| Literature DB >> 34079603 |
Ronaye Gilsenan1, Rhonda Schwartz2, Iris A Gutmanis3, Adam M B Day4, David P Ryan5, Rosemary R A Brander6, Kelly Milne1, Frank Molnar7.
Abstract
BACKGROUND: While generic, site, and disease-specific patient experience surveys exist, such surveys have limited relevance to frail, medically complex older adults attending appointment-based specialized geriatric services (SGS). The study objective was to develop and evaluate a patient experience survey specific to this population.Entities:
Keywords: appointment-based; frail older adults; patient experience; specialized geriatric services; survey
Year: 2021 PMID: 34079603 PMCID: PMC8137462 DOI: 10.5770/cgj.24.487
Source DB: PubMed Journal: Can Geriatr J ISSN: 1925-8348
Methods used to develop and test the Older Adult Experience Survey
| Phase 1: Framework Identification and Item Selection | Review of existing surveys used by RGPs to identify quality improvement initiatives | Performance Measurement Committee (PMC) established |
| Literature review: | Selection of a patient experience framework | |
| Framework dimension/subdimension selection and refinement | Group consensus based methodology (see | |
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| Phase Two: Survey Refinement | Review of draft survey items by target population | REB submission and approval |
| Pilot survey finalized | Items revised by PMC based on de-identified notes taken during the cognitive interviews | |
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| Phase Three: Pilot Testing | Pilot testing of core items with target population | Site selection and patient recruitment |
| Assessment of pilot survey psychometric properties | Data entered into SPSS v. 24 database | |
| Survey review | Review of item wording, scoring and formatting by PMC | |
| Documentation | Implementation guide developed | |
Wong and Haggerty( dimensions and subdimensions retained for Older Adult Experience Survey
| 1. Access | |||||
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| First contact accessibility | The ability to obtain patient or client initiated needed care (including advice and support) from the provider of choice within a time frame appropriate to the urgency of the problem | Currently in SGS most referrals are initiated by a patient’s primary care practitioner, and therefore, care is not initiated by the client. | |||
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| Accommodation | Relationship between how resources are organized to accept patients or clients (including appointment systems, hours of operation, walk-in facilities, telephone services) & the patient’s or clients’ ability to accommodate factors to realize access | 1. The time I had to wait for my first appointment was reasonable | |||
| 2. Someone was available to talk to me if I needed it | |||||
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| Economic accessibility | The extent to which direct or indirect costs related to care impeded decisions to access needed care or continue recommended care | Low priority rating. Concern that only actionable core items are included in the survey and that SGS does not have the ability to impact these costs (e.g., parking). | |||
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| 2. Interpersonal Communication | |||||
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| General communication | Ability of the provider to elicit and understand patient or client concerns and to explain health and health care issues | My concerns were listened to | 3. My concerns were addressed | ||
| Explanations were given in a way I could understand | 4. Information was given in a way I could understand | ||||
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| Respectfulness | Ability of practitioners to provide care that meets expectations of users about how people should be treated, such as regard for dignity & provision of adequate privacy | 5. I was treated with respect | |||
| I was comfortable sharing my story | (Item removed. Deemed not relevant by patients) | ||||
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| Shared decision-making | Extent to which patients or clients are involved in making decisions about their treatment | I was able to contribute to decisions about my care | 6. I was included in making decisions about my care, as much as I wanted to be | ||
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| Whole person care | Extent to which providers address the physical, emotional and social aspects of a patient’s or client’s health & consider the community context in their care | 7. Time was taken to learn about me as a person | |||
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| 3. Continuity and Coordination | |||||
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| Relational continuity | A therapeutic relationship between the patient or client and one or more identified providers that spans separate health care episodes & delivers care that is consistent with client’s bio-psycho-social needs. | Low priority rating. SGS are typically of a short duration and tend not to span separate health care episodes. | |||
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| Information continuity | Extent to which information is used to make current care appropriate to the patient or client | I was confident that results of my visit were shared with others as needed | 12. It was clear who would receive information about my care | ||
