| Literature DB >> 35498510 |
Karen Fortuna1, Mbita Mbao2, Arya Kadakia3, Amanda Myers4, Daniel Fischer5, Sandi MacDonald6, Sheila Brunchet6, Iga Hintz7, Rebecca Rossom8, Jessica Brooks9, Joseph Kalisa10, Claver Haragirimana11, Marianne Storm12, George Mois13, Emre Umucu14, Margaret Almeida15, Jennifer Rivera16, Yaara Zisman Ilani17, Maria Venegas18, Robert Walker19.
Abstract
Community of Practice, a community-engagement method that encourages a group of people to interact regularly towards a common goal, may promote satisfying experiences in patient-outcomes research among marginalized populations. Peer support specialists are increasingly being involved in peer-informed mental health research due to their lived experiences of mental illness and are an asset in co-designing healthcare programs along with researchers. In 2015, ten scientists and ten mental health service users joined as a Community of Practice that trained to engage in patient-centered outcomes research. The group has so far has presented at 20 conferences, published three book chapters and 30 peer-reviewed publications, and developed two smartphone applications. Of note are the co-production of a smartphone application, a digital peer support certification program, an app decision support tool, and an instrument to assess the value of patient-research partnerships. Future research will assess the feasibility of incorporating more stakeholders to enhance research outcomes.Entities:
Keywords: PeerTECH; community of practice; marginalized populations; peer support specialists
Year: 2021 PMID: 35498510 PMCID: PMC9053294 DOI: 10.1109/ghtc53159.2021.9612411
Source DB: PubMed Journal: Proc IEEE Glob Humanit Technol Conf ISSN: 2377-6919