| Literature DB >> 35037811 |
Albine Moser1,2, Irene Korstjens3.
Abstract
This article, the fifth in a series aiming to provide practical guidance for qualitative research in primary care, introduces three qualitative approaches with co-creative characteristics for addressing emerging themes in primary care research: experience-based co-design, user-centred design and community-based participatory research. Co-creation aims to define the (research) problem, develop and implement interventions and evaluate and define (research and practice) outcomes in partnership with patients, family carers, researchers, care professionals and other relevant stakeholders. Experience-based co-design seeks to understand how people experience a health care process or service. User-centred design is an approach to assess, design and develop technological and organisational systems, for example, eHealth, involving end-users in the design and decision-making processes. Community-based participatory research is a collaborative approach addressing a locally relevant health issue. It is often directed at hard-to-reach and vulnerable people. We address the context, what, why, when and how of these co-creative approaches, and their main practical and methodological challenges. We provide examples of empirical studies using these approaches and sources for further reading.Entities:
Keywords: Primary care; co-creation; eHealth; patient and public involvement; qualitative research
Mesh:
Year: 2022 PMID: 35037811 PMCID: PMC8765256 DOI: 10.1080/13814788.2021.2010700
Source DB: PubMed Journal: Eur J Gen Pract ISSN: 1381-4788 Impact factor: 1.904
Figure 1.Phases and teams in experience-based co-design. Based on Bate and Roberts [16].
Figure 2.Phases of community-based participatory research. Based on Israel et al. [44].
Summary of the origin, core principles, goals and key stakeholders of three co-creative qualitative research approaches
| Experience-based co-design | User-centred design | Community-based participatory research | |
|---|---|---|---|
| Origin | Participatory designs, ethnography, phenomenology, design science, management science | Computer science and sociology | Psychology, sociology and pedagogy |
| Core principles | Understanding of patient experience for improving and redesigning health services | In-depth knowledge of what matters to the intended users and their abilities. | Perceived power imbalances, mostly the very vulnerable or minorities are affected |
| Goals | Improved patient experience of health services | eHealth that is acceptable, usable and fits the intended users. | Local and scientific learning |
| Key stakeholder | Patients, family carers, professionals, managers, quality officers, change facilitators, researchers | Patients, family carers, professionals | (Vulnerable) members of the community, health and social care providers, advocate groups, policymakers, researchers |
Five levels of patient involvement. Based on Arnstein's participation ladder [23].
| Information | Researchers provide information to patients and the public. |
| Consultation | Researchers seek views of the patients and the public. |
| Advising | Researchers selectively include patients and the public in decisions and selectively adopt the advice given. |
| Partnership | Research teams share responsibilities in decisions and research activities as equal partners throughout the research process. |
| Citizen control | Patients and the public have complete control over the design, execution and dissemination of research, and researchers are involved on request. |
User-centred design stages: methods for capturing end users' perspectives. Based on Shah and Robinson [35].
| Concept stage | Design stage | Test and trials stage | Deployment stage | |
|---|---|---|---|---|
| Interviews | X | X | X | X |
| Usability tests | X | X | X | X |
| Questionnaires | X | X | X | X |
| User and producer seminars | X | X | X | X |
| Task analysis | X | X | X | |
| Observations | X | X | X | |
| Simulations | X | X | X | |
| Discussion | X | X | ||
| Video recording | X | X | ||
| Human factors approach | X | X | ||
| Use experiment | X | |||
| Focus groups (Delphi) | X | |||
| Users’ feedback | X | |||
| Design sessions | X |