Literature DB >> 29396727

From 'Parent' to 'Expert': How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access.

Amelia G Edwards1, Chris M Brebner2, Paul F McCormack2, Colin J MacDougall3.   

Abstract

Parents of children with Autism Spectrum Disorder are responsible for deciding which interventions to implement with their child. There is limited research examining parental decision-making with regards to intervention approaches. A constructivist grounded theory methodology was implemented in this study. Semi-structured interviews were undertaken with 14 participants from 12 family units. Data collection and analysis occurred concurrently, allowing a grounded theory to be constructed. Parental decision-making was influenced by many factors, arranged into seven core categories (values, experience, information, motivation, understanding, needs and logistics). Decision-making evolved over time, as parents transformed from 'parent' to 'expert'. The results of this study provide an insight into parental decision-making, which has implications for the support provided to parents by health professionals.

Entities:  

Keywords:  Autism spectrum disorder; Decision-making; Intervention; Parents; Qualitative research

Mesh:

Year:  2018        PMID: 29396727     DOI: 10.1007/s10803-018-3473-5

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  15 in total

1.  The social trajectory of illness: autism in the ultraorthodox community in Israel.

Authors:  Michal Shaked
Journal:  Soc Sci Med       Date:  2005-11       Impact factor: 4.634

2.  Treatment choices in autism spectrum disorder: the role of parental illness perceptions.

Authors:  Nebal N Al Anbar; Roland M Dardennes; Arthur Prado-Netto; Kelley Kaye; Yves Contejean
Journal:  Res Dev Disabil       Date:  2010-03-17

3.  A consideration of medicalisation: choice, engagement and other responsibilities of parents of children with autism spectrum disorder.

Authors:  Kylie Valentine
Journal:  Soc Sci Med       Date:  2010-06-23       Impact factor: 4.634

4.  What is an adequate sample size? Operationalising data saturation for theory-based interview studies.

Authors:  Jill J Francis; Marie Johnston; Clare Robertson; Liz Glidewell; Vikki Entwistle; Martin P Eccles; Jeremy M Grimshaw
Journal:  Psychol Health       Date:  2010-12

5.  Treating the cause of illness rather than the symptoms: parental causal beliefs and treatment choices in autism spectrum disorder.

Authors:  Roland M Dardennes; Nebal N Al Anbar; Arthur Prado-Netto; Kelley Kaye; Yves Contejean; Nesreen N Al Anbar
Journal:  Res Dev Disabil       Date:  2011 May-Jun

6.  Treatments for autism: parental choices and perceptions of change.

Authors:  Anne Bowker; Nadia M D'Angelo; Robin Hicks; Kerry Wells
Journal:  J Autism Dev Disord       Date:  2011-10

Review 7.  A systematic review of early intensive intervention for autism spectrum disorders.

Authors:  Zachary Warren; Melissa L McPheeters; Nila Sathe; Jennifer H Foss-Feig; Allison Glasser; Jeremy Veenstra-Vanderweele
Journal:  Pediatrics       Date:  2011-04-04       Impact factor: 7.124

8.  Internet survey of treatments used by parents of children with autism.

Authors:  Vanessa A Green; Keenan A Pituch; Jonathan Itchon; Aram Choi; Mark O'Reilly; Jeff Sigafoos
Journal:  Res Dev Disabil       Date:  2006 Jan-Feb

9.  Toward objective classification of childhood autism: Childhood Autism Rating Scale (CARS).

Authors:  E Schopler; R J Reichler; R F DeVellis; K Daly
Journal:  J Autism Dev Disord       Date:  1980-03

10.  Living in a world of our own: the experience of parents who have a child with autism.

Authors:  Roberta L Woodgate; Christine Ateah; Loretta Secco
Journal:  Qual Health Res       Date:  2008-08
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  7 in total

1.  Working with Children with Autism Spectrum Disorder in a Medical Setting: Insights from Certified Child Life Specialists.

Authors:  Emily J Jensen; Cheryl Geisthardt; Pamela A Sarigiani
Journal:  J Autism Dev Disord       Date:  2020-01

2.  The effects of early autism intervention on parents and family adaptive functioning.

Authors:  Annette Estes; Deanna M Swain; Katherine E MacDuffie
Journal:  Pediatr Med       Date:  2019-06-12

3.  Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers.

Authors:  Monica L Gordillo; Andrea Chu; Kristin Long
Journal:  J Autism Dev Disord       Date:  2022-01-21

4.  The effect of early autism intervention on parental sense of efficacy in a randomized trial depends on the initial level of parent stress.

Authors:  Annette Estes; Paul Yoder; John McEachin; Gerhard Hellemann; Jeffrey Munson; Jessica Greenson; Marie Rocha; Elizabeth Gardner; Sally J Rogers
Journal:  Autism       Date:  2021-04-16

5.  Parent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder.

Authors:  Kathy Leadbitter; Wendy Macdonald; Carol Taylor; Karen Leneh Buckle
Journal:  Autism       Date:  2020-07-15

6.  Effects of a peer co-facilitated educational programme for parents of children with ADHD: a feasibility randomised controlled trial protocol.

Authors:  Ingunn Mundal; Rolf W Gråwe; Hege Hafstad; Carlos De Las Cuevas; Mariela Loreto Lara-Cabrera
Journal:  BMJ Open       Date:  2020-12-02       Impact factor: 2.692

Review 7.  Pre-symptomatic intervention for autism spectrum disorder (ASD): defining a research agenda.

Authors:  Jason Wolff; Joseph Piven; Rebecca Grzadzinski; Dima Amso; Rebecca Landa; Linda Watson; Michael Guralnick; Lonnie Zwaigenbaum; Gedeon Deák; Annette Estes; Jessica Brian; Kevin Bath; Jed Elison; Leonard Abbeduto
Journal:  J Neurodev Disord       Date:  2021-10-15       Impact factor: 4.025

  7 in total

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