Literature DB >> 27783785

Types of support to families of children with disabilities and their influence on family quality of life.

Clarissa Altina Cunha de Araújo1, Berta Paz-Lourido1, Sebastià Verger Gelabert2.   

Abstract

Different types of supports to families are among the aspects that contribute to family quality of life. This study aims to identify the types of supports that families of children with disabilities, users of early intervention services, consider relevant and how public administration influences the quality of this support. This is a qualitative study based on a critical social paradigm. Sixteen mothers and four fathers were interviewed and their contributions were analyzed using discourse analysis. The importance of family support and networks of parents of children with disabilities were highlighted. The role of the supports by health professionals is also crucial and, therefore, cuts in public health and social services have exacerbated the inequity in health. In practice this is highlighted in relation to those who can and the ones who cannot afford additional services. Other approaches in the support to families are suggested.

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Year:  2016        PMID: 27783785     DOI: 10.1590/1413-812320152110.18412016

Source DB:  PubMed          Journal:  Cien Saude Colet        ISSN: 1413-8123


  3 in total

Review 1.  Family quality of life for families of children with disabilities in African contexts: a scoping review.

Authors:  Julia Jansen-van Vuuren; Reshma Parvin Nuri; Ansha Nega; Beata Batorowicz; Rosemary Lysaght; Heather Michelle Aldersey
Journal:  Qual Life Res       Date:  2021-09-18       Impact factor: 4.147

2.  Quality of Life Among Caregivers of Children with Special Needs in Kelantan, Malaysia: The Importance of Psychosocial Mediators.

Authors:  Siti Nor Ismalina Isa; Ismarulyusda Ishak; Azriani Ab Rahman; Nur Zakiah Mohd Saat; Normah Che Din; Syarif Husin Lubis; Muhammad Faiz Mohd Ismail; Nur Riza Mohd Suradi
Journal:  Malays J Med Sci       Date:  2021-04-21

3.  Support Networks and Family Empowerment in Early Intervention.

Authors:  Gabriel Martínez-Rico; Cecilia Simón; Margarita Cañadas; Robin Mcwilliam
Journal:  Int J Environ Res Public Health       Date:  2022-02-11       Impact factor: 3.390

  3 in total

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