Literature DB >> 33474662

Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti.

Monique Botha1,2, Jacqueline Hanlon3, Gemma Louise Williams4.   

Abstract

In response to Vivanti's 'Ask The Editor…' paper [Journal of Autism and Developmental Disorders, 50(2), 691-693], we argue that the use of language in autism research has material consequences for autistic people including stigmatisation, dehumanisation, and violence. Further, that the debate in the use of person-first language versus identity-first language should centre first and foremost on the needs, autonomy, and rights of autistic people, so in to preserve their rights to self-determination. Lastly, we provide directions for future research.

Entities:  

Keywords:  Autism; Identity-first language; Person-first language; Rights-based approach; Stigma

Year:  2021        PMID： 33474662      PMCID： PMC7817071          DOI： 10.1007/s10803-020-04858-w

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  31 in total

1.  Prevalence of autism-spectrum conditions: UK school-based population study.

Authors:  Simon Baron-Cohen; Fiona J Scott; Carrie Allison; Joanna Williams; Patrick Bolton; Fiona E Matthews; Carol Brayne
Journal:  Br J Psychiatry       Date:  2009-06       Impact factor: 9.319

Review 2.  Person-first and identity-first language: Developing psychologists' cultural competence using disability language.

Authors:  Dana S Dunn; Erin E Andrews
Journal:  Am Psychol       Date:  2015-02-02

Review 3.  Minimally verbal school-aged children with autism spectrum disorder: the neglected end of the spectrum.

Authors:  Helen Tager-Flusberg; Connie Kasari
Journal:  Autism Res       Date:  2013-10-07       Impact factor: 5.216

4.  "Respect the way I need to communicate with you": Healthcare experiences of adults on the autism spectrum.

Authors:  Christina Nicolaidis; Dora M Raymaker; Elesia Ashkenazy; Katherine E McDonald; Sebastian Dern; Amelia Ev Baggs; Steven K Kapp; Michael Weiner; W Cody Boisclair
Journal:  Autism       Date:  2015-04-16

5.  Person-first language: Noble intent but to what effect?

Authors:  Roger Collier
Journal:  CMAJ       Date:  2012-11-05       Impact factor: 8.262

6.  Understanding, attitudes and dehumanisation towards autistic people.

Authors:  Eilidh Cage; Jessica Di Monaco; Victoria Newell
Journal:  Autism       Date:  2018-11-21

7.  Deficit, difference, or both? Autism and neurodiversity.

Authors:  Steven K Kapp; Kristen Gillespie-Lynch; Lauren E Sherman; Ted Hutman
Journal:  Dev Psychol       Date:  2012-04-30

8.  Guidelines for conducting research studies with the autism community.

Authors:  Emma Gowen; Rachel Taylor; Thomas Bleazard; Anat Greenstein; Peter Baimbridge; Daniel Poole
Journal:  Autism Policy Pract       Date:  2019-09-09

9.  Victimization and Perpetration Experiences of Adults With Autism.

Authors:  Jonathan A Weiss; Michelle A Fardella
Journal:  Front Psychiatry       Date:  2018-05-25       Impact factor: 4.157

10.  Creating Accessible Survey Instruments for Use with Autistic Adults and People with Intellectual Disability: Lessons Learned and Recommendations.

Authors:  Christina Nicolaidis; Dora M Raymaker; Katherine E McDonald; Emily M Lund; Sandra Leotti; Steven K Kapp; Marsha Katz; Leanne M Beers; Clarissa Kripke; Joelle Maslak; Morrigan Hunter; Kelly Y Zhen
Journal:  Autism Adulthood       Date:  2020-03-11
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  17 in total

Review 1.  Mental Health Services for Autistic Individuals Across the Lifespan: Recent Advances and Current Gaps.

Authors:  Brenna B Maddox; Kelsey S Dickson; Nicole A Stadnick; David S Mandell; Lauren Brookman-Frazee
Journal:  Curr Psychiatry Rep       Date:  2021-08-17       Impact factor: 5.285

2.  Autistic adults and their experiences with police personnel: a qualitative inquiry.

Authors:  Sophia Calton; Guy Hall
Journal:  Psychiatr Psychol Law       Date:  2021-07-13

3.  Sensory Processing and Community Participation in Autistic Adults.

Authors:  Nancy Bagatell; Dara V Chan; Ya-Cing Syu; Elena M Lamarche; Laura G Klinger
Journal:  Front Psychol       Date:  2022-06-02

4.  Empirically-Derived Effect Size Distributions of Interventions for Young Children on the Autism Spectrum.

Authors:  Jason Chow; Hongyang Zhao; Micheal Sandbank; Kristen Bottema-Beutel; Tiffany Woynaroski
Journal:  J Clin Child Adolesc Psychol       Date:  2022-01-25

5.  Does Treatment Fidelity of the Early Start Denver Model Impact Skill Acquisition in Young Children with Autism?

Authors:  Ashley Zitter; Hezekiah Rinn; Zofia Szapuova; Vanessa M Avila-Pons; Kirsty L Coulter; Aubyn C Stahmer; Diana L Robins; Giacomo Vivanti
Journal:  J Autism Dev Disord       Date:  2021-12-02

6.  Marital satisfaction, parenting styles, and child outcomes in families of autistic children.

Authors:  Jessica L Greenlee; Brianna Piro-Gambetti; Jennifer Putney; Lauren M Papp; Sigan L Hartley
Journal:  Fam Process       Date:  2021-08-13

7.  Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities.

Authors:  Melissa Maye; Brian A Boyd; Frances Martínez-Pedraza; Alycia Halladay; Audrey Thurm; David S Mandell
Journal:  J Autism Dev Disord       Date:  2021-09-16

8.  Evaluating evidence-based practice in light of the boundedness and proximity of outcomes: Capturing the scope of change.

Authors:  Micheal Sandbank; Jason Chow; Kristen Bottema-Beutel; Tiffany Woynaroski
Journal:  Autism Res       Date:  2021-05-04       Impact factor: 4.633

9.  Global perspectives on autism acceptance, camouflaging behaviours and mental health in autism spectrum disorder: A registered report protocol.

Authors:  Connor Tom Keating; Lydia Hickman; Philippine Geelhand; Toru Takahashi; Joan Leung; Bianca Schuster; Alicia Rybicki; Teresa Marie Girolamo; Elise Clin; Fanny Papastamou; Marie Belenger; Inge-Marie Eigsti; Jennifer Louise Cook; Hirotaka Kosaka; Rieko Osu; Yuko Okamoto; Sophie Sowden
Journal:  PLoS One       Date:  2021-12-30       Impact factor: 3.240

10.  Factors Influencing Oral Health Behaviours, Access and Provision of Dental Care for Autistic Children and Adolescents in Countries with a Very High Human Development Index: Protocol for a Mixed Methods Systematic Review.

Authors:  Jo Erwin; Martha Paisi; Robert Witton; Sarah Neill; Lorna Burns; Isaac Vassallo; Abigail Nelder; Jemma Facenfield; Urshla Devalia; Tara Vassallo
Journal:  Int J Environ Res Public Health       Date:  2021-11-24       Impact factor: 3.390
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