Literature DB >> 34529251

Biases, Barriers, and Possible Solutions: Steps Towards Addressing Autism Researchers Under-Engagement with Racially, Ethnically, and Socioeconomically Diverse Communities.

Melissa Maye1, Brian A Boyd2, Frances Martínez-Pedraza3, Alycia Halladay4,5, Audrey Thurm6, David S Mandell7.   

Abstract

Autistic individuals who are also people of color or from lower socioeconomic strata are historically underrepresented in research. Lack of representation in autism research has contributed to health and healthcare disparities. Reducing these disparities will require culturally competent research that is relevant to under-resourced communities as well as collecting large nationally representative samples, or samples in which traditionally disenfranchised groups are over-represented. To achieve these goals, a diverse group of culturally competent researchers must partner with and gain the trust of communities to identify and eliminate barriers to participating in research. We suggest community-academic partnerships as one promising approach that results in high-quality research built on cultural competency, respect, and shared decision making.
© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  Autism; Engagement; Ethnicity; Participation; Race; Socioeconomic status

Mesh:

Year:  2021        PMID: 34529251      PMCID: PMC8924013          DOI: 10.1007/s10803-021-05250-y

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  34 in total

Review 1.  Structural racism and health inequities in the USA: evidence and interventions.

Authors:  Zinzi D Bailey; Nancy Krieger; Madina Agénor; Jasmine Graves; Natalia Linos; Mary T Bassett
Journal:  Lancet       Date:  2017-04-08       Impact factor: 79.321

2.  Judging the Past: How History Should Inform Bioethics.

Authors:  Michele A Riva
Journal:  Ann Intern Med       Date:  2016-11-01       Impact factor: 25.391

3.  Large Databases for Pediatric Research on Children with Autism Spectrum Disorder.

Authors:  Karen A Kuhlthau; L Charles Bailey; Briella L Baer; Daniel L Coury; J Kiely Law; Donna S Murray; Hanieh Razzaghi; Christopher B Forrest; Paul H Lipkin
Journal:  J Dev Behav Pediatr       Date:  2018 Feb/Mar       Impact factor: 2.225

4.  The Impact of Racism on Child and Adolescent Health.

Authors:  Maria Trent; Danielle G Dooley; Jacqueline Dougé
Journal:  Pediatrics       Date:  2019-08       Impact factor: 7.124

5.  African American families on autism diagnosis and treatment: the influence of culture.

Authors:  Karen Burkett; Edith Morris; Patricia Manning-Courtney; Jean Anthony; Donna Shambley-Ebron
Journal:  J Autism Dev Disord       Date:  2015-10

6.  Race differences in the age at diagnosis among medicaid-eligible children with autism.

Authors:  David S Mandell; John Listerud; Susan E Levy; Jennifer A Pinto-Martin
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2002-12       Impact factor: 8.829

Review 7.  Implicit bias in healthcare professionals: a systematic review.

Authors:  Chloë FitzGerald; Samia Hurst
Journal:  BMC Med Ethics       Date:  2017-03-01       Impact factor: 2.652

8.  Does Language Matter? Identity-First Versus Person-First Language Use in Autism Research: A Response to Vivanti.

Authors:  Monique Botha; Jacqueline Hanlon; Gemma Louise Williams
Journal:  J Autism Dev Disord       Date:  2021-01-20

9.  Implicit and explicit weight bias in a national sample of 4,732 medical students: the medical student CHANGES study.

Authors:  Sean M Phelan; John F Dovidio; Rebecca M Puhl; Diana J Burgess; David B Nelson; Mark W Yeazel; Rachel Hardeman; Sylvia Perry; Michelle van Ryn
Journal:  Obesity (Silver Spring)       Date:  2014-01-09       Impact factor: 5.002

10.  Participation of the elderly, women, and minorities in pivotal trials supporting 2011-2013 U.S. Food and Drug Administration approvals.

Authors:  Nicholas S Downing; Nilay D Shah; Joseph H Neiman; Jenerius A Aminawung; Harlan M Krumholz; Joseph S Ross
Journal:  Trials       Date:  2016-04-14       Impact factor: 2.279

View more
  2 in total

1.  Challenging Behaviors Online Modules for Parents of Young Children with Disabilities: A Pilot Feasibility Study.

Authors:  James D Lee; Rebecca E Hacker; Hedda Meadan; Ban Sleiman Haidar
Journal:  Educ Treat Children       Date:  2022-01-03

2.  Incorporating Dis/ability Studies and Critical Race Theory to combat systematic exclusion of Black, Indigenous, and People of Color in clinical neuroscience.

Authors:  Teresa Girolamo; Termara C Parker; Inge-Marie Eigsti
Journal:  Front Neurosci       Date:  2022-09-08       Impact factor: 5.152

  2 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.