Javiera Ortega1, Natalia Vázquez2, Claudia Arberas3. 1. Consejo Nacional de Investigaciones Científicas y Técnicas CONICET. Centro de Investigación de Psicología y Psicopedagogía (CIPP)-Facultad de Psicología y Psicopedagogía, Universidad Católica Argentina. javiera_ortega@uca.edu.ar. 2. Centro de Investigación de Psicología y Psicopedagogía (CIPP)-Facultad de Psicología y Psicopedagogía, Universidad Católica Argentina.. natalia_vazquez@uca.edu.ar. 3. Hospital de niños "Dr. Ricardo Gutiérrez".. carberas@gmail.com.
Abstract
Introduction: Living with a genetic condition is complex and may be limiting for the adolescent. This situation is considered a stress factor and risk factor for the mental health of both the patient and his family. Objective: To study the levels of psychological adaptation and genetic literacy in adolescents with genetic diseases residing in Argentina. Methods: Correlational and quantitative design and cross sectional scope. The protocol consisted of an informed consent, a sociodemographic data questionnaire, and the Genetic Health Literacy Screening Tool (REAL G) and Psychological Adaptation Scale (PAS) instruments. The sampling was intentional and composed by 68 cases. Results: The REAL G indicated low levels of genetic literacy in all its components (decoding, familiarity, comprehension, arithmetic). Regarding psychological adaptation, an M = 4.02 (SD = 0.8) was found for the general scale and high scores for all the dimensions. Conclusion: Adolescents diagnosed with genetic diseases in Argentina have a good level of psychological adaptation to their disease, despite having low levels of genetic literacy. Universidad Nacional de Córdoba
Introduction: Living with a genetic condition is complex and may be limiting for the adolescent. This situation is considered a stress factor and risk factor for the mental health of both the patient and his family. Objective: To study the levels of psychological adaptation and genetic literacy in adolescents with genetic diseases residing in Argentina. Methods: Correlational and quantitative design and cross sectional scope. The protocol consisted of an informed consent, a sociodemographic data questionnaire, and the Genetic Health Literacy Screening Tool (REAL G) and Psychological Adaptation Scale (PAS) instruments. The sampling was intentional and composed by 68 cases. Results: The REAL G indicated low levels of genetic literacy in all its components (decoding, familiarity, comprehension, arithmetic). Regarding psychological adaptation, an M = 4.02 (SD = 0.8) was found for the general scale and high scores for all the dimensions. Conclusion: Adolescents diagnosed with genetic diseases in Argentina have a good level of psychological adaptation to their disease, despite having low levels of genetic literacy. Universidad Nacional de Córdoba
Entities:
Keywords:
genetic counseling; health literacy; adaptation psychological; adolescent
Authors: Barbara B Biesecker; Lori H Erby; Samuel Woolford; Jessica Young Adcock; Julie S Cohen; Amanda Lamb; Katie V Lewis; Megan Truitt; Amy Turriff; Bryce B Reeve Journal: Patient Educ Couns Date: 2013-08-28
Authors: Bethany Vice Bowling; Erin E Acra; Lihshing Wang; Melanie F Myers; Gary E Dean; Glenn C Markle; Christine L Moskalik; Carl A Huether Journal: Genetics Date: 2008-01 Impact factor: 4.562