Literature DB >> 35814864

Peer Support Specialists and Service Users' Perspectives on Privacy, Confidentiality, and Security of Digital Mental Health.

Maria D Venegas1, Jessica M Brooks2, Amanda L Myers3, Marianne Storm4, Karen L Fortuna5.   

Abstract

As the digitalization of mental health systems progresses, the ethical and social debate on the use of these mental health technologies has seldom been explored among end-users. This article explores how service users (e.g., patients and users of mental health services) and peer support specialists understand and perceive issues of privacy, confidentiality, and security of digital mental health interventions. Semi-structured qualitative interviews were conducted among service users (n = 17) and peer support specialists (n = 15) from a convenience sample at an urban community mental health center in the United States. We identified technology ownership and use, lack of technology literacy including limited understanding of privacy, confidentiality, and security as the main barriers to engagement among service users. Peers demonstrated a high level of technology engagement, literacy of digital mental health tools, and a more comprehensive awareness of digital mental health ethics. We recommend peer support specialists as a potential resource to facilitate the ethical engagement of digital mental health interventions for service users. Finally, engaging potential end-users in the development cycle of digital mental health support platforms and increased privacy regulations may lead the field to a better understanding of effective uses of technology for people with mental health conditions. This study contributes to the ongoing debate of digital mental health ethics, data justice, and digital mental health by providing a first-hand experience of digital ethics from end-users' perspectives.

Entities:  

Year:  2022        PMID: 35814864      PMCID: PMC9267391          DOI: 10.1109/MPRV.2022.3141986

Source DB:  PubMed          Journal:  IEEE Pervasive Comput        ISSN: 1536-1268            Impact factor:   1.603


  25 in total

1.  The ethics of mHealth: Moving forward.

Authors:  Tilda Cvrkel
Journal:  J Dent       Date:  2018-07       Impact factor: 4.379

2.  The Use of Smartphones for Health Research.

Authors:  E Ray Dorsey; Yu-Feng Yvonne Chan; Michael V McConnell; Stanley Y Shaw; Andrew D Trister; Stephen H Friend
Journal:  Acad Med       Date:  2017-02       Impact factor: 6.893

Review 3.  Smartphone apps for the treatment of mental health conditions: status and considerations.

Authors:  Kit Huckvale; Jennifer Nicholas; John Torous; Mark E Larsen
Journal:  Curr Opin Psychol       Date:  2020-05-04

4.  How people with serious mental illness use smartphones, mobile apps, and social media.

Authors:  John A Naslund; Kelly A Aschbrenner; Stephen J Bartels
Journal:  Psychiatr Rehabil J       Date:  2016-06-16

Review 5.  Privacy in the digital world: medical and health data outside of HIPAA protections.

Authors:  Tasha Glenn; Scott Monteith
Journal:  Curr Psychiatry Rep       Date:  2014-11       Impact factor: 5.285

Review 6.  If we build it, will they come? Issues of engagement with digital health interventions for trauma recovery.

Authors:  Carolyn M Yeager; Charles C Benight
Journal:  Mhealth       Date:  2018-09-11

7.  The Future of Peer Support in Digital Psychiatry: Promise, Progress, and Opportunities.

Authors:  Karen L Fortuna; Maria Venegas; Emre Umucu; George Mois; Robert Walker; Jessica M Brooks
Journal:  Curr Treat Options Psychiatry       Date:  2019-06-20

8.  Ethical Issues for Direct-to-Consumer Digital Psychotherapy Apps: Addressing Accountability, Data Protection, and Consent.

Authors:  Nicole Martinez-Martin; Karola Kreitmair
Journal:  JMIR Ment Health       Date:  2018-04-23

9.  Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.

Authors:  Kim M Unertl; Chris L Schaefbauer; Terrance R Campbell; Charles Senteio; Katie A Siek; Suzanne Bakken; Tiffany C Veinot
Journal:  J Am Med Inform Assoc       Date:  2015-07-30       Impact factor: 4.497

10.  A mobile revolution for healthcare? Setting the agenda for bioethics.

Authors:  Federica Lucivero; Karin R Jongsma
Journal:  J Med Ethics       Date:  2018-06-15       Impact factor: 2.903

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