| Literature DB >> 34766909 |
Kate Lawler1,2, Caroline Earley1,2, Ladislav Timulak1, Angel Enrique1,2, Derek Richards1,2.
Abstract
BACKGROUND: Treatment dropout continues to be reported from internet-delivered cognitive behavioral therapy (iCBT) interventions, and lower completion rates are generally associated with lower treatment effect sizes. However, evidence is emerging to suggest that completion of a predefined number of modules is not always necessary for clinical benefit or consideration of the needs of each individual patient.Entities:
Keywords: anxiety; depression; dropout; iCBT; internet interventions
Year: 2021 PMID: 34766909 PMCID: PMC8663602 DOI: 10.2196/26221
Source DB: PubMed Journal: JMIR Form Res ISSN: 2561-326X
Characteristics of study participantsa.
| Participant identifier | Gender | Age (years) | Mini-International Neuropsychiatric Interview diagnosis at baseline | iCBTb program | Modules completed, n (%) | Reviews received | Reported reason for change in motivation |
| P1 | Female | 24-26 | Depression current or past | Space from Depression—8 modules (1 unlockable) | 1 (13) | 4 | Negative reason (not in a receptive frame of mind, contextual obstacles, and iCBT not considered to be personally fitting) |
| P2 | Female | 50-53 | Depression current or past, panic disorder, and GADc | Space from Depression—8 modules (1 unlockable) | 4 (50) | 5 | Negative reason (not in a receptive frame of mind, contextual obstacles, and iCBT not considered to be personally fitting) |
| P3 | Female | 34-36 | No diagnosis | Space from Depression and Anxiety—10 modules (2 unlockable) | 3 (30) | 5 | Felt ready to leave treatment early |
| P4 | Female | 24-26 | Depression current or past | Space from Depression—8 modules (1 unlockable) | 7 (88) | 3 | Felt ready to leave treatment early |
| P5 | Male | 30-33 | GAD | Space from Depression and Anxiety—10 modules (2 unlockable) | 5 (50) | 3 | Negative reason (iCBT not considered to be personally fitting) |
| P6 | Male | 37-39 | Depression current or past | Space from Depression and Anxiety—10 modules (2 unlockable) | 5 (50) | 4 | Negative reason (iCBT not considered to be personally fitting) |
| P7 | Male | 27-29 | Depression current or past and GAD | Space from Depression and Anxiety—10 modules (2 unlockable) | 1 (10) | 3 | Negative reason (not in a receptive frame of mind) |
| P8 | Male | 40-43 | Depression current | Space from Depression and Anxiety—10 modules (2 unlockable) | 7 (70) | 2 | Did not report |
| P9 | Female | 44-46 | Panic disorder and GAD | Space from GAD–8 modules (1 unlockable) | 4 (50) | 2 | Negative reason (not in a receptive frame of mind and iCBT not considered to be personally fitting) |
| P10 | Male | 44-46 | Depression current or past, GAD, and SADd | Space from Depression and Anxiety—10 modules (2 unlockable) | 3 (30) | 1 | Negative reason (iCBT not considered to be personally fitting) |
| P11 | Male | 20-23 | Depression past | Space from Depression and Anxiety—10 modules (2 unlockable) | 4 (40) | 4 | Felt ready to leave treatment early |
| P12 | Male | 20-23 | GAD | Space from Depression—8 modules | 3 (38) | 5 | Negative reason (contextual obstacles, and iCBT not considered to be personally fitting) |
| P13 | Female | 37-39 | No diagnosis | Space from Depression and Anxiety—10 modules (2 unlockable) | 1 (10) | 4 | Did not report |
| P14 | Female | 34-36 | GAD | Space from GAD—8 modules (1 unlockable) | 3 (38) | 5 | Felt ready to leave treatment early |
| P15 | Female | 20-23 | Depression current, panic disorder, GAD, and SAD | Space from GAD—8 modules (1 unlockable) | 2 (25) | 1 | Felt ready to leave treatment early |
aParticipants have been allocated participant identifiers P1-P15 to protect their anonymity.
biCBT: internet-delivered cognitive behavioral therapy.
cGAD: generalized anxiety disorder.
dSAD: social anxiety disorder.
Figure 1Stages of formation of interview schedule. Author initials are provided parenthetically.
Participants’ relationships to technology based on their reported reasons for their change in motivation.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |
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| Being familiar with technology | General | General |
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| Sense of privacy and anonymity on the web | General | General |
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| Good memorability | General | Typical |
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| Trusted the platform | Typical | Typical |
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| Easy-to-use web-based platform | Typical | Typical |
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| Spends too much time on the web | None | Variant |
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| User dashboard not clear enough | None | Variant |
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| Layout too structured | None | Variant |
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| Difficulty figuring out how to use it | Variant | Variant |
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| Poor computer literacy | Variant | None |
aOnly 13 participants (5/13, 38% felt ready to leave treatment early, and 8/13, 62% had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
bGeneral results apply to all cases (ie, 5/5 and 8/8), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8)
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered to be personally fitting.
Participants’ motivation to start treatment based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |
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| Symptoms of psychological distress | General | General |
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| Stressful life events | Variant | Typical |
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.
