| Literature DB >> 35028999 |
Briana Lees1, Julia Riches1, Louise Mewton2, Elizabeth J Elliott3,4, Steve Allsop5, Nicola Newton1, Sue Thomas6, Lauren J Rice4,7, Smriti Nepal1, Maree Teesson1, Lexine A Stapinski1.
Abstract
Children with foetal alcohol spectrum disorder (FASD) can experience neurodevelopmental, physical, psychological and behavioural impairments that can result in a disrupted school experience. However, educators often have limited knowledge or experience in the identification and support of students with FASD, and there is a critical need for effective tools and resources to ensure students with FASD are supported in their ongoing learning and development. This scoping review aimed to identify and evaluate publicly available educator resources that aid in the identification, and support of students with FASD in primary/elementary school. In addition, educators and FASD experts were consulted to obtain feedback on currently available resources, and key issues and priorities for FASD resources. In total, 124 resources were identified by searching peer-reviewed and grey literature databases, app stores, podcast services and contacting FASD experts. Information was found on identification (23 resources) and support of students with FASD (119 resources). No resources provided information on the referral. Most resources were average (40%) to good (33%) quality, as measured by a composite tool based on adaptions of the NHMRC FORM Framework and iCAHE Guideline Quality Checklist. A minority of resources had been formally evaluated (7%). Review findings and consultations with experts and educators indicate a critical need for referral guides, evidence-based short-format resources and centralised access for school communities to high-quality resources. Taken together, this study has identified key areas for future resource development and research to better support primary school students with FASD.Entities:
Keywords: education; fetal alcohol spectrum disorder; neurodevelopmental disorder; prenatal alcohol exposure; review; teachers
Mesh:
Year: 2022 PMID: 35028999 PMCID: PMC9544813 DOI: 10.1002/hpja.574
Source DB: PubMed Journal: Health Promot J Austr ISSN: 1036-1073
Characteristics of resources included in the review
|
Total (N = 124) |
Identification resources (N = 23) |
Support resources (N = 119) | ||||
|---|---|---|---|---|---|---|
| N | % | N | % | N | % | |
| Resource type | ||||||
| Screening tools | 5 | 4.0 | 5 | 21.7 | ‐ | ‐ |
| Text‐based | 75 | 60.5 | 16 | 69.6 | 75 | 63.0 |
| Longer guides/books | 38 | (50.7) | 14 | (87.5) | 38 | (50.7) |
| Short factsheets/booklets | 22 | (29.3) | ‐ | ‐ | 22 | (29.3) |
| Classroom planning tools | 3 | (4.0) | ‐ | ‐ | 3 | (4.0) |
| Theses | 2 | (2.7) | ‐ | ‐ | 2 | (2.7) |
| Literature reviews | 8 | (10.7) | 2 | (12.5) | 8 | (10.7) |
| Primary research only | 2 | (2.7) | ‐ | ‐ | 2 | (2.7) |
| Videos | 26 | 21.0 | 1 | 4.3 | 26 | 21% |
| Short (<20 min) | 22 | (84.6) | ‐ | ‐ | 22 | (84.6) |
| Longer webinars/lectures | 4 | (15.4) | 1 | (100.0) | 4 | (15.4) |
| Podcast episodes | 10 | 8.1 | ‐ | ‐ | 10 | 8.4 |
| Games for students | 2 | 1.6 | ‐ | ‐ | 2 | 1.7 |
| Professional development | 4 | 3.2 | 1 | 4.3 | 4 | 3.4 |
| Programs/interventions | 2 | 1.6 | ‐ | ‐ | 2 | 1.7 |
| Apps | ‐ | ‐ | ‐ | ‐ | ‐ | ‐ |
| Peer‐reviewed | 27 | 21.8 | 9 | 39.1 | 25 | 21.0 |
| Resource evaluated | 8 | 6.5 | 3 | 13.0 | 5 | 4.2 |
| Country of origin | ||||||
| United States | 51 | 41.1 | 10 | 43.5 | 49 | 41.2 |
| Canada | 44 | 35.5 | 9 | 39.1 | 42 | 35.3 |
| Australia | 12 | 9.7 | 2 | 8.7 | 11 | 9.2 |
| United Kingdom | 11 | 8.9 | 1 | 4.3 | 11 | 9.2 |
| New Zealand | 5 | 4.0 | 1 | 4.3 | 5 | 4.2 |
| Netherlands | 1 | 0.8 | ‐ | ‐ | 1 | 0.8 |
| Cost | ||||||
| Free | 110 | 88.7 | 19 | 82.6 | 105 | 88.2 |
| Low cost (<$100) | 12 | 9.7 | 4 | 17.4 | 12 | 10.1 |
| High cost ($≥$100) | 2 | 1.6 | ‐ | ‐ | 2 | 1.7 |
| Access | ||||||
| Available online | 119 | 96.0 | 21 | 91.3 | 114 | 95.8 |
| Hard copy only | 5 | 4.0 | 2 | 8.7 | 5 | 4.2 |
| Currency | ||||||
| Developed in previous 10 years | 81 | 65.3 | 13 | 56.5 | 77 | 64.7 |
| Developed ≥10 years ago | 43 | 34.7 | 10 | 43.5 | 42 | 35.3 |
Percentage breakdowns for text‐based and video resource sub‐types are provided in brackets. Due to rounding, percentages do not always equate to 100%.
