Literature DB >> 15721827

Epilepsy and social identity: the stigma of a chronic neurological disorder.

Ann Jacoby1, Dee Snape, Gus A Baker.   

Abstract

Epilepsy is the most common serious neurological disorder worldwide, affecting about 50 million people. In most people with epilepsy, the disorder is clinically benign. However, because of the stigma associated with having epilepsy, which is common to many cultures, there can be a negative effect on the social identity of people with the disorder, particularly for those living in resource-poor countries. In this paper, we present general theories of stigma, as well as those specific to chronic illness. We relate these theories to the stigma associated with epilepsy throughout history and across cultures. We review research on the relation between stigma and the overall quality of life of people with epilepsy. Finally, we address reduction of the stigma.

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Mesh:

Year:  2005        PMID: 15721827     DOI: 10.1016/S1474-4422(05)01014-8

Source DB:  PubMed          Journal:  Lancet Neurol        ISSN: 1474-4422            Impact factor:   44.182


  73 in total

Review 1.  Global disparities in the epilepsy treatment gap: a systematic review.

Authors:  Ana-Claire Meyer; Tarun Dua; Juliana Ma; Shekhar Saxena; Gretchen Birbeck
Journal:  Bull World Health Organ       Date:  2009-09-25       Impact factor: 9.408

Review 2.  Growing old with epilepsy: the neglected issue of cognitive and brain health in aging and elder persons with chronic epilepsy.

Authors:  Bruce Hermann; Michael Seidenberg; Mark Sager; Cynthia Carlsson; Barry Gidal; Raj Sheth; Paul Rutecki; Sanjay Asthana
Journal:  Epilepsia       Date:  2007-11-21       Impact factor: 5.864

Review 3.  The first seizure and its management in adults and children.

Authors:  Bernd Pohlmann-Eden; Ettore Beghi; Carol Camfield; Peter Camfield
Journal:  BMJ       Date:  2006-02-11

4.  Stigma of people with epilepsy in China: views of health professionals, teachers, employers, and community leaders.

Authors:  Rong-Rong Yang; Wen-Zhi Wang; Dee Snape; Gong Chen; Lei Zhang; Jian-Zhong Wu; Gus A Baker; Xiao-Ying Zheng; Ann Jacoby
Journal:  Epilepsy Behav       Date:  2011-05-24       Impact factor: 2.937

5.  Noninvasive sampling of gabapentin by reverse iontophoresis.

Authors:  Anroop B Nair; Rachna Kumria; Bandar E Al-Dhubiab; Mahesh Attimarad; Sree Harsha
Journal:  Pharm Res       Date:  2014-10-16       Impact factor: 4.200

Review 6.  Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.

Authors:  Dale C Hesdorffer; Vicki Beck; Charles E Begley; Malachy L Bishop; Sandra Cushner-Weinstein; Gregory L Holmes; Patricia O Shafer; Joseph I Sirven; Joan K Austin
Journal:  Epilepsia       Date:  2013-01-07       Impact factor: 5.864

Review 7.  Social stigma in diabetes : a framework to understand a growing problem for an increasing epidemic.

Authors:  Jasmin Schabert; Jessica L Browne; Kylie Mosely; Jane Speight
Journal:  Patient       Date:  2013       Impact factor: 3.883

8.  Impact of perceived stigma on inflammatory bowel disease patient outcomes.

Authors:  Tiffany H Taft; Laurie Keefer; Christoph Leonhard; Michele Nealon-Woods
Journal:  Inflamm Bowel Dis       Date:  2009-08       Impact factor: 5.325

9.  Stigma as a fundamental cause of population health inequalities.

Authors:  Mark L Hatzenbuehler; Jo C Phelan; Bruce G Link
Journal:  Am J Public Health       Date:  2013-03-14       Impact factor: 9.308

10.  Feasibility and acceptability of mobile epilepsy educational system (MEES) for people with epilepsy in Malaysia.

Authors:  Pei Lin Lua; Widiasmoro Selamat Neni
Journal:  Telemed J E Health       Date:  2012-10-18       Impact factor: 3.536

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