| Literature DB >> 33952336 |
Myra Piat1,2, Megan Wainwright3,4, Eleni Sofouli3,5, Brigitte Vachon6, Tania Deslauriers7, Cassandra Préfontaine8, Francesca Frati9.
Abstract
BACKGROUND: Countries around the world have committed in policy to transforming their mental health services towards a recovery orientation. How has mental health recovery been implemented into services for adults, and what factors influence the implementation of recovery-oriented services?Entities:
Keywords: Best-fit framework synthesis; Consolidated framework for implementation research (CFIR); Implementation science; Mental health recovery; Mixed methods; Recovery innovations; Recovery-oriented services; Systematic review
Mesh:
Year: 2021 PMID: 33952336 PMCID: PMC8101029 DOI: 10.1186/s13643-021-01646-0
Source DB: PubMed Journal: Syst Rev ISSN: 2046-4053
Inclusion and exclusion criteria
| Inclusion criteria | |
| ● Published peer-reviewed studies (qualitative/quantitative/mixed methods) investigating the implementation of recovery into adult mental health services for people with serious mental illness (e.g. schizophrenia, bipolar disorder, major depression) from the perspectives of staff, decision-makers, clients, and carers. | |
| ● Studies reporting a new effort (within the organization or system) to transform services towards recovery-orientation and that is recovery-oriented in line with the definition of personal recovery by Anthony (1993) [ | |
| ● Studies that include a description of the methodology for data collection/analysis in the abstract and full text. | |
| ● Studies that report findings related to implementation experience, process, or factors. | |
| ● Studies from any country and in any language. | |
| ● Studies published from 1998 onwards. | |
| Exclusion criteria | |
| ● Studies that describe interventions aimed at enhancing clinical recovery rather than personal recovery. | |
| ● Studies on illness management and recovery (IMR), assertive community treatment (ACT), clubhouses, or psychosocial rehabilitation as these predate or do not emerge from the recovery movement and therefore were not considered “new efforts” (including more recent modifications of these—e.g. f-ACT). | |
| ● Studies about employment or vocational services and personal budgets (though these are recovery-oriented they represent parallel literatures worthy of separate reviews). | |
| ● Studies that describe innovations targeting the use of restraints and/or seclusion or studies whose primary outcome of interest was restraint and/or seclusion rates. | |
| ● Studies reporting findings only about personal mental health recovery outcomes. | |
| ● Studies solely about recovery in the context of addiction (substance abuse, gambling). | |
| ● Reviews or systematic reviews, grey literature (e.g. reports, theses, dissertations, conference abstracts, editorials, letters), or conceptual papers. | |
| ● Studies where the population of interest or service offered was specific to minors, youth, or young adults, including first-episode psychosis. | |
| ● Studies that were about recovery in the context of natural disaster (e.g. earthquake, flood), physical health problems (e.g. stroke or cancer), eating disorders, mild depression, agoraphobia, postpartum depression, or domestic violence. | |
| ● Studies about implementing education around recovery into undergraduate or postgraduate curricula (e.g. nursing, medicine, social work, occupational therapy). | |
| ● Intervention effectiveness studies, implementation strategy effectiveness studies, and cost studies that do not report findings about implementation experience, factors, or process. | |
| ● Author reflections on implementation process without evidence of a methodology. | |
| ● Pre-implementation studies (change not yet implemented). |
Innovation groups, definitions, and corresponding studies
| Innovation group (cases) | Definition | Studies* | |
|---|---|---|---|
| 1 | E-innovations | Online innovations such as websites and smartphone apps. | [ |
| 2 | Family-focused innovations | Innovations specifically aimed at mental health service users who are parents. | [ |
| 3 | Peer workers | Innovations centred on the employment of people with lived experience of mental health problems. | [ |
| 4 | Personal recovery planning | New approaches to writing plans within service provider–service user encounters. | [ |
| 5 | Recovery colleges | Education programs offering courses to service users and service providers on recovery and other topics in mental health. | [ |
| 6 | Service navigation and coordination | Innovations aimed at wraparound care, care coordination, and client access to services across health and social services. | [ |
| 7 | Staff training | Training programs for staff in mental health recovery. | [ |
| 8 | Architecture | Not included in synthesis. See Additional file | [ |
| 9 | Community connections | ||
| 10 | Consumer-led advisory councils | ||
| 11 | Personal budgets | ||
| 12 | Sport | ||
| Perspectives on implementing recovery-oriented services in general | Not included in synthesis. See Additional file | [ | |
*The following studies appear under more than one innovation group because the innovation crosses two categories and findings related to each are reported [104, 109, 110, 155]. For Smith-Merry et al. [155], only the data reported about peer workers and wellness recovery action planning were included in Synthesis Part 2
CFIR domains, synthesis themes, and corresponding CFIR constructs data were extracted to
| CFIR domains | Name of themes from the synthesis | CFIR construct(s) where data underlying this theme were coded to |
|---|---|---|
| Intervention characteristics | ● Flexibility | ● Design quality and packaging ● Relative advantage ● Adaptability |
| ● Relationship building | ● Design quality and packaging ● Complexity | |