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| Coordination | Provision and organization of a combination of health services and information with which to meet a patient’s or client’s health needs, including services available from other community health service providers | I was connected to services that I needed | I was referred to other programs and/or services that I needed | 11. I was referred to other programs/services that I needed | |
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| Team functioning | Ability of SGS providers to work effectively as an inter-professional team to manage and deliver quality patient or client care | (Initially included and then excluded after cognitive interviews) | The advice I received was consistent | (Item removed. Deemed not relevant by patients) | |
| The people I saw worked together well | (Item removed. Deemed not relevant by patients) | ||||
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| 4. Comprehensiveness of Services | |||||
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| Comprehensive-ness of services provided | The provision, either directly or indirectly, of a full range of services to meet patient’s or clients’ health care needs and caregiver information and support needs after being seen by a specialized geriatric service. This includes health promotion, prevention, diagnosis and treatment of common conditions, referral to other clinicians, management of chronic conditions, rehabilitation, palliative care and in some models, social services | The people I saw thought about all of my needs | 10. The (add program/clinic name) met my needs | ||
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| Health promotion and secondary prevention | Health promotion is the process of enabling people to increase control over, and to improve, their health. Secondary prevention aims to reduce the impact of a disorder by detecting & treating it as soon as possible to halt or slow its progress | High priority item initially, but later became low priority. It was seen to be captured in “comprehensiveness of services provided” | |||
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| 5. Trust | |||||
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| Trust | Expectation that other person will behave in a way that is beneficial and that allows for risks to be taken based on this expectation. For example, patient or client trust in the SGS team provides the basis for taking the risk of sharing personal info | I had confidence in the care I received | 8. I had confidence in the people I saw | ||
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| 6. Patient Reported Impacts of Care | |||||
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| Patient activation | Patient’s or client’s ability or readiness to engage in health behaviours that will maintain or improve their health status | I was able to follow the advice I was given | I could achieve the goals that were agreed to | 9. I will be able to use the advice I was given | |
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| Patient safety | Patient’s or client’s report of medication errors (given or taken the wrong drug or dose) or incorrect medical or laboratory reports and communication with their provider about not taking their prescribed medication or medication side effects | (Initially included, then excluded after cognitive interviews) | The care I received was safe | (Item removed. Deemed not relevant by patients) | |
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| Confidence in the primary health care system | The perception that allows patients or clients of health care to make decisions since they assume (and expect relative certainty about providers delivering safe & technically competent care | Confidence in the primary health care system drew a low priority rating by members. Not considered very applicable to SGS. | Total: 16 core items | Total: 12 core items (4 items removed) 8 items reworded | Total: 12 core items |
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| 7. Overall Ratings | |||||
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| Overall, I felt that the care and services I received were: | 13. Overall, at the (add program/clinic name) | ||||
| 14. I would recommend this program to my family or friends if they needed it | 15. What could be improved? | ||||
| 16. What worked well? | |||||
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| 8. Demographics | |||||
| My Age: | |||||
| My Gender | |||||
Pilot survey item-by-item analysis
| … the time I had to wait for my first appointment was reasonable | 1 (0.7%) | 70.80% | S, M | 0.55 |
| …someone was available to talk to me if I needed it | 0 | 78.60% | M | 0.38 |
| …my concerns were addressed | 2 (1.4%) | 79.00% | 0.48 | |
| …information was given in a way I could understand | 1 (0.7%) | 81.90% | S | 0.48 |
| …I was treated with respect | 1 (0.7%) | 92.40% | S | 0.40 |
| …I was included in making decisions about my care, as much as I wanted to be | 1 (0.7%) | 77.80% | 0.47 | |
| …time was taken to learn about me as a person | 0 | 73.10% | 0.43 | |
| …I had confidence in the people I saw | 0 | 83.40% | 0.43 | |
| …I could achieve the goals that were agreed to | 4 (2.8%) | 61.70% | S | 0.53 |
| …the program met my needs | 4 (2.8%) | 78.70% | M | 0.70 |
| …I was referred to other programs and/or services that I needed | 3 (2.1%) | 76.80% | 0.52 | |
| …it was clear who would receive information about my care | 2 (1.4%) | 81.80% | 0.50 |
Significant difference (p < .05), Mann-Whitney U or Kruskal Wallis test.
Difference by site (S): Ottawa or Scarborough site or by month (M): Jan–March, April–May, June–July.
