Literature DB >> 35330862

Co-production of the quality of patient-centered outcomes research partnerships instrument for people with mental health conditions.

Karen L Fortuna1, Amanda Myers2, Jessica Brooks3, Caroline Collins-Pisano1, Skyla Marceau1, Sarah Pratt1, Kathy Lyons1, Robert Walker4, Shavon Thompson5, Kaycie Greene6, Willie Pringle6, Katina Carter5.   

Abstract

Mounting scientific evidence over the past decades in the field of psychiatry has shown community engagement in research produces more relevant research, increased uptake of research findings, and better clinical outcomes. Despite the need for the integration of community engagement methodologies into the scientific method, doctoral and master's level competencies in the field of psychiatry commonly do not include dedicated training or coursework on community engagement methodologies. Without appropriate training or research experience, attempts to facilitate community engagement are often ineffective and burdensome and leave stakeholders feeling disenfranchised. The goal of this study was to co-produce an instrument designed to improve the quality of community engagement research practices by measuring the degree to which researchers have partnered with psychiatric patient stakeholders. The development of the Quality of Patient-Centered Outcomes Research Partnerships Instrument included an iterative co-production process with psychiatric patient stakeholders and scientists, including item formulation, followed by two phases of cognitive interviews with psychiatric patient stakeholders to assess and refine instrument items. A pilot study was conducted to assess acceptability and feasibility. The pilot study of the Patient-Centered Outcomes Research Partnerships Instrument suggested feasibility and acceptability among psychiatric patient stakeholders. The Quality of Patient-Centered Outcomes Research Partnerships Instrument may be a valuable tool to enhance the quality of community engagement research practices within the field of psychiatry.

Entities:  

Keywords:  Co-production; mental health; mental health conditions; patient-centered

Year:  2021        PMID: 35330862      PMCID: PMC8942114          DOI: 10.35680/2372-0247.1533

Source DB:  PubMed          Journal:  Patient Exp J        ISSN: 2372-0247


  28 in total

1.  Peer support/peer provided services underlying processes, benefits, and critical ingredients.

Authors:  Phyllis Solomon
Journal:  Psychiatr Rehabil J       Date:  2004

Review 2.  Identifying and defining the dimensions of community capacity to provide a basis for measurement.

Authors:  R M Goodman; M A Speers; K McLeroy; S Fawcett; M Kegler; E Parker; S R Smith; T D Sterling; N Wallerstein
Journal:  Health Educ Behav       Date:  1998-06

3.  From the ground up: building a participatory evaluation model.

Authors:  Victoria Sánchez; Christina Carrillo; Nina Wallerstein
Journal:  Prog Community Health Partnersh       Date:  2011

Review 4.  Translating evidence into population health improvement: strategies and barriers.

Authors:  Steven H Woolf; Jason Q Purnell; Sarah M Simon; Emily B Zimmerman; Gabriela J Camberos; Amber Haley; Robert P Fields
Journal:  Annu Rev Public Health       Date:  2015-01-12       Impact factor: 21.981

Review 5.  Ethical issues in mental health research: the case for community engagement.

Authors:  James M Dubois; Brendolyn Bailey-Burch; Dan Bustillos; Jean Campbell; Linda Cottler; Celia B Fisher; Whitney B Hadley; Jinger G Hoop; Laura Roberts; Erica K Salter; Joan E Sieber; Richard D Stevenson
Journal:  Curr Opin Psychiatry       Date:  2011-05       Impact factor: 4.741

6.  On measuring community participation in research.

Authors:  Dmitry Khodyakov; Susan Stockdale; Andrea Jones; Joseph Mango; Felica Jones; Elizabeth Lizaola
Journal:  Health Educ Behav       Date:  2012-10-04

Review 7.  Community-based participatory research from the margin to the mainstream: are researchers prepared?

Authors:  Carol R Horowitz; Mimsie Robinson; Sarena Seifer
Journal:  Circulation       Date:  2009-05-19       Impact factor: 29.690

8.  Developing CollaboRATE: a fast and frugal patient-reported measure of shared decision making in clinical encounters.

Authors:  Glyn Elwyn; Paul James Barr; Stuart W Grande; Rachel Thompson; Thom Walsh; Elissa M Ozanne
Journal:  Patient Educ Couns       Date:  2013-06-12

Review 9.  Exploring the role of community engagement in improving the health of disadvantaged populations: a systematic review.

Authors:  Sheila Cyril; Ben J Smith; Alphia Possamai-Inesedy; Andre M N Renzaho
Journal:  Glob Health Action       Date:  2015-12-18       Impact factor: 2.640

10.  Designing eHealth Applications to Reduce Cognitive Effort for Persons With Severe Mental Illness: Page Complexity, Navigation Simplicity, and Comprehensibility.

Authors:  Armando J Rotondi; Michael R Spring; Barbara H Hanusa; Shaun M Eack; Gretchen L Haas
Journal:  JMIR Hum Factors       Date:  2017-01-05
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  2 in total

1.  Peer and Non-Peer Academic Scientists and Peer Support Specialist Community of Practice: Stakeholder Engagement to Advance the Science of Peer Support.

Authors:  Karen Fortuna; Mbita Mbao; Arya Kadakia; Amanda Myers; Daniel Fischer; Sandi MacDonald; Sheila Brunchet; Iga Hintz; Rebecca Rossom; Jessica Brooks; Joseph Kalisa; Claver Haragirimana; Marianne Storm; George Mois; Emre Umucu; Margaret Almeida; Jennifer Rivera; Yaara Zisman Ilani; Maria Venegas; Robert Walker
Journal:  Proc IEEE Glob Humanit Technol Conf       Date:  2021-11-30

2.  Peer Support Specialists' Perspectives of a Standard Online Research Ethics Training: Qualitative Study.

Authors:  Karen L Fortuna; Skyla R Marceau; Arya Kadakia; Sarah I Pratt; Joy Varney; Robert Walker; Amanda L Myers; Shavon Thompson; Katina Carter; Kaycie Greene; Willie Pringle
Journal:  JMIR Form Res       Date:  2022-02-01
  2 in total

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