Literature DB >> 28374210

Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder.

Liezl Schlebusch1, Shakila Dada2, Alecia E Samuels2,3.   

Abstract

This article describes the family quality of life among families who are raising a young child with autism spectrum disorder. Survey research was conducted with 180 families of children with autism spectrum disorder who were receiving disability-related services in the Gauteng province of South Africa. The principle measure used was the Beach Center Family Quality of Life Scale to assess five subdomains: family interaction, parenting, emotional well-being, material/physical well-being, and disability-related support. Results indicated that families felt the most satisfied with disability-related support and the least satisfied with the family's emotional well-being. Family income, family type, and the severity level of autism were significantly associated with how satisfied families felt about their quality of life.

Entities:  

Keywords:  Appraisal of family income; Autism; Child characteristics; Emotional well-being; Family characteristics; Unified theory of family quality of life

Mesh:

Year:  2017        PMID: 28374210     DOI: 10.1007/s10803-017-3102-8

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  26 in total

Review 1.  The personal costs of caring for a child with a disability: a review of the literature.

Authors:  Donna Anderson; Serge Dumont; Philip Jacobs; Leila Azzaria
Journal:  Public Health Rep       Date:  2007 Jan-Feb       Impact factor: 2.792

Review 2.  Family-focused autism spectrum disorder research: a review of the utility of family systems approaches.

Authors:  Elizabeth K Cridland; Sandra C Jones; Christopher A Magee; Peter Caputi
Journal:  Autism       Date:  2013-10-03

3.  Autism spectrum disorders-Global challenges and local opportunities.

Authors:  Susan Malcolm-Smith; Michelle Hoogenhout; Natalia Ing; Kevin Gf Thomas; Petrus de Vries
Journal:  J Child Adolesc Ment Health       Date:  2013

4.  Family quality of life: adaptation to Spanish population of several family support questionnaires.

Authors:  A Balcells-Balcells; C Giné; J Guàrdia-Olmos; J A Summers
Journal:  J Intellect Disabil Res       Date:  2010-12-03

5.  Family quality of life of Chinese families of children with intellectual disabilities.

Authors:  X Hu; M Wang; X Fei
Journal:  J Intellect Disabil Res       Date:  2011-03-03

6.  The changing landscape of disability in childhood.

Authors:  Neal Halfon; Amy Houtrow; Kandyce Larson; Paul W Newacheck
Journal:  Future Child       Date:  2012

7.  Understanding Hong Kong Chinese Families' Experiences of an Autism/ASD Diagnosis.

Authors:  Kathleen Tait; Francis Fung; Aihua Hu; Naomi Sweller; Wei Wang
Journal:  J Autism Dev Disord       Date:  2016-04

8.  Stress and family quality of life in parents of children with autism spectrum disorder: parent gender and the double ABCX model.

Authors:  Rebecca L McStay; David Trembath; Cheryl Dissanayake
Journal:  J Autism Dev Disord       Date:  2014-12

9.  Family quality of life following early identification of deafness.

Authors:  Carla W Jackson; Jane R Wegner; Ann P Turnbull
Journal:  Lang Speech Hear Serv Sch       Date:  2009-09-15       Impact factor: 2.983

10.  Children with autism: quality of life and parental concerns.

Authors:  Li-Ching Lee; Rebecca A Harrington; Brian B Louie; Craig J Newschaffer
Journal:  J Autism Dev Disord       Date:  2007-12-06
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  14 in total

Review 1.  Family quality of life for families of children with disabilities in African contexts: a scoping review.

Authors:  Julia Jansen-van Vuuren; Reshma Parvin Nuri; Ansha Nega; Beata Batorowicz; Rosemary Lysaght; Heather Michelle Aldersey
Journal:  Qual Life Res       Date:  2021-09-18       Impact factor: 4.147

2.  The Diagnostic Period for Autism: Risk and Protective Factors for Family Quality of Life in Early Childhood.

Authors:  Mélina Rivard; Diane Morin; Patrick Coulombe; Marjorie Morin; Catherine Mello
Journal:  J Autism Dev Disord       Date:  2022-08-02

3.  Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability.

Authors:  Xianmei Lei; Jiří Kantor
Journal:  Int J Dev Disabil       Date:  2020-08-12

4.  Quality of Life among Mothers of High Functioning Autism Spectrum Disorder (HFASD)Adolescents.

Authors:  Nur Saadah Mohamad Aun; Siti Marziah Zakaria; Abdul Rahman Ahmad Badayai; Idayu Badilla Idris; Tuti Iryani Mohd Daud; Shima Dyana Mohd Fazree
Journal:  Int J Environ Res Public Health       Date:  2022-05-30       Impact factor: 4.614

5.  What do parents of children with autism spectrum disorder think about their quality of life? A qualitative study.

Authors:  Samaneh Abolkheirian; Roya Sadeghi; Davoud Shojaeizadeh
Journal:  J Educ Health Promot       Date:  2022-06-11

6.  Caregiver descriptions of joint activity routines with young children with autism spectrum disorder in South Africa.

Authors:  Kevin Ramseur; Petrus J de Vries; Jessy Guler; Nokuthula Shabalala; Noleen Seris; Lauren Franz
Journal:  Pediatr Med       Date:  2019-03-13

7.  Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder.

Authors:  Börte Gürbüz Özgür; Hatice Aksu; Erhan Eser
Journal:  Indian J Psychiatry       Date:  2018 Jul-Sep       Impact factor: 1.759

8.  Needs of families of children with intellectual and developmental disabilities in Addis Ababa.

Authors:  Heather M Aldersey; Ansha N Ahmed; Haben N Tesfamichael; Natasha Lotoski
Journal:  Afr J Disabil       Date:  2020-12-09

9.  Cross-Cultural Revision and Psychometric Properties of the Chinese Version of the Autism Spectrum Rating Scale (2-5 Years).

Authors:  Hao Zhou; Chunpei Li; Xuerong Luo; Lijie Wu; Yi Huang; Lan Zhang; Xiaobing Zou; Xiu Xu; Yong-Hui Jiang; Weili Yan; Yi Wang
Journal:  Front Neurol       Date:  2018-06-27       Impact factor: 4.003

10.  State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review.

Authors:  Carmen Francisco Mora; Alba Ibáñez; Anna Balcells-Balcells
Journal:  Int J Environ Res Public Health       Date:  2020-10-02       Impact factor: 3.390

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