Literature DB >> 34632254

Patients' Expectations of Benefits From Large-Panel Genomic Tumor Testing in Rural Community Oncology Practices.

Eric C Anderson1,2, John DiPalazzo1, Emily Edelman3, Petra Helbig3, Kate Reed3, Susan Miesfeldt4, Christian Thomas5, F Lee Lucas1, Anny T H R Fenton1, Andrey Antov3, Michael J Hall6, J Scott Roberts7, Jens Rueter3, Paul K J Han1,2,8.   

Abstract

Large-panel genomic tumor testing (GTT) is an emerging technology that promises to make cancer treatment more precise. Because GTT is novel and complex, patients may have unrealistic expectations and limited knowledge of its benefits. These problems may limit the clinical value of GTT, but their prevalence and associated factors have not been explored.
METHODS: Patients with cancer enrolled in a large initiative to disseminate GTT in community oncology practices completed surveys assessing their expectations, knowledge, and attitudes about GTT. The study sample (N = 1,139) consisted of patients with a range of cancer types (22% gynecologic, 14% lung, 10% colon, 10% breast, and 46% other malignancies) and cancer stages (4% stage I, 3% stage II, 15% stage III, and 74% stage IV). Mean age was 64 years (standard deviation = 11); 668 (59%) were women; 71% had no college degree; 57% came from households with less than $50,000 US dollars household income; and 73% lived in a rural area.
RESULTS: Generally, patients had high expectations that they would benefit from GTT (M = 2.81 on 0-4 scale) and positive attitudes toward it (M = 2.98 on 0-4 scale). Patients also had relatively poor knowledge about GTT (48% correct answers on an objective test of GTT knowledge). Greater expectations for GTT were associated with lower knowledge (b = -0.46; P < .001), more positive attitudes (b = 0.40; P < .001), and lower education (b = -0.53; P < .001).
CONCLUSION: This research suggests patients have high expectations that they will benefit from GTT, which is associated with low knowledge, positive attitudes, and low education. More research is needed to understand the concordance between expectations and actual clinical outcomes.
© 2021 by American Society of Clinical Oncology.

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Year:  2021        PMID: 34632254      PMCID: PMC8492376          DOI: 10.1200/PO.21.00235

Source DB:  PubMed          Journal:  JCO Precis Oncol        ISSN: 2473-4284


  22 in total

1.  Genomic medicine: too great expectations?

Authors:  P P O'Rourke
Journal:  Clin Pharmacol Ther       Date:  2013-08       Impact factor: 6.875

2.  Cancer patients' views and understanding of genome sequencing: a qualitative study.

Authors:  Nicci Bartley; Megan Best; Chris Jacobs; Ilona Juraskova; Ainsley J Newson; Jacqueline Savard; Bettina Meiser; Mandy L Ballinger; David M Thomas; Barbara Biesecker; Phyllis Butow
Journal:  J Med Genet       Date:  2020-01-24       Impact factor: 6.318

3.  The influence of uncertainty and uncertainty tolerance on attitudes and self-efficacy about genomic tumor testing.

Authors:  Eric C Anderson; Alexandra Hinton; Christine W Lary; Tania Strout; Andrey Antov; Emily Edelman; Petra Helbig; Kate Reed; Jens Rueter; Paul K J Han
Journal:  Psychol Health Med       Date:  2020-05-19       Impact factor: 2.423

4.  Facilitating informed decisions regarding microsatellite instability testing among high-risk individuals diagnosed with colorectal cancer.

Authors:  Sharon L Manne; Neal J Meropol; David S Weinberg; Hetal Vig; Zohra Ali-Khan Catts; Cheri Manning; Eric Ross; Kristen Shannon; Daniel C Chung
Journal:  J Clin Oncol       Date:  2010-02-08       Impact factor: 44.544

5.  Was it worth it? Patients' perspectives on the perceived value of genomic-based individualized medicine.

Authors:  Colin Me Halverson; Kristin E Clift; Jennifer B McCormick
Journal:  J Community Genet       Date:  2016-02-09

6.  Spinning the Genome: Why Science Hype Matters.

Authors:  Timothy Caulfield
Journal:  Perspect Biol Med       Date:  2018       Impact factor: 1.416

7.  The ClinSeq Project: piloting large-scale genome sequencing for research in genomic medicine.

Authors:  Leslie G Biesecker; James C Mullikin; Flavia M Facio; Clesson Turner; Praveen F Cherukuri; Robert W Blakesley; Gerard G Bouffard; Peter S Chines; Pedro Cruz; Nancy F Hansen; Jamie K Teer; Baishali Maskeri; Alice C Young; Teri A Manolio; Alexander F Wilson; Toren Finkel; Paul Hwang; Andrew Arai; Alan T Remaley; Vandana Sachdev; Robert Shamburek; Richard O Cannon; Eric D Green
Journal:  Genome Res       Date:  2009-07-14       Impact factor: 9.043

8.  Knowledge and attitudes about microsatellite instability testing among high-risk individuals diagnosed with colorectal cancer.

Authors:  Sharon L Manne; Daniel C Chung; David S Weinberg; Hetal S Vig; Zohra Catts; Melissa Klein Cabral; Kristen Shannon; Neal J Meropol
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2007-10       Impact factor: 4.254

9.  Precision oncology: separating the wheat from the chaff.

Authors:  Jordi Remon; Rodrigo Dienstmann
Journal:  ESMO Open       Date:  2018-10-30

10.  Patient perspectives on molecular tumor profiling: "Why wouldn't you?"

Authors:  Megan C Best; Nicole Bartley; Chris Jacobs; Ilona Juraskova; David Goldstein; Ainsley J Newson; Jacqueline Savard; Bettina Meiser; Mandy Ballinger; Christine Napier; David Thomas; Barbara Biesecker; Phyllis Butow
Journal:  BMC Cancer       Date:  2019-07-31       Impact factor: 4.430

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