Item-total Correlation = correlation between the item score and the summed framework-based items excluding that item.
| Details | |
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| Implementation Phase 1 | |
| Reviewed and minimally modified the dimensions and subdimensions of the Wong and Haggerty 2013 primary care patient experience framework to better fit specialized geriatric services | |
| 6/6 dimensions included. 12/17 subdimensions included in SGS version | |
| Participants: 8 | |
| 16 core items developed that aligned with 12 subdimensions | |
| Participants: 8 | |
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| Phase 2 | |
| 4/16 core items removed and resulted in 2/12 sub-dimensions being removed. | |
| 8/16 core items reworded | |
| a 5-point Likert scale was selected for the 12 core items (1=strongly disagree, 3=neutral, 5=strongly agree), an 11-point Likert scale (0=poor, 10=excellent) was selected for the one global question, a 4-point Likert scale was chosen for the willingness to recommend item (1=definitely no; 4=definitely yes), and two open-ended questions were added to gather details about what worked well and what could be improved. | |
| Participants: 8 | |
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| Phase 3 | |
| 2/12 core items re-worded | |
| 2 demographic items added | |
| Anchors for 12 core survey items and one global assessment question were changed to 1= no, definitely not; 5= yes definitely and 0=poor experience, 10=excellent experience, respectively | |
| Survey name was changed to The Older Adult Experience Survey (OAES) and minor changes to survey formatting (1 legal size page to two letter size pages) | |
| SMOG Readability Test conducted (Flesch-Kincaid grade level: 6.2) | |
| Participants: 6 | |
| Details | |
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| Phase 2 | |
| 12 cognitive interviews conducted with 19 participants at three SGS sites (The Ottawa Hospital Geriatric Day Hospital, The Scarborough Hospital GAIN Clinic and the North East Specialized Geriatric Centre) | |
| Survey probes were developed in advance (e.g., I noticed that you were hesitating, tell me what you were thinking?). Specific survey wording was identified for additional clarification (e.g., what does the term “reasonable” mean to you?). Participants were asked if each survey item was useful and relevant to their experience of SGS care and whether any items should be reworded/added/removed | |
| See | |
| One analyst amalgamated and analyzed the data from all sites | |
| Quantitative analysis: Percent agreement with the relevance of each core item | |
| Qualitative analysis: Core survey item feedback was themed according to the conceptual framework (e.g., dimensions, subdimensions). Feedback from participants regarding specific item wording was grouped (e.g., “2 mentioned…”) and feedback detailed as to why wording was confusing, or how it could be improved | |
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| Phase 3 | |
| 5 cognitive interviews with 5 patients at one site (The Scarborough Hospital GAIN Clinic) | |
| Participants reviewed the pre-pilot and post-pilot versions of the survey. | |
| Three patients completed the post-pilot survey first while two patients completed the pilot-tested version first. | |
| Specific changes to the format of the survey were provided to participants along with the rationale for those changes and participants were asked “do you have any concerns with this change?” and “if yes, please tell us about your concerns”. | |
| See | |
| One analyst analyzed the data from the one site | |
| Quantitative analysis: percent who (1) noticed differences between the two surveys, (2) had concerns about specific format changes, (3) stated which version was easier to complete, (4) stated that changes impacted how they responded to the question | |
| Qualitative analysis: aligned thematic analysis with quantitative categories to provide specific examples about their experience completing the different versions of the survey | |
| Survey Core Items being Tested | Probe Question |
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| The time I had to wait for my first appointment was reasonable | “first appointment” |
| Someone was available to talk to me if I needed it | “available” |
| My concerns were listened to | “concerns” |
| Explanations were given in a way I could understand | “explanations” |
| I was comfortable sharing my story | “sharing my story” |
| I was treated with respect | “respect” |
| I was able to contribute to decisions about my care | “contribute” |
| Time was taken to learn about me as a person | What does this statement mean to you? |
| I had confidence in the care I received | “confidence” |
| The care I received was safe | “safe” |
| The advice I received was consistent | “advice” |
| I could follow the advice I was given | “advice” |
| The people I saw worked together well | What does this statement mean to you? Could you paraphrase this? |
| The people I saw thought about all of my needs | “people I saw” |
| I was connected to other services that I needed | “connected” |
| 16. I was confident that results of my visit were shared with others as needed | “results” |
| Overall, I felt that the care and services I received were: | “care and services” |
| I would recommend this program to family or friends if they needed it | “if they needed it” |