| Literature DB >> 35362252 |
Catherine Buckley1,2, Irene Hartigan1, Alice Coffey3,4, Nicola Cornally1, Selena O'Connell1,3, Christina O'Loughlin4, Suzanne Timmons5, Elaine Lehane1.
Abstract
BACKGROUND: Dementia affects a large proportion of society and places a significant burden on older people and healthcare systems internationally. Managing symptoms at the end of life for people with dementia is complex. Participatory action research can offer an approach that helps to encourage implementation of evidence-based practices in long-term care settings.Entities:
Keywords: creative hermeneutic analysis; dementia; palliative care; participatory action research; work-based learning
Mesh:
Year: 2022 PMID: 35362252 PMCID: PMC9539682 DOI: 10.1111/opn.12460
Source DB: PubMed Journal: Int J Older People Nurs ISSN: 1748-3735 Impact factor: 2.471
Key components of the dementia palliative care guidance documents
| Document | Focus of the guidance document |
|---|---|
| Pain assessment and management |
Recognising pain in dementia Pain assessment in mild to severe dementia Developing a pain management plan Referral to specialist services |
| Management of hydration and nutrition |
Common Eating, Drinking and Swallowing Difficulties in People with Dementia Assessment of Hydration and Nutrition Management of Hydration and Nutrition Decision‐Making – Balancing Different Views |
| Medication assessment and management |
Medication management of cognitive symptoms and maintenance of function Medication management of non‐cognitive symptoms and behaviours that challenge Optimising decision‐making through application of medication management principles Medication administration |
Extracted from dementia palliative care guidance documents (Cornally et al., 2016; Hartigan et al., 2016; Lehane et al., 2016).
Work‐based Learning Group Structure & Processes for Participatory Action Research Project‐ Implementing Evidence Based Guidance for Dementia Palliative Care
| Session details | Structure/Outline of Reflective Workbased learning group | Processes used | Participants per session |
|---|---|---|---|
|
Getting to know guidance document and aspects of Dementia Care Agreeing ways of working. Introduction of guidance document |
Overview of guidance document and Dementia Care
Development of guidance
Linking guidance to dementia care
How can this be achieved in practice?
Critically looking at current workplace culture |
Presentation and facilitated discussion.
“Claims, concerns and issues”.
Creative session with participants asking them to address meta‐theme
Agreeing an engagement contract. |
Site 1 Site 2 Site 3 |
|
Identifying ways to promote guidance practice |
Re‐engagement with guidance recommendations and gaining a more in‐depth insight
“Claims concerns and issues”
Linking guidance to practice
Outlining Action Plans |
Reflection on issues identified in “Claims, concerns and issues”.
Creating a landscape of the workplace culture.
Identifying strategies for improvement in relation to guidance evidence. |
Site 1 = 7 Site 2 = 3 Site 3 = 4 |
|
Using data collected to devise action plans. |
Work‐based learning activities‐ how did they go and what were the outcomes?
Looking at strategies from Day 1 and discussion from Day 2 and devising action plans to be worked on over the next few sessions. |
Reflecting on learning and implications of identified practice.
Development of an action plan. (what is an action plan and how do we use it?) |
Site 1 = 4 Site 2 = 8 Site 3 = 3 |
|
Making the guidance real |
Recap on guidance
Recap on WBL activities.
Discussion on data from practice observations and informal discussions carried out by staff with residents/families
Action planning. What has been achieved? And how? |
Making the evidence real ‐ using it in everyday language and continuing to build knowledge of how the guidance works.
Gain an understanding of how to use data collected.
Looking at what you see happening/the way things are being done in the analysis and how things should be done
Reflecting on learning and implications for ongoing activities, including the further development of action plans. |
Site 1 = 5 Site 2 = 8 Site 3 = 4 |
|
Evaluation |
Reflection on work based activities that have been taking place since last session
Evaluation of taking part in the study |
Creative exercise to determine how everyone felt about taking part and also to look at changes in practice (if any) |
Site 1 = 4 Site 2 = 2 Site 3 = 5 |
FIGURE 1Creative hermeneutic data analysis (Boomer & McCormack, 2010)