Literature DB >> 33792060

Interrogating the promise of technology in epilepsy care: systematic, hermeneutic review.

Chrysanthi Papoutsi1, Christian D E Collins1,2, Alexandra Christopher1, Sara E Shaw1, Trisha Greenhalgh1.   

Abstract

Technology development is gathering pace in epilepsy with seizure detection devices promising to transform self-care and service provision. However, such accounts often neglect the uncertainties, displacements and responsibilities that technology-supported care generates. This review brings together a heterogeneous literature, identified through systematic searches in 8 databases and snowball searching, to interrogate how technology becomes positioned in epilepsy care. We took a hermeneutic approach in our analysis of the 206 included articles, which resulted in the development of a conceptual framework surfacing the underlying logics by which technology-supported epilepsy care is organised. Each of these logics enacts different techno-scientific futures and carries specific assumptions about how (often imagined) 'users' and their bodies become co-constituted. Our review shows that studies in this area remain primarily deterministic and technology-focused. Few draw phenomenological insights on lived experiences with epilepsy or use social theory to problematise the role of technology. We propose future directions for sociotechnical, theory-driven studies of technology in epilepsy care and offer a framework transferable across other long-term conditions.
© 2021 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).

Entities:  

Keywords:  e-health; epilepsy; hermeneutic review; sociotechnical theory; user representations

Year:  2021        PMID: 33792060      PMCID: PMC8317050          DOI: 10.1111/1467-9566.13266

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  25 in total

1.  Personal health technologies, micropolitics and resistance: A new materialist analysis.

Authors:  Nick J Fox
Journal:  Health (London)       Date:  2016-07-26

2.  The practice of medical technology.

Authors:  Stefan Timmermans; Marc Berg
Journal:  Sociol Health Illn       Date:  2003

3.  A licence to drive? Neurological illness, loss and disruption.

Authors:  Melissa Stepney; Susan Kirkpatrick; Louise Locock; Suman Prinjha; Sara Ryan
Journal:  Sociol Health Illn       Date:  2018-05-22

Review 4.  Epilepsy and social identity: the stigma of a chronic neurological disorder.

Authors:  Ann Jacoby; Dee Snape; Gus A Baker
Journal:  Lancet Neurol       Date:  2005-03       Impact factor: 44.182

Review 5.  Non-EEG seizure detection systems and potential SUDEP prevention: State of the art: Review and update.

Authors:  Anouk Van de Vel; Kris Cuppens; Bert Bonroy; Milica Milosevic; Katrien Jansen; Sabine Van Huffel; Bart Vanrumste; Patrick Cras; Lieven Lagae; Berten Ceulemans
Journal:  Seizure       Date:  2016-07-27       Impact factor: 3.184

6.  Perspectives of adults with epilepsy and their support persons on self-management support.

Authors:  Elizabeth Reisinger Walker; Christina Barmon; Robin E McGee; George Engelhard; Claire E Sterk; Colleen DiIorio; Nancy J Thompson
Journal:  Qual Health Res       Date:  2014-09-05

7.  Re-working biographies: Women's narratives of pregnancy whilst living with epilepsy.

Authors:  Annalise Weckesser; Elaine Denny
Journal:  Soc Sci Med       Date:  2017-05-18       Impact factor: 4.634

8.  What is quality in assisted living technology? The ARCHIE framework for effective telehealth and telecare services.

Authors:  Trisha Greenhalgh; Rob Procter; Joe Wherton; Paul Sugarhood; Sue Hinder; Mark Rouncefield
Journal:  BMC Med       Date:  2015-04-23       Impact factor: 8.775

9.  Infrastructure Revisited: An Ethnographic Case Study of how Health Information Infrastructure Shapes and Constrains Technological Innovation.

Authors:  Trisha Greenhalgh; Joseph Wherton; Sara Shaw; Chrysanthi Papoutsi; Shanti Vijayaraghavan; Rob Stones
Journal:  J Med Internet Res       Date:  2019-12-19       Impact factor: 5.428

10.  Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness.

Authors:  Carl R May; David T Eton; Kasey Boehmer; Katie Gallacher; Katherine Hunt; Sara MacDonald; Frances S Mair; Christine M May; Victor M Montori; Alison Richardson; Anne E Rogers; Nathan Shippee
Journal:  BMC Health Serv Res       Date:  2014-06-26       Impact factor: 2.655

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  2 in total

1.  Closed-Loop Neuromodulation and Self-Perception in Clinical Treatment of Refractory Epilepsy.

Authors:  Tobias Haeusermann; Cailin R Lechner; Kristina Celeste Fong; Alissa Bernstein Sideman; Agnieszka Jaworska; Winston Chiong; Daniel Dohan
Journal:  AJOB Neurosci       Date:  2021-09-02

2.  Parental preferences for seizure detection devices: A discrete choice experiment.

Authors:  Anouk van Westrhenen; Ben F M Wijnen; Roland D Thijs
Journal:  Epilepsia       Date:  2022-03-04       Impact factor: 6.740

  2 in total

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