Dulce M Cruz-Oliver1, Martha Abshire Saylor2, Katie E Nelson2, Gabrielle E Milner3, Marcela D Blinka4, Nowell Durkin5, Chakra Budhathoki2, Debra Parker-Oliver6, Thomas J Smith1. 1. Section of Palliative Medicine, Division of General Internal Medicine, Department of Medicine, Johns Hopkins Hospital, Baltimore, Maryland, USA. 2. Johns Hopkins University School of Nursing, Baltimore, Maryland, USA. 3. Johns Hopkins University School of Medicine, Baltimore, Maryland, USA. 4. Division of Geriatric Medicine and Gerontology, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA. 5. Division of General Internal Medicine, School of Medicine, Johns Hopkins University, Baltimore, Maryland, USA. 6. Division of Palliative Medicine, Barnes Jewish Hospital, Goldfarb School of Nursing, Washington University, St Louis, Missouri, USA.
Abstract
Background: Telenovelas show significant promise as a mode of education that could potentially enhance hospice family caregivers' (HFCG) ability to manage distress or pain for themselves and the care recipient. Objectives: We sought to understand HFCGs' perceived benefits and challenges of NOVELA using the Levels of Kirkpatrick as a conceptual framework. Setting/Subjects: HFCGs from two hospices in the Mid-Atlantic region of the United States. Measurements: Semistructured interviews were conducted to understand perceptions of HFCGs on the benefits and challenges of the NOVELA intervention. Results: Participants (N = 20) in our study were mainly homebound, well educated, White female, and adult children of people with advanced cancer who reported mild anxiety and moderate self-efficacy at baseline. Three unique themes were identified: acceptability of NOVELA, usability and relevance of NOVELA, and the effect of NOVELA. According to our conceptual model, the intervention positively affects all three adult learning categories: reaction, learning, and behavior. Conclusion: Our findings suggest that HFCGs support the proposed NOVELA intervention and it appears to be an acceptable educational tool during hospice care (NCT04533594).
Background: Telenovelas show significant promise as a mode of education that could potentially enhance hospice family caregivers' (HFCG) ability to manage distress or pain for themselves and the care recipient. Objectives: We sought to understand HFCGs' perceived benefits and challenges of NOVELA using the Levels of Kirkpatrick as a conceptual framework. Setting/Subjects: HFCGs from two hospices in the Mid-Atlantic region of the United States. Measurements: Semistructured interviews were conducted to understand perceptions of HFCGs on the benefits and challenges of the NOVELA intervention. Results: Participants (N = 20) in our study were mainly homebound, well educated, White female, and adult children of people with advanced cancer who reported mild anxiety and moderate self-efficacy at baseline. Three unique themes were identified: acceptability of NOVELA, usability and relevance of NOVELA, and the effect of NOVELA. According to our conceptual model, the intervention positively affects all three adult learning categories: reaction, learning, and behavior. Conclusion: Our findings suggest that HFCGs support the proposed NOVELA intervention and it appears to be an acceptable educational tool during hospice care (NCT04533594).
Entities:
Keywords:
acceptability; family caregivers; feasibility; hospice; telenovela videos
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