Overall quality of resources
| N | Excellent (%) |
Good (%) |
Average (%) |
Poor (%) |
Very Poor (%) | |
|---|---|---|---|---|---|---|
| Identification resources |
|
|
|
|
|
|
| Screening tools | 5 | 40.0 | — | 60.0 | — |
|
| Text‐based | 16 | 6.3 | 50.0 | 25.0 | 12.5 | 6.3 |
| Longer guides/books | 14 | 7.1 | 37.5 | 25.0 | 12.5 | 6.3 |
| Literature review | 2 | — | 100.0 | — | — | — |
| Videos (webinar) | 1 | — | 100.0 | — | — | — |
| Professional development | 1 | — | — | 100.0 | — | — |
| Support resources |
|
|
|
|
|
|
| Text‐based | 75 | 2.7 | 40.0 | 38.7 | 12.0 |
|
| Longer guides/books | 38 | 2.6 | 44.7 | 34.2 | 13.2 | 5.3 |
| Short factsheets/booklets | 22 | 0.0 | 22.7 | 59.1 | 9.1 | 9.1 |
| Classroom planning tools | 3 | — | — | 33.3 | 33.3 | 33.3 |
| Thesis | 2 | 50.0 | 50.0 | — | — | — |
| Literature reviews | 8 | — | 75.0 | 12.5 | 12.5 | — |
| Primary research only | 2 | — | 50.0 | 50.0 | — | — |
| Videos | 26 | — | 15.4 | 42.3 | 3.8 | 38.5 |
| Short videos | 22 | — | 9.1 | 40.9 | 4.5 | 45.5 |
| Webinars / lectures | 4 | — | 50.0 | 50.0 | — | — |
| Podcasts | 10 | — | 20.0 | 60.0 | 20.0 | — |
| Professional development | 4 | — | 75.0 | 25.0 | — | — |
| Programs | 2 | 50.0 | 50.0 | — | — | — |
The bold values indicate the overall quality scores for each resource type (identification and support).
FIGURE 1Resources included in the review
FIGURE 2Summary of appraisal scores for each quality component. Note: A = excellent rating; B = good rating; C = satisfactory rating; D = poor rating
FASD indicators and common presentations in the school setting
| Domain | Presentation in a school setting |
|---|---|
| Physical motor skills |
Difficulties in hand/eye and total body coordination, eg:
Cutting with scissors, colouring or sewing. Letter formation, holding pencil, slow writing pace. Hitting or catching a ball. Tying shoes. |
| Sensory processing (sensory‐motor integration and processing pace) |
Slow processing pace:
Require extended period to take in visual and auditory information and may take minutes to respond. Miss or overlook relevant information due to slow rate of sensory intake. Visuo‐spatial difficulties:
Misjudging personal boundaries (eg, stand close to other students). Struggles to remember the locations of the classrooms, misplaces items. Difficulties planning the layout of work on a page (eg, writing in the centre of the page instead of on the upper, left). Difficulties in copying information from the board because of visual distractions in the classroom. |
| Cognition |
Cognitive difficulties:
Learning difficulties, poor school performance. Poor impulse control and executive functions. Poor common sense, act without thinking. Do not recognise consequences. Low capacity for abstract thinking. Frustrated or resistant to shift to a new task. Struggles to shift strategy for a new type of problem. Repeatedly makes the same errors on a task. Poor judgement and organisation. Struggles to make a plan, identify goals or predict possible outcomes. Frequently asks what comes next. Difficulties synthesising information to form a conclusion. |
| Language and communication |
Deficits in higher‐level receptive and expressive language, resulting in:
Problems following instructions or conversations. Comprehension difficulties. Difficulty in finding words to describe their feelings. Misuse and poor social timing of figurative language, jokes and sarcasm. Difficulties reading and responding to nonverbal cues and body language. Talks better than they understand, eg, makes unrelated remarks to the discussion. Storytelling that is hard to follow and lacks a point. |
| Academic achievement/developmental stage |
Common areas of impacted academic achievement:
Math Science Vocabulary Arts Earlier developmental level of functioning:
Interests and play are young for their age. Prefers younger friends. |
| Memory |
Problems with encoding, storage, and retrieval, eg:
Have remembered or done something many times before, but forget on another given day. Educator provides three instructions, and they only remember to do the first part. Needs to be retaught the same thing multiple times. |
| Self‐regulation/attention deficit/hyperactivity |
Difficulty in maintaining focus (easily distracted by visuals/auditory) and self‐regulating when overstimulated or tired, resulting in:
Struggles to sit still in class. Difficulties in stopping the action when asked to do so. Can seem defiant when asked to shift to a calm state. Often works in spurts, requiring assistance to complete a task. |
| Adaptive behaviour |
Decreased capacity to develop new social, practical, and conceptual skills that would assist them in daily living. |
| Secondary behavioural characteristics |
Behaviours that can develop over time as a result of a “poor fit” between the person's needs and the school environment:
Fatigue. Anxious, depressed, withdrawn. Lonely, isolated, avoidant. Easily frustrated, aggressive, destructive, argumentative. Easily manipulated by others. |
These FASD indicators are also indicators of other presentations, such as attention deficit disorder and oppositional defiant disorder. , , ,
FIGURE 3Effective classroom strategies to support students with FASD (total resources = 12)
FIGURE 4Evidence‐based skills that improve behavioural outcomes for students with FASD (total resources = 12)