Literature DB >> 34914921

International data governance for neuroscience.

Damian O Eke1, Amy Bernard2, Jan G Bjaalie3, Ricardo Chavarriaga4, Takashi Hanakawa5, Anthony J Hannan6, Sean L Hill7, Maryann E Martone8, Agnes McMahon2, Oliver Ruebel9, Sharon Crook10, Edda Thiels11, Franco Pestilli12.   

Abstract

As neuroscience projects increase in scale and cross international borders, different ethical principles, national and international laws, regulations, and policies for data sharing must be considered. These concerns are part of what is collectively called data governance. Whereas neuroscience data transcend borders, data governance is typically constrained within geopolitical boundaries. An international data governance framework and accompanying infrastructure can assist investigators, institutions, data repositories, and funders with navigating disparate policies. Here, we propose principles and operational considerations for how data governance in neuroscience can be navigated at an international scale and highlight gaps, challenges, and opportunities in a global brain data ecosystem. We consider how to approach data governance in a way that balances data protection requirements and the need for open science, so as to promote international collaboration through federated constructs such as the International Brain Initiative (IBI).
Copyright © 2021 The Authors. Published by Elsevier Inc. All rights reserved.

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Year:  2021        PMID: 34914921      PMCID: PMC8857067          DOI: 10.1016/j.neuron.2021.11.017

Source DB:  PubMed          Journal:  Neuron        ISSN: 0896-6273            Impact factor:   18.688


  52 in total

1.  Neurodata Without Borders: Creating a Common Data Format for Neurophysiology.

Authors:  Jeffery L Teeters; Keith Godfrey; Rob Young; Chinh Dang; Claudia Friedsam; Barry Wark; Hiroki Asari; Simon Peron; Nuo Li; Adrien Peyrache; Gennady Denisov; Joshua H Siegle; Shawn R Olsen; Christopher Martin; Miyoung Chun; Shreejoy Tripathy; Timothy J Blanche; Kenneth Harris; György Buzsáki; Christof Koch; Markus Meister; Karel Svoboda; Friedrich T Sommer
Journal:  Neuron       Date:  2015-11-18       Impact factor: 17.173

Review 2.  The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.

Authors:  Brent Daniel Mittelstadt; Luciano Floridi
Journal:  Sci Eng Ethics       Date:  2015-05-23       Impact factor: 3.525

3.  Toward an Integration of Deep Learning and Neuroscience.

Authors:  Adam H Marblestone; Greg Wayne; Konrad P Kording
Journal:  Front Comput Neurosci       Date:  2016-09-14       Impact factor: 2.380

4.  Oversight of direct-to-consumer neurotechnologies.

Authors:  Anna Wexler; Peter B Reiner
Journal:  Science       Date:  2019-01-18       Impact factor: 47.728

5.  Neural correlates of behavioral preference for culturally familiar drinks.

Authors:  Samuel M McClure; Jian Li; Damon Tomlin; Kim S Cypert; Latané M Montague; P Read Montague
Journal:  Neuron       Date:  2004-10-14       Impact factor: 17.173

6.  Reproducibility in Computational Neuroscience Models and Simulations.

Authors:  Robert A McDougal; Anna S Bulanova; William W Lytton
Journal:  IEEE Trans Biomed Eng       Date:  2016-03-08       Impact factor: 4.538

Review 7.  Best practices in data analysis and sharing in neuroimaging using MRI.

Authors:  Thomas E Nichols; Samir Das; Simon B Eickhoff; Alan C Evans; Tristan Glatard; Michael Hanke; Nikolaus Kriegeskorte; Michael P Milham; Russell A Poldrack; Jean-Baptiste Poline; Erika Proal; Bertrand Thirion; David C Van Essen; Tonya White; B T Thomas Yeo
Journal:  Nat Neurosci       Date:  2017-02-23       Impact factor: 24.884

8.  The Human Brain Project-Synergy between neuroscience, computing, informatics, and brain-inspired technologies.

Authors:  Katrin Amunts; Alois C Knoll; Thomas Lippert; Cyriel M A Pennartz; Philippe Ryvlin; Alain Destexhe; Viktor K Jirsa; Egidio D'Angelo; Jan G Bjaalie
Journal:  PLoS Biol       Date:  2019-07-01       Impact factor: 8.029

Review 9.  The spectrum of data sharing policies in neuroimaging data repositories.

Authors:  Anita S Jwa; Russell A Poldrack
Journal:  Hum Brain Mapp       Date:  2022-02-10       Impact factor: 5.399

10.  The FAIR Guiding Principles for scientific data management and stewardship.

Authors:  Mark D Wilkinson; Michel Dumontier; I Jsbrand Jan Aalbersberg; Gabrielle Appleton; Myles Axton; Arie Baak; Niklas Blomberg; Jan-Willem Boiten; Luiz Bonino da Silva Santos; Philip E Bourne; Jildau Bouwman; Anthony J Brookes; Tim Clark; Mercè Crosas; Ingrid Dillo; Olivier Dumon; Scott Edmunds; Chris T Evelo; Richard Finkers; Alejandra Gonzalez-Beltran; Alasdair J G Gray; Paul Groth; Carole Goble; Jeffrey S Grethe; Jaap Heringa; Peter A C 't Hoen; Rob Hooft; Tobias Kuhn; Ruben Kok; Joost Kok; Scott J Lusher; Maryann E Martone; Albert Mons; Abel L Packer; Bengt Persson; Philippe Rocca-Serra; Marco Roos; Rene van Schaik; Susanna-Assunta Sansone; Erik Schultes; Thierry Sengstag; Ted Slater; George Strawn; Morris A Swertz; Mark Thompson; Johan van der Lei; Erik van Mulligen; Jan Velterop; Andra Waagmeester; Peter Wittenburg; Katherine Wolstencroft; Jun Zhao; Barend Mons
Journal:  Sci Data       Date:  2016-03-15       Impact factor: 6.444

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  2 in total

1.  Survey of Investigators About Sharing Human Research Data in the Neurosciences.

Authors:  Saskia Hendriks; Khara M Ramos; Christine Grady
Journal:  Neurology       Date:  2022-08-18       Impact factor: 11.800

2.  The Neurodata Without Borders ecosystem for neurophysiological data science.

Authors:  Oliver Rübel; Andrew Tritt; Ryan Ly; Benjamin K Dichter; Satrajit Ghosh; Lawrence Niu; Pamela Baker; Ivan Soltesz; Lydia Ng; Karel Svoboda; Loren Frank; Kristofer E Bouchard
Journal:  Elife       Date:  2022-10-04       Impact factor: 8.713

  2 in total

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