| ● Lived experience | ● Design quality and packaging ● Relative advantage ● Source of the Intervention | |
| Inner setting | ● Traditional biomedical vs. recovery-oriented approach | ● Culture ● Learning climate ● Compatibility ● Relative priority |
| ● The importance of organizational and policy commitment to recovery-transformation | ● Compatibility ● Leadership commitment ● Tension for change | |
| ● Staff turnover | ● Structural characteristics | |
| ● Lack of resources to support personal recovery goals | ● Available resources | |
| ● Information gaps about new roles and procedures | ● Access to knowledge and information | |
| ● Interpersonal relationships | ● New construct: Relationships | |
| Characteristics of individuals | ● Variability in knowledge about recovery | ● Knowledge and beliefs ● Self-efficacy ● Individual stage of change |
| ● Characteristics of recovery-oriented service providers | ● Other personal attributes | |
| Process | ● The importance of planning | ● Planning |
| ● Early and continuous engagement with stakeholders | ● Engage: (new construct) engaging with stakeholder ● Reflecting and evaluating ● Formally-appointed internal implementation leader |
CFIR Consolidated Framework for Implementation Research
Fig. 1PRISMA flow chart. V&E, vocation and employment; IMR, illness management and recovery; ACT, assertive community treatment
Fig. 2Results of the sensitivity analysis showing how many studies of each appraisal category contribute to each theme. MMAT, Mixed Methods Appraisal Tool
Intervention characteristics: themes and examples from each innovation group
| Innovation group | Theme | Example |
|---|---|---|
| Flexibility | Some service users appreciated the flexibility the online portal offered compared to in-person consultations because these were available 24 hours a day, and they offered a diversity of modules and content that could be adapted to each clientʼs needs and interests [ | |
| Lived experience | Incorporating videos of people with lived experience of mental illness was valued by some, but not all users [ | |
| Flexibility | Flexible program content for group sessions enabled the facilitators to tailor the program to meet the unique needs and context of the particular group (for example based on the age of participantsʼ children) [ | |
| Flexibility | Flexibility in defining peer workers’ roles [ | |
| Relationship Building | Managing relationships with staff and service users can be a complex process due to peer workers having to shift identities from that of a service user to that of a service provider, while at the same time continuing to juggle these identities in their work [ | |
| Lived experience | Peer workers were thought to have an advantage compared to clinical staff because they enable greater control over choices rather than tell clients what to do [ | |
| Flexibility | Workbooks and guides could help structure the process of recovery planning, but flexibility was important for the acceptability of the intervention among staff and clients (in terms of being optional, tailoring it to service users’ interests, including unstructured space (e.g. for drawing) and adapting to service usersʼ pace) [ | |
| Relationship building | Personal recovery planning involves close relationship building between service providers and service users that entailed a certain amount of complexity around managing the relationship, navigating boundaries, and dealing with a sense of loss when the relationship was required to end at the end of the intervention [ | |
| Lived experience | Recovery planning interventions designed or co-designed by people with lived experience was seen as an important design feature [ | |
| Flexibility | Designing the college so that all students could easily join and sign-up for courses without need for referral or prerequisites was highly appreciated, as was being able to make oneʼs own choices of what to take, how much to participate in class, and dropping a course without being penalized [ | |
| Relationship building | Practitioner tutors can experience some challenges related to negotiating their dual role of colleague and clinician if the peer co-tutor is also their client and becomes unwell while working together [ | |
| Lived experience | Including people with lived -experience as peer tutors delivering recovery college courses was valued because of their insight into what people are going through, because students could identify with them, and because their stories of recovery inspired hope and optimism among staff and service user students [ | |
| Flexibility | In comparison to traditional case management, service navigation and coordination initiatives appeared to have fewer boundaries—for example service providers could do whatever it took to support recovery, and could meet clients in the community rather than in an office [ | |
| Relationship building | Relationships are formed between service navigators/coordinators and service users and there was concern on both sides about managing program exiting, transitions to other programs, and scaling back frequency of contacts [ | |
| Lived experience | Including people with lived experienced, for their real-life inspirational examples of recovery, and the sense of equality they brought to sessions, increased comfort, encouraged openness, and challenged prior identities as professional or service user [ |
aIf the studies in the innovation group did not contribute data to a theme, that theme is not listed under the innovation group and no example is provided
Inner setting: themes and examples from each innovation group
| Innovation group | Theme* | Example |
|---|---|---|
