Claire Elizabeth Carswell1, Joanne Reid2, Ian Walsh3, William Johnston4, Jenny B Lee5, Helen McAneney6, Robert Mullan7, Hugh Nelson8, Michael Matthews2, Elizabeth Weatherup8, Andrea Spencer9, Jean Michelo10, Anne Quail9, Grainne Kielty9, Alistair Mackenzie11, Jenny Elliott9, Helen Noble2. 1. School of Nursing and Midwifery, Queen's University Belfast, Belfast, UK. ccarswell02@qub.ac.uk. 2. School of Nursing and Midwifery, Queen's University Belfast, Belfast, UK. 3. School of Medicine, Dentistry and Biomedical Sciences, Queen's University Belfast, Belfast, UK. 4. Kidney Care UK, Alton, UK. 5. College of the Arts, Center for Arts in Medicine, University of Florida, Gainesville, USA. 6. Centre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Queen's University Belfast, Belfast, UK. 7. Antrim Area Hospital, Northern Health and Social Care Trust, Antrim, UK. 8. Northern Health and Social Care Trust, Antrim, UK. 9. Arts Care Northern Ireland, Belfast, UK. 10. Northern Ireland Kidney Patient Association, Belfast, UK. 11. Renal Unit, South Eastern Health and Social Care Trust, Belfast, UK.
Abstract
BACKGROUND: Patients with end-stage kidney disease who receive haemodialysis experience a protracted treatment regimen that can result in an increased risk of depression and anxiety. Arts-based interventions could address this unique issue; however, no arts-based interventions have been developed for delivery within a haemodialysis unit and evaluation within a randomised controlled trials (RCTs). AIM: To develop a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis. METHODS: The development process utilised the Arts in Health framework (Fancourt, 2017). The framework was addressed through the establishment of an interdisciplinary advisory group, collaboration and consultation with stakeholders, a scoping and realist review, shadowing of artists-in-residence, personal arts practice and logic modelling. RESULTS: The intervention involved six 1-h long, one-to-one facilitated sessions focused on creative writing and visual art. Patients could choose between art form and self-select a subject matter. The sessions had a primary focus on skill development and were delivered using principles derived from the psychological theory of flow. CONCLUSION: The Arts in Health framework provided an appropriate and pragmatic approach to intervention development. Complex arts-based interventions can be developed for the purpose of evaluation within a trial framework. This intervention was designed to strike a balance between standardised components, and a person-centred approach necessary to address existential boredom.
BACKGROUND:Patients with end-stage kidney disease who receive haemodialysis experience a protracted treatment regimen that can result in an increased risk of depression and anxiety. Arts-based interventions could address this unique issue; however, no arts-based interventions have been developed for delivery within a haemodialysis unit and evaluation within a randomised controlled trials (RCTs). AIM: To develop a complex arts-based intervention for patients with end-stage kidney disease whilst receiving haemodialysis. METHODS: The development process utilised the Arts in Health framework (Fancourt, 2017). The framework was addressed through the establishment of an interdisciplinary advisory group, collaboration and consultation with stakeholders, a scoping and realist review, shadowing of artists-in-residence, personal arts practice and logic modelling. RESULTS: The intervention involved six 1-h long, one-to-one facilitated sessions focused on creative writing and visual art. Patients could choose between art form and self-select a subject matter. The sessions had a primary focus on skill development and were delivered using principles derived from the psychological theory of flow. CONCLUSION: The Arts in Health framework provided an appropriate and pragmatic approach to intervention development. Complex arts-based interventions can be developed for the purpose of evaluation within a trial framework. This intervention was designed to strike a balance between standardised components, and a person-centred approach necessary to address existential boredom.
Entities:
Keywords:
Arts in health; Arts-based intervention; Chronic disease; End-stage kidney disease; Haemodialysis; Intervention development
Authors: Christine E Haugen; Nadia M Chu; Hao Ying; Fatima Warsame; Courtenay M Holscher; Niraj M Desai; Miranda R Jones; Silas P Norman; Daniel C Brennan; Jacqueline Garonzik-Wang; Jeremy D Walston; Adam W Bingaman; Dorry L Segev; Mara McAdams-DeMarco Journal: Clin J Am Soc Nephrol Date: 2019-03-19 Impact factor: 8.237
Authors: Suetonia Palmer; Mariacristina Vecchio; Jonathan C Craig; Marcello Tonelli; David W Johnson; Antonio Nicolucci; Fabio Pellegrini; Valeria Saglimbene; Giancarlo Logroscino; Steven Fishbane; Giovanni F M Strippoli Journal: Kidney Int Date: 2013-03-13 Impact factor: 10.612
Authors: Claire Carswell; Joanne Reid; Ian Walsh; William Johnston; Helen McAneney; Robert Mullan; Jenny B Lee; Hugh Nelson; Michael Matthews; Elizabeth Weatherup; Andrea Spencer; Jean Michelo; Anne Quail; Grainne Kielty; Alistair Mackenzie; Jenny Elliott; Nicola Arbuckle; Anna Wilson; Helen Noble Journal: BMC Nephrol Date: 2020-11-19 Impact factor: 2.388