Literature DB >> 33945415

Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule "Key Information" Requirement.

Kathryn M Porter1, Elliott M Weiss1,2, Stephanie A Kraft1,2.   

Abstract

Entities:  

Mesh：

Year:  2021        PMID： 33945415      PMCID： PMC8600969          DOI： 10.1080/15265161.2021.1906996

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  7 in total

1.  Comparison of enrollees and decliners of Parkinson disease sham surgery trials.

Authors:  Scott Y H Kim; Renee M Wilson; H Myra Kim; Robert G Holloway; Raymond G De Vries; Samuel A Frank; Karl Kieburtz
Journal:  Mov Disord       Date:  2012-02-07       Impact factor: 10.338

2.  Comprehension and Choice Under the Revised Common Rule: Improving Informed Consent by Offering Reasons Why Some Enroll in Research and Others Do Not.

Authors:  Stephanie A Kraft; Kathryn M Porter; Seema K Shah; Benjamin S Wilfond
Journal:  Am J Bioeth       Date:  2017-07       Impact factor: 11.229

3.  Partnering With Patients to Bridge Gaps in Consent for Acute Care Research.

Authors:  Neal W Dickert; Amanda Michelle Bernard; JoAnne M Brabson; Rodney J Hunter; Regina McLemore; Andrea R Mitchell; Stephen Palmer; Barbara Reed; Michele Riedford; Raymond T Simpson; Candace D Speight; Tracie Steadman; Rebecca D Pentz
Journal:  Am J Bioeth       Date:  2020-06       Impact factor: 11.229

4.  Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs.

Authors:  Candace D Speight; Charlie Gregor; Yi-An Ko; Stephanie A Kraft; Andrea R Mitchell; Nyiramugisha K Niyibizi; Bradley G Phillips; Kathryn M Porter; Seema K Shah; Jeremy Sugarman; Benjamin S Wilfond; Neal W Dickert
Journal:  AJOB Empir Bioeth       Date:  2021-03-15

5.  Response to Open Peer Commentaries on "Informed Consent: What Must Be Disclosed and What Must Be Understood?"

Authors:  Danielle Bromwich; Joseph Millum
Journal:  Am J Bioeth       Date:  2021-07       Impact factor: 11.229

6.  Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Authors:  Stephanie A Kraft; Erin Rothwell; Seema K Shah; Devan M Duenas; Hannah Lewis; Kristin Muessig; Douglas J Opel; Katrina A B Goddard; Benjamin S Wilfond
Journal:  J Med Ethics       Date:  2020-10-06       Impact factor: 2.903

7.  Parental interest in genomic sequencing of newborns: enrollment experience from the BabySeq Project.

Authors:  Casie A Genetti; Talia S Schwartz; Jill O Robinson; Grace E VanNoy; Devan Petersen; Stacey Pereira; Shawn Fayer; Hayley A Peoples; Pankaj B Agrawal; Wendi N Betting; Ingrid A Holm; Amy L McGuire; Susan E Waisbren; Timothy W Yu; Robert C Green; Alan H Beggs; Richard B Parad
Journal:  Genet Med       Date:  2018-09-13       Impact factor: 8.822
  7 in total

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