Literature DB >> 33705917

Health-related quality of life in children with untreated intermittent exotropia and their parents.

Jonathan M Holmes1, Amra Hercinovic2, B Michele Melia2, David A Leske3, Sarah R Hatt3, Danielle L Chandler2, Trevano W Dean2, Raymond T Kraker2, Laura B Enyedi4, David K Wallace5, Brian G Mohney3, Susan A Cotter6.   

Abstract

PURPOSE: To determine whether health-related quality of life (HRQOL) scores improved or worsened over 3 years of observation in childhood intermittent exotropia without treatment.
METHODS: A total of 111 children aged 3-11 years with intermittent exotropia were assigned to observation in a previously reported randomized trial comparing patching with observation. The intermittent exotropia questionnaire (IXTQ) was administered at baseline, 6 months, and 36 months. Rasch-calibrated IXTQ domain scores (Child, Proxy, Parent-psychosocial, Parent-function, and Parent-surgery) were compared between time points. The Child IXTQ was administered only to children ≥5 years of age (n = 78).
RESULTS: Overall, Child IXTQ and Proxy IXTQ scores showed no significant change over 36 months (mean improvement from baseline to 36 months of 3.2 points [95% CI, -1.9 to 8.2] and -2.4 points [95% CI: -7.9 to 3.1], resp.). By contrast, Parent-psychosocial, Parent-function, and Parent-surgery domain scores all improved over 36 months (mean improvements of 12.8 points [95% CI, 5.9-19.6] and 14.2 points [95% CI, 8.0-20.3] and 18.5 points [95% CI, 9.7-27.3], resp.).
CONCLUSIONS: HRQOL of children with intermittent exotropia remains stable with observation over 3 years (by both child and proxy report), whereas parental HRQOL improves.
Copyright © 2021 American Association for Pediatric Ophthalmology and Strabismus. Published by Elsevier Inc. All rights reserved.

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Year:  2021        PMID: 33705917      PMCID: PMC8628477          DOI: 10.1016/j.jaapos.2020.10.011

Source DB:  PubMed          Journal:  J AAPOS        ISSN: 1091-8531            Impact factor:   1.220


  7 in total

1.  An external pilot study to test the feasibility of a randomised controlled trial comparing eye muscle surgery against active monitoring for childhood intermittent exotropia [X(T)].

Authors:  Michael Clarke; Vanessa Hogan; Deborah Buck; Jing Shen; Christine Powell; Chris Speed; Peter Tiffin; John Sloper; Robert Taylor; Mahmoud Nassar; Kerry Joyce; Fiona Beyer; Richard Thomson; Luke Vale; Elaine McColl; Nick Steen
Journal:  Health Technol Assess       Date:  2015-05       Impact factor: 4.014

2.  Evaluation of the Intermittent Exotropia Questionnaire using Rasch analysis.

Authors:  David A Leske; Jonathan M Holmes; B Michele Melia
Journal:  JAMA Ophthalmol       Date:  2015-04       Impact factor: 7.389

3.  A randomized trial comparing part-time patching with observation for children 3 to 10 years of age with intermittent exotropia.

Authors:  Susan A Cotter; Brian G Mohney; Danielle L Chandler; Jonathan M Holmes; Michael X Repka; Michele Melia; David K Wallace; Roy W Beck; Eileen E Birch; Raymond T Kraker; Susanna M Tamkins; Aaron M Miller; Nicholas A Sala; Stephen R Glaser
Journal:  Ophthalmology       Date:  2014-09-16       Impact factor: 12.079

4.  Three-Year Observation of Children 3 to 10 Years of Age with Untreated Intermittent Exotropia.

Authors:  Brian G Mohney; Susan A Cotter; Danielle L Chandler; Jonathan M Holmes; David K Wallace; Tomohiko Yamada; David B Petersen; Raymond T Kraker; Christie L Morse; B Michele Melia; Rui Wu
Journal:  Ophthalmology       Date:  2019-01-26       Impact factor: 12.079

5.  Incidence and types of childhood exotropia: a population-based study.

Authors:  Malu Govindan; Brian G Mohney; Nancy N Diehl; James P Burke
Journal:  Ophthalmology       Date:  2005-01       Impact factor: 12.079

6.  Development and initial validation of quality-of-life questionnaires for intermittent exotropia.

Authors:  Sarah R Hatt; David A Leske; Tomohiko Yamada; Elizabeth A Bradley; Stephen R Cole; Jonathan M Holmes
Journal:  Ophthalmology       Date:  2009-11-06       Impact factor: 12.079

7.  A Randomized Trial Comparing Bilateral Lateral Rectus Recession versus Unilateral Recess and Resect for Basic-Type Intermittent Exotropia.

Authors:  Sean P Donahue; Danielle L Chandler; Jonathan M Holmes; Brian W Arthur; Evelyn A Paysse; David K Wallace; David B Petersen; B Michele Melia; Raymond T Kraker; Aaron M Miller
Journal:  Ophthalmology       Date:  2018-09-03       Impact factor: 12.079

  7 in total
  1 in total

1.  Improvement in health-related quality of life following strabismus surgery for children with intermittent exotropia.

Authors:  Jonathan M Holmes; Amra Hercinovic; B Michele Melia; David A Leske; Sarah R Hatt; Danielle L Chandler; Trevano W Dean; Raymond T Kraker; Laura B Enyedi; David K Wallace; Sean P Donahue; Susan A Cotter
Journal:  J AAPOS       Date:  2021-04-24       Impact factor: 1.220

  1 in total

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