| The importance of organizational and policy commitment to recovery-transformation | An e-innovation was welcomed by leaders because they saw it as helping the organization progress towards their policy goals of measuring and increasing user involvement in care plans [ | |
| Interpersonal relationships | Service users were excited to use the e-innovations but disappointed and frustrated when their providers did not participate in and support them as much as they expected them to. Some providers felt their clients’ expectations were difficult to fulfil [ | |
| Information gaps about new roles and procedures | The need for establishing guidelines, protocols, and procedures to help staff implement family-focused innovations was highlighted [ | |
| Interpersonal relationships | The fact that the group members and the facilitator already knew each was thought to have helped establish the trusting relationships and cohesive group dynamic that were key to successful implementation [ | |
| Traditional biomedical vs. recovery-oriented approach | Peer workers often felt that other staff, primarily mental health professionals and doctors, valued their own knowledge (gained through formal degrees) more than peer workersʼ knowledge (gained through lived experience) [ | |
| The importance of organizational and policy commitment to recovery transformation | If there was a lack of compatibility between the peer worker philosophy and the existing paperwork, treatment plans, and requirements for stating goals and demonstrating progress that they were asked to use, peer workers could feel uncomfortable with, and critical of, the service they provided their clients [ | |
| Information gaps about new roles and procedures | Peer workers often lacked information about their roles and tasks [ | |
| Interpersonal relationships | Building good interpersonal relationships between peer workers and non-peer staff was important for increasing respect and acceptance of the peer worker role [ | |
| Traditional biomedical vs. recovery-oriented approach | Traditional mental health services espouse independent and distinct responsibilities whereas recovery planning requires cooperative and collaborative teamwork that shares responsibility among staff [ | |
| The importance of organizational and policy commitment to recovery transformation | Personal recovery planning can risk becoming just another skill to acquire or just another care plan to complete in a formulaic and non-individualized way if wider organizational change does not occur [ | |
| Staff turnover | Difficulty retaining staff and filling key positions meant that building a continued vision for recovery planning as part of wider organizational change was difficult [ | |
| Lack of resources to support personal recovery goals | Service providers perceived there to be a lack of resources for supporting clients’ individually-determined goals in a hospital setting because there was limited programming available [ | |
| Information gaps about new roles and procedures | Service users and service providers need access to clear information about the role of the service provider, the purpose of personal recovery planning and benefits for service users, and how the recovery plan will be communicated to others on the team and physically stored [ | |
| Interpersonal relationships | Positive relationships were characterized by respect and mutual esteem and negative ones as being told what to do and being patronized [ | |
| Information gaps about new roles and procedures | Guidance was needed for service provider students about how to manage boundaries in co-learning environments and whether they should or should not disclose their status as a member of staff to others [ | |
| Interpersonal relationships | Achieving good rapport between practitioner and peer tutors paired-up to teach courses may be more difficult to achieve if the practitioner tutor is normally the peer tutorʼs service provider [ | |
| Traditional biomedical vs. recovery-oriented approach | Overcoming existing traditional work culture involved dispensing with hierarchical structures, competitiveness, and defensiveness that can silo or make invisible scarce community resources [ | |
| Staff turnover | Turnover could cause unclear leadership and inefficiencies since what staff are required to do may keep changing as people in leadership roles change [ | |
| Lack of resources to support personal recovery goals | Service navigation and coordination depends implicitly on the availability of external services to coordinate, but the lack of services to actually coordinate can threaten its purpose [ | |
| Information gaps about new roles and procedures | Lack of access to information and training around the new service navigation and coordination programs and the role of its staff (processes, referrals, expectations, goals, outcomes, funding, philosophy) was mentioned across studies and was associated with stress, concerns, confusion, difficulties with service navigation, and more difficult relationships with other service providers [ | |
| Interpersonal relationships | Trusting, supportive and caring relationships seemed to be a central factor for service user satisfaction and positive change in service navigation and coordination innovations [ | |
| Traditional biomedical vs. recovery-oriented approach | Recovery training was occurring in an organizational culture characterized by hierarchies and unequal power relations (between different staff, and staff and service users) [ | |
| The importance of organizational and policy commitment to recovery-transformation | Staff supported the view that organizational culture (mission, policies, procedures, record-keeping, staffing) needed to change in order for implementation of a recovery training program to be successful [ | |
| Staff turnover | In one study staff turnover was 21% during the training program [ | |
