Literature DB >> 34537914

Family quality of life for families of children with disabilities in African contexts: a scoping review.

Julia Jansen-van Vuuren1, Reshma Parvin Nuri2, Ansha Nega2, Beata Batorowicz2, Rosemary Lysaght2, Heather Michelle Aldersey2.   

Abstract

BACKGROUND: Family Quality of Life (FQOL) is an important outcome for families of children with disabilities and is influenced by context and culture. Minimal research explores FQOL in African contexts.
PURPOSE: This scoping review identifies factors contributing to FQOL for families of children with disabilities in African contexts.
METHOD: We were guided by Arksey and O'Malley's scoping review framework, searching for research papers from the following electronic databases: CINAHL, Embase, Medline, Global Health, and PsycINFO. Using pre-determined eligibility criteria, two authors independently reviewed articles for inclusion via Covidence, a reference manager that facilitates blind reviewing. Two other authors independently extracted data from studies using a data-charting form based on Zuna and colleagues' FQOL framework. Reviewers met regularly for discussion to reach consensus.
RESULTS: Fifty-three articles met the inclusion criteria, and findings demonstrated a broad variety of factors contributing to FQOL within the FQOL framework related to family unit factors, individual member factors, and external support factors. We found that poverty, stigma, and spirituality were particularly prominent factors affecting FQOL negatively and positively in African contexts.
CONCLUSION: Whilst there are universal factors that contribute to FQOL, recognising the influence of context-specific factors (i.e. poverty, stigma, spirituality) is important in order to provide effective, culturally relevant support that enhances FQOL for families of children with disabilities in African contexts.
© 2021. The Author(s), under exclusive licence to Springer Nature Switzerland AG.

Entities:  

Keywords:  Africa; Children with disabilities; Family; Family quality of life

Mesh:

Year:  2021        PMID: 34537914     DOI: 10.1007/s11136-021-02994-z

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  45 in total

Review 1.  Review: the development of family quality of life concepts and measures.

Authors:  P S Samuel; F Rillotta; I Brown
Journal:  J Intellect Disabil Res       Date:  2011-12-12

2.  Family quality of life of Australian families with a member with an intellectual/developmental disability.

Authors:  F Rillotta; N Kirby; J Shearer; T Nettelbeck
Journal:  J Intellect Disabil Res       Date:  2011-08-30

3.  Types of support to families of children with disabilities and their influence on family quality of life.

Authors:  Clarissa Altina Cunha de Araújo; Berta Paz-Lourido; Sebastià Verger Gelabert
Journal:  Cien Saude Colet       Date:  2016-10

4.  Obligation to family during times of transition: care, support and the response to HIV and AIDS in rural South Africa.

Authors:  Lucia Knight; Victoria Hosegood; Ian M Timæus
Journal:  AIDS Care       Date:  2016-06-10

5.  Family support and family and child-related outcomes among families impacted by disability in low- and middle-income countries: A scoping review.

Authors:  Reshma Parvin Nuri; Beata Batorowicz; Heather Michelle Aldersey
Journal:  J Child Health Care       Date:  2019-10-24       Impact factor: 1.979

6.  Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder.

Authors:  Liezl Schlebusch; Shakila Dada; Alecia E Samuels
Journal:  J Autism Dev Disord       Date:  2017-07

Review 7.  Creating supportive connections: a decade of research on support for families of children with disabilities.

Authors:  Heather E Canary
Journal:  Health Commun       Date:  2008-09

8.  Family Quality of Life and Its Correlates Among Parents of Children and Adults With Intellectual Disability.

Authors:  Thomas L Boehm; Erik W Carter
Journal:  Am J Intellect Dev Disabil       Date:  2019-03

9.  Intellectual disability in Africa: implications for research and service development.

Authors:  Judith Anne McKenzie; Roy McConkey; Colleen Adnams
Journal:  Disabil Rehabil       Date:  2013-01-25       Impact factor: 3.033

10.  Family quality of life following early identification of deafness.

Authors:  Carla W Jackson; Jane R Wegner; Ann P Turnbull
Journal:  Lang Speech Hear Serv Sch       Date:  2009-09-15       Impact factor: 2.983

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