Literature DB >> 22545843

Deficit, difference, or both? Autism and neurodiversity.

Steven K Kapp1, Kristen Gillespie-Lynch, Lauren E Sherman, Ted Hutman.   

Abstract

The neurodiversity movement challenges the medical model's interest in causation and cure, celebrating autism as an inseparable aspect of identity. Using an online survey, we examined the perceived opposition between the medical model and the neurodiversity movement by assessing conceptions of autism and neurodiversity among people with different relations to autism. Participants (N = 657) included autistic people, relatives and friends of autistic people, and people with no specified relation to autism. Self-identification as autistic and neurodiversity awareness were associated with viewing autism as a positive identity that needs no cure, suggesting core differences between the medical model and the neurodiversity movement. Nevertheless, results suggested substantial overlap between these approaches to autism. Recognition of the negative aspects of autism and endorsement of parenting practices that celebrate and ameliorate but do not eliminate autism did not differ based on relation to autism or awareness of neurodiversity. These findings suggest a deficit-as-difference conception of autism wherein neurological conditions may represent equally valid pathways within human diversity. Potential areas of common ground in research and practice regarding autism are discussed.

Entities:  

Mesh:

Year:  2012        PMID: 22545843     DOI: 10.1037/a0028353

Source DB:  PubMed          Journal:  Dev Psychol        ISSN: 0012-1649


  81 in total

1.  Can the Five Factor Model of Personality Account for the Variability of Autism Symptom Expression? Multivariate Approaches to Behavioral Phenotyping in Adult Autism Spectrum Disorder.

Authors:  Benjamin C Schwartzman; Jeffrey J Wood; Steven K Kapp
Journal:  J Autism Dev Disord       Date:  2016-01

2.  The Development and Evaluation of an Online Healthcare Toolkit for Autistic Adults and their Primary Care Providers.

Authors:  Christina Nicolaidis; Dora Raymaker; Katherine McDonald; Steven Kapp; Michael Weiner; Elesia Ashkenazy; Martha Gerrity; Clarissa Kripke; Laura Platt; Amelia Baggs
Journal:  J Gen Intern Med       Date:  2016-06-06       Impact factor: 5.128

3.  Development and Feasibility of MindChip™: A Social Emotional Telehealth Intervention for Autistic Adults.

Authors:  Julia S Y Tang; Marita Falkmer; Nigel T M Chen; Sven Bӧlte; Sonya Girdler
Journal:  J Autism Dev Disord       Date:  2021-04

4.  Fundamental challenges for autism research: the science-practice gap, demarcating autism and the unsuccessful search for the neurobiological basis of autism.

Authors:  Berend Verhoeff
Journal:  Med Health Care Philos       Date:  2015-08

5.  'At the End of the Day, It's Love': An Exploration of Relationships in Neurodiverse Couples.

Authors:  Rachel Smith; Julie Netto; Nigel C Gribble; Marita Falkmer
Journal:  J Autism Dev Disord       Date:  2020-11-20

Review 6.  Rigid therapies, rigid minds: italian professionals' perspectives on autism interventions.

Authors:  M Ariel Cascio
Journal:  Cult Med Psychiatry       Date:  2015-06

7.  Parent health beliefs, social determinants of health, and child health services utilization among U.S. school-age children with autism.

Authors:  Katharine E Zuckerman; Olivia J Lindly; Brianna K Sinche; Christina Nicolaidis
Journal:  J Dev Behav Pediatr       Date:  2015-04       Impact factor: 2.225

Review 8.  Beyond V40.31: Narrative Phenomenology of Wandering in Autism and Dementia.

Authors:  Olga Solomon; Mary C Lawlor
Journal:  Cult Med Psychiatry       Date:  2018-06

9.  The Flexibility Scale: Development and Preliminary Validation of a Cognitive Flexibility Measure in Children with Autism Spectrum Disorders.

Authors:  John F Strang; Laura G Anthony; Benjamin E Yerys; Kristina K Hardy; Gregory L Wallace; Anna C Armour; Katerina Dudley; Lauren Kenworthy
Journal:  J Autism Dev Disord       Date:  2017-08

10.  In Different Voices: The Views of People with Disabilities about Return of Results from Precision Medicine Research.

Authors:  Maya Sabatello; Yuan Zhang; Ying Chen; Paul S Appelbaum
Journal:  Public Health Genomics       Date:  2020-04-15       Impact factor: 2.000

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