manuscript's authors.
Copyright © 2022 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Quality of death and dying; critical illness; palliative care; quality of communication

Mesh:

Year:  2022        PMID: 35595371      PMCID: PMC9173670          DOI: 10.1016/j.jpainsymman.2022.03.012

Source DB:  PubMed          Journal:  J Pain Symptom Manage        ISSN: 0885-3924            Impact factor:   5.576


  41 in total

1.  Can health care costs be reduced by limiting intensive care at the end of life?

Authors:  John M Luce; Gordon D Rubenfeld
Journal:  Am J Respir Crit Care Med       Date:  2002-03-15       Impact factor: 21.405

2.  The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives.

Authors:  Lois Downey; J Randall Curtis; William E Lafferty; Jerald R Herting; Ruth A Engelberg
Journal:  J Pain Symptom Manage       Date:  2009-09-25       Impact factor: 3.612

3.  A randomized trial to improve communication about end-of-life care among patients with COPD.

Authors:  David H Au; Edmunds M Udris; Ruth A Engelberg; Paula H Diehr; Christopher L Bryson; Lynn F Reinke; J Randall Curtis
Journal:  Chest       Date:  2011-09-22       Impact factor: 9.410

4.  The quality of patient-doctor communication about end-of-life care: a study of patients with advanced AIDS and their primary care clinicians.

Authors:  J R Curtis; D L Patrick; E Caldwell; H Greenlee; A C Collier
Journal:  AIDS       Date:  1999-06-18       Impact factor: 4.177

5.  Evaluating the Economic Impact of Palliative and End-of-Life Care Interventions on Intensive Care Unit Utilization and Costs from the Hospital and Healthcare System Perspective.

Authors:  Nita Khandelwal; Lyndia C Brumback; Scott D Halpern; Norma B Coe; Babette Brumback; J Randall Curtis
Journal:  J Palliat Med       Date:  2017-10-03       Impact factor: 2.947

6.  Effect of a Patient and Clinician Communication-Priming Intervention on Patient-Reported Goals-of-Care Discussions Between Patients With Serious Illness and Clinicians: A Randomized Clinical Trial.

Authors:  J Randall Curtis; Lois Downey; Anthony L Back; Elizabeth L Nielsen; Sudiptho Paul; Alexandria Z Lahdya; Patsy D Treece; Priscilla Armstrong; Ronald Peck; Ruth A Engelberg
Journal:  JAMA Intern Med       Date:  2018-07-01       Impact factor: 21.873

7.  Understanding physicians' skills at providing end-of-life care perspectives of patients, families, and health care workers.

Authors:  J R Curtis; M D Wenrich; J D Carline; S E Shannon; D M Ambrozy; P G Ramsey
Journal:  J Gen Intern Med       Date:  2001-01       Impact factor: 5.128

8.  Prevalence, Risk Factors, and Outcomes of Financial Stress in Survivors of Critical Illness.

Authors:  Nita Khandelwal; Catherine L Hough; Lois Downey; Ruth A Engelberg; Shannon S Carson; Douglas B White; Jeremy M Kahn; Derek M Jones; Mary D Key; Wen Reagan; Laura S Porter; J Randall Curtis; Christopher E Cox
Journal:  Crit Care Med       Date:  2018-06       Impact factor: 7.598

9.  Dying patients' need for emotional support and personalized care from physicians: perspectives of patients with terminal illness, families, and health care providers.

Authors:  Marjorie D Wenrich; J Randall Curtis; Donna A Ambrozy; Jan D Carline; Sarah E Shannon; Paul G Ramsey
Journal:  J Pain Symptom Manage       Date:  2003-03       Impact factor: 3.612

10.  A measure of the quality of dying and death. Initial validation using after-death interviews with family members.

Authors:  J Randall Curtis; Donald L Patrick; Ruth A Engelberg; Kaye Norris; Charles Asp; Ira Byock
Journal:  J Pain Symptom Manage       Date:  2002-07       Impact factor: 3.612

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