Participants’ background knowledge and attitudes toward iCBTa based on their reported reasons for their change in motivationb.
| Domain and categories | Felt ready to leave treatment early (n=5)b,c | Negative reason for their change in motivation (n=8)b,c,d | |||
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| Belief that iCBT could help | Typical | Typical | ||
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| Willingness to try it | Typical | Variant | ||
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| Had an understanding of CBTe | Variant | Variant | ||
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| Trusted provider of web-based treatment | Variant | Variant | ||
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| No prior knowledge or awareness of CBT | Typical | Variant | ||
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| Skeptical of treatment approach | Typical | Variant | ||
aiCBT: internet-delivered cognitive behavioral therapy.
bGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
cOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
dReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting
eCBT: cognitive behavioral therapy.
Participants’ use of the program based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |||
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| Could use it wherever and whenever needed | General | General | ||
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| Productive and regular use | General | Variant | ||
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| Using the program for own benefit | Typical | Variant | ||
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| Could not prioritize time to use it | Typical | Typical | ||
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| Using it out of a sense of obligation rather than for a positive outcome | Variant | Typical | ||
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| Using it when feeling low | Variant | Typical | ||
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| Kept forgetting about the program and appointments | Variant | Variant | ||
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.
Participants’ perceived changes because of the intervention based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |
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| Symptom improvement | General | Typical |
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| Applying learned CBTd techniques in everyday life | Typical | Typical |
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| Developed a knowledge of CBT treatment | Typical | Variant |
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| Increased awareness or insight | Variant | Variant |
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| Encouraged to get the help needed | None | Variant |
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.
dCBT: cognitive behavioral therapy.
Participants’ engagement with content based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |
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| Useful tools and exercises | Typical | General |
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| Reflecting back on completed work was beneficial | Typical | Variant |
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| Content relevant and relatable to concerns | Typical | Variant |
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| Manageable workload | Variant | Variant |
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| Reading and writing provided clarity | Variant | Variant |
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| Writing about thoughts and feelings felt therapeutic | Typical | Variant |
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| Felt supported by the program content | Typical | Variant |
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| Information laid out clearly and concisely | Variant | Variant |
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| Felt like too much work | Variant | Variant |
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| Disliked reading and writing | Variant | Variant |
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| Content was too generic at times | Variant | Variant |
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| Did not like the personal stories | Variant | Variant |
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| Content was boring | None | Variant |
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| Content exacerbated symptoms | None | Variant |
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| Reflecting of no benefit | None | Variant |
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| Difficult to understand | None | Variant |
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| Questionnaires felt pointless | None | Variant |
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| Did not like the mood monitor | Variant | None |
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| Content felt disconnected from one section to the next | None | Variant |
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.
Participants’ experience interacting with supporters based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |
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| Felt supported by and connected to supporter | General | Variant |
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| Supporter tailored treatment to needs | Typical | Typical |
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| Supporter provided a good introduction and explanation of treatment | Variant | Typical |
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| Felt able to speak freely | Typical | Variant |
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| Supporter encouraged engagement | Typical | Variant |
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| Benefitted from having a supporter | Typical | Variant |
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| Supporter demonstrated a good level of expertise | Typical | Variant |
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| Supporter discussed treatment goals | Variant | Variant |
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| Supporter offered understanding | Variant | Variant |
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| Support felt scripted and impersonal | None | Variant |
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| Had no sense of connection with supporter | None | Variant |
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| No feedback from supporter on work completed or messages sent | Variant | Variant |
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| Supporter never discussed treatment goals and expectations | None | Variant |
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| Lack of empathy and understanding from supporter | None | Variant |
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| Lack of guidance from supporter | None | Variant |
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| Felt like supporter did not care | None | Variant |
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| Supporter never made contact | None | Variant |
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| Did not feel comfortable talking with supporter | None | Variant |
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4/5 and 5-7/8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.
Participants’ experience of web-based communication based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |||
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| Frequency of web-based communication worked well | Typical | Typical | ||
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| Liked communicating web-based with supporter | Typical | Variant | ||
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| Easier to open up on the web and feeling of disinhibition | Typical | Variant | ||
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| Preference for face-to-face communication | None | Typical | ||
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| Needed more contact with supporter | Variant | Variant | ||
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| Communicating on the web was too formal and structured | None | Typical | ||
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| Lack of instantaneous responding with supporter | None | Variant | ||
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| Could not open up to a computer | None | Variant | ||
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| Web-based communication felt too anonymous | None | Variant | ||
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.
Participants’ experience of termination of the supported period based on their reported reasons for their change in motivationa.
| Domain and categories | Felt ready to leave treatment early (n=5)a,b | Negative reason for their change in motivation (n=8)a,b,c | |||
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| Feels able to go back to treatment if needed | Typical | Typical | ||
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| Happy with how support was terminated | General | None | ||
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| Had a conversation with supporter about finishing treatment | Variant | Variant | ||
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| No longer a priority, just let it go | Variant | Variant | ||
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| Support stopped unexpectedly, felt abandoned | None | Variant | ||
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| Felt relieved that support stopped as it was a negative experience | None | Variant | ||
aGeneral results apply to all cases (ie, 5/5 and 8/8 cases), typical results apply to at least half of the cases (ie, 3-4 of 5 and 5-7 of 8 cases), and variant results apply to fewer than half of the cases (ie, 1-2 of 5 and 1-4 of 8 cases).
bOnly 13 participants (5/13, 38% participants felt ready to leave treatment early, and 8/13, 62% participants had negative reasons for their change in motivation) reported on the reasons for their change in motivation.
cReported negative reasons for change in motivation to continue engaging with treatment are not being in a receptive frame of mind, contextual obstacles, and internet-delivered cognitive behavioral therapy not considered personally fitting.