Janice Gullick1,2, Susan Monaro1,3, Glenn Stewart3. 1. Sydney Nursing School, University of Sydney, Camperdown, NSW, Australia. 2. Sydney Local Health District, Concord West, NSW, Australia. 3. Concord Repatriation General Hospital, Concord West, NSW, Australia.
Abstract
AIMS AND OBJECTIVES: To interpret the spatio-temporal experience of people with end-stage kidney disease and their families in the first months of haemodialysis. BACKGROUND: While dialysis is the mainstay of end-stage kidney disease management, the actual initiation of treatment is often unexpected by people and families. Poor biopsychosocial preparation means haemodialysis commencement is experienced as a crisis. While previous phenomenological studies suggest that over time, a habitual incorporation of dialysis into one's self-concept is possible, the spatio-temporal experience of people new to haemodialysis is not well understood. DESIGN: A phenomenological study. METHODS: Following purposive sampling, 18 participants were recruited either during an inpatient admission or while attending a public hospital-based haemodialysis unit in Sydney, Australia. Eleven people who had commenced haemodialysis within the previous three months and five close family members were separately engaged in semistructured interviews. Hermeneutic interpretation within a Heideggerian framework occurred through a backward-and-forward analysis between the early haemodialysis experience and its relationship to Being. RESULTS: Themes that related to a temporal and spatial understanding of Being-in-the-world as a new haemodialysis patient or carer included the following: 'compartmentalising life into dialysis and non-dialysis days' (lost time, clock time and lived time); 'compartmentalising before, now and future' (normalising the 'before', dealing with the 'now' and the 'foreverness' of dialysis); and finally, 'compartmentalising space'. CONCLUSIONS: In the months after dialysis commencement, patients and family carers compartmentalise time and space with a loss of continuity of meaningful, lived time that had framed people's past sense of normal. RELEVANCE TO CLINICAL PRACTICE: Resource enhancement activities should focus on social connectivity and provision of personnel and/or infrastructure to reduce boredom, to facilitate engagement with meaningful tasks and, where appropriate, to support the continuation of work activities during the dialysis period.
AIMS AND OBJECTIVES: To interpret the spatio-temporal experience of people with end-stage kidney disease and their families in the first months of haemodialysis. BACKGROUND: While dialysis is the mainstay of end-stage kidney disease management, the actual initiation of treatment is often unexpected by people and families. Poor biopsychosocial preparation means haemodialysis commencement is experienced as a crisis. While previous phenomenological studies suggest that over time, a habitual incorporation of dialysis into one's self-concept is possible, the spatio-temporal experience of people new to haemodialysis is not well understood. DESIGN: A phenomenological study. METHODS: Following purposive sampling, 18 participants were recruited either during an inpatient admission or while attending a public hospital-based haemodialysis unit in Sydney, Australia. Eleven people who had commenced haemodialysis within the previous three months and five close family members were separately engaged in semistructured interviews. Hermeneutic interpretation within a Heideggerian framework occurred through a backward-and-forward analysis between the early haemodialysis experience and its relationship to Being. RESULTS: Themes that related to a temporal and spatial understanding of Being-in-the-world as a new haemodialysis patient or carer included the following: 'compartmentalising life into dialysis and non-dialysis days' (lost time, clock time and lived time); 'compartmentalising before, now and future' (normalising the 'before', dealing with the 'now' and the 'foreverness' of dialysis); and finally, 'compartmentalising space'. CONCLUSIONS: In the months after dialysis commencement, patients and family carers compartmentalise time and space with a loss of continuity of meaningful, lived time that had framed people's past sense of normal. RELEVANCE TO CLINICAL PRACTICE: Resource enhancement activities should focus on social connectivity and provision of personnel and/or infrastructure to reduce boredom, to facilitate engagement with meaningful tasks and, where appropriate, to support the continuation of work activities during the dialysis period.
Authors: Claire Elizabeth Carswell; Joanne Reid; Ian Walsh; William Johnston; Jenny B Lee; Helen McAneney; Robert Mullan; Hugh Nelson; Michael Matthews; Elizabeth Weatherup; Andrea Spencer; Jean Michelo; Anne Quail; Grainne Kielty; Alistair Mackenzie; Jenny Elliott; Helen Noble Journal: Pilot Feasibility Stud Date: 2021-06-16
Authors: Javier Roberti; Amanda Cummings; Michelle Myall; Jonathan Harvey; Kate Lippiett; Katherine Hunt; Federico Cicora; Juan Pedro Alonso; Carl R May Journal: BMJ Open Date: 2018-09-04 Impact factor: 2.692
Authors: Claire Carswell; Joanne Reid; Ian Walsh; William Johnston; Helen McAneney; Robert Mullan; Jenny B Lee; Hugh Nelson; Michael Matthews; Elizabeth Weatherup; Andrea Spencer; Jean Michelo; Anne Quail; Grainne Kielty; Alistair Mackenzie; Jenny Elliott; Nicola Arbuckle; Anna Wilson; Helen Noble Journal: BMC Nephrol Date: 2020-11-19 Impact factor: 2.388