| Lack of resources to support personal recovery goals | Outside of hospital settings, there may be a lack of resources to draw on to help service users meet their full potential [ |
*If the studies in the innovation group did not contribute data to a theme, that theme is not listed under the innovation group and no example is provided
Characteristics of Individuals: themes and examples from each innovation group
| Innovation group | Theme | Example |
|---|---|---|
| Variability in knowledge about recovery | Some doctors in an e-innovation study showed more interest in less-recovery-oriented aspects of the innovation, such as the tool’s capacity for clinical monitoring of sleep and symptoms [ | |
| Variability in knowledge about recovery | In one study of a family-focused innovation, nurses tended to confound personal and clinical recovery (e.g. they referred to recovery as the clinical improvement of symptoms and a process of regaining physical and mental health to a point where the client could be discharged) [ | |
| Variability in knowledge about recovery | Some peer workers felt strongly that recovery and the roles of peer workers had been misunderstood and co-opted in the mental health system, that they were being asked to do tasks and roles that contradicted the recovery approach or that trivialized their role (being a clerk or a driver), and that some clinicians misused the term and confused clinical recovery with concepts of personal recovery [ | |
| Characteristics of recovery-oriented service providers | Personal attributes of peer workers that facilitated or optimized their work and impact included: patience [ | |
| Variability in knowledge about recovery | Staff and clients showed familiarity with the facts and truths about the recovery plan when they expressed understanding that it was both process and outcome [ | |
| Characteristics of recovery-oriented service providers | Positive experiences were related to finding facilitators supportive, respectful, encouraging, helpful, collaborative, and warm [ | |
| Variability in knowledge about recovery | Some service provider students in recovery colleges felt that service users needed to be well enough mentally to participate [ | |
| Variability in knowledge about recovery | Even when state officials are very clear on the distinction between dependency-producing case management and self-managed recovery, and providers excited by the new model and open to client empowerment, in practice the two can become blurred [ | |
| Characteristics of recovery-oriented service providers | Success of service navigation and coordination innovations appeared closely tied to personal characteristics of staff, in particular the ability to develop strong individual connections, trust, and rapport with both clients and other services through a personal approach, addressing competitive or defensive responses, empowering themselves, being hardworking, and having the skills to navigate fragmented systems [ | |
| Variability in knowledge about recovery | While the centrality of hope and recovery-oriented language was understood, some, despite training still thought of recovery as a linear journey with a start and end point, or as a type of care, or something they did for clients [ |
aIf the studies in the innovation group did not contribute data to a theme, that theme is not listed under the innovation group and no example is provided
Process: themes and examples from each innovation group
| Innovation group | Theme | Example |
|---|---|---|
| The importance of planning | Early anticipation of issues with hiring new staff and effective planning (particularly the challenge of hiring staff for an innovation based on a model that did not yet exist in the community) helped to enhance workforce criteria over time [ | |
| Early and continuous engagement with stakeholders | Engaging collaboratively with service providers to revise and refine the forms and protocols they would use as part of the innovation, helped ensure these were clear, simple, and adhered to [ | |
| The importance of planning | Planning was essential for mitigating known implementation challenges through well-chosen strategies such as having processes for embedding peer workers into the team (e.g. formal introductions, photos on walls) [ | |
| Early and continuous engagement with stakeholders | Engaging with carer and clinician expert reference groups helped identify and select an intervention to be delivered by peer workers [ | |
| Early and continuous engagement with stakeholders | There was a need for greater, earlier, and more sustained engagement with funders, auditors, psychiatrists, admission and intake staff, and service users [ | |
| Early and continuous engagement with stakeholders | Engaging with organization staff early in the implementation process for their input into processes and procedures helped to leverage existing resources and prompt staff to offer classes in recovery colleges [ | |
| The importance of planning | Lack of adequate planning around protocols, work roles, information management, and training was an important contributor to the implementation problems encountered [ | |
| Early and continuous engagement with stakeholders | A lack of stakeholder engagement was highlighted as an implementation challenge. There was a need for greater engagement with stakeholders such as service users, families, and service providers in the planning stage to collaboratively develop elements such as protocols, work roles, responsibilities, required outcomes, information management, and service logistics and design [ |
aIf the studies in the innovation group did not contribute data to a theme, that theme is not listed under the innovation group and no example is provided