Literature DB >> 35059950

Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers.

Monica L Gordillo1, Andrea Chu2, Kristin Long3.   

Abstract

Latino children on the autism spectrum experience less access to autism services and more barriers to service-use than non-Latino White children. Yet, existing research leaves unanswered questions about how cultural, family, and service system-level processes contribute to autism service-use disparities. This study aimed to qualitatively explore how Latina and non-Latina mothers experience similar encounters with autism services. Twenty Latina and non-Latina mothers completed semi-structured interviews regarding their experiences accessing services. Data were analyzed using applied thematic analysis. Ethnicity-based differences emerged in mothers' service-use motivations (i.e., desiring ongoing support vs. eventual departure), service evaluations (i.e., dissatisfaction vs. satisfaction), and service-seeking approaches (i.e., proactive vs. reactive). Findings illustrate how these processes underlying service engagement may contribute to service disparities for Latino children.
© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  Autism; Disparities; Expectations; Latinos; Service barriers; Service-seeking

Year:  2022        PMID: 35059950     DOI: 10.1007/s10803-021-05403-z

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  11 in total

1.  Advancing health disparities research within the health care system: a conceptual framework.

Authors:  Amy M Kilbourne; Galen Switzer; Kelly Hyman; Megan Crowley-Matoka; Michael J Fine
Journal:  Am J Public Health       Date:  2006-10-31       Impact factor: 9.308

2.  Conceptualization of autism in the Latino community and its relationship with early diagnosis.

Authors:  Katharine E Zuckerman; Brianna Sinche; Martiza Cobian; Marlene Cervantes; Angie Mejia; Thomas Becker; Christina Nicolaidis
Journal:  J Dev Behav Pediatr       Date:  2014-10       Impact factor: 2.225

3.  Mothers' Adjustment to Autism: Exploring the Roles of Autism Knowledge and Culture.

Authors:  Monica L Gordillo; Andrea Chu; Kristin Long
Journal:  J Pediatr Psychol       Date:  2020-09-01

4.  Caregiver Voices: Cross-Cultural Input on Improving Access to Autism Services.

Authors:  Aubyn C Stahmer; Sarah Vejnoska; Suzannah Iadarola; Diondra Straiton; Francisco Reinosa Segovia; Paul Luelmo; Elizabeth H Morgan; Hyon Soo Lee; Asim Javed; Briana Bronstein; Samantha Hochheimer; EunMi Cho; Aritz Aranbarri; David Mandell; Elizabeth McGhee Hassrick; Tristram Smith; Connie Kasari
Journal:  J Racial Ethn Health Disparities       Date:  2019-03-11

5.  A Randomized Waitlist-Control Group Study of a Culturally Tailored Parent Education Intervention for Latino Parents of Children with ASD.

Authors:  Sandy Magaña; Kristina Lopez; Kristen Salkas; Emily Iland; Miguel Angel Morales; Mariana Garcia Torres; Weiwen Zeng; Wendy Machalicek
Journal:  J Autism Dev Disord       Date:  2020-01

6.  Anglo-Latino differences in parental concerns and service inequities for children at risk of autism spectrum disorder.

Authors:  Jan Blacher; Katherine Stavropoulos; Yasamine Bolourian
Journal:  Autism       Date:  2019-01-07

7.  Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Nuri M Reyes; Alison E Chavez; Kristy Macias; Kathryn N Smith; Ann Reynolds
Journal:  Pediatrics       Date:  2017-05       Impact factor: 7.124

8.  From 'Parent' to 'Expert': How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access.

Authors:  Amelia G Edwards; Chris M Brebner; Paul F McCormack; Colin J MacDougall
Journal:  J Autism Dev Disord       Date:  2018-06

9.  Disparities in Service Use and Expenditures for People With Intellectual and Developmental Disabilities in California in 2005 and 2013.

Authors:  Charlene Harrington; Taewoon Kang
Journal:  Intellect Dev Disabil       Date:  2016-02

10.  Effect of Family Navigation on Diagnostic Ascertainment Among Children at Risk for Autism: A Randomized Clinical Trial From DBPNet.

Authors:  Emily Feinberg; Marilyn Augustyn; Sarabeth Broder-Fingert; Amanda Bennett; Carol Weitzman; Jocelyn Kuhn; Emily Hickey; Andrea Chu; Julia Levinson; Jenna Sandler Eilenberg; Michael Silverstein; Howard J Cabral; Gregory Patts; Yaminette Diaz-Linhart; Ivys Fernandez-Pastrana; Jessica Rosenberg; Judith S Miller; James P Guevara; Ada M Fenick; Nathan J Blum
Journal:  JAMA Pediatr       Date:  2021-03-01       Impact factor: